December 12, 2013
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Developments is a newsletter for CAAI programs funded under MCHB. The content of this newsletter has been generated by program staff and trainees, and does not necessarily reflect the views and policies of HRSA-MCHB. No official support or endorsement by HRSA-MCHB is intended or should be inferred. This publication is funded in part by cooperative agreement #UA5MC11068.
 AUCD | 1100 Wayne Avenue, Suite 1000, Silver Spring, MD 20910
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Congratulations on an outstanding AUCD Conference. It was inspiring, thought provoking and truly provided innovative ideas for inclusion in a diverse world. We also want to welcome Andy Imparato as the new Executive Director, and thank George Jesien for his years of working with us and leading AUCD to making a difference for individuals with developmental disabilities and their families. 
Members of the LEND program at Cincinnati Children's Hospital Medical Center/University of Cincinnati have collaborated with community partners to develop the Starting Our Adventure Right (SOAR) program to support individuals with ASD to participate... 
Clinicians and researchers from Boston Children's Hospital's Down Syndrome Program and LEND program presented research findings and program descriptions of best practices in Denver at the annual meeting of the National Down Syndrome...
In collaboration, Autism Speaks, the Illinois LEND (Leadership Education in Neurodevelopmental Disabilities) Program at the Institute on Disability and Human Development (IDHD), University of Illinois at Chicago (UIC), and other key community partners conducted outreach to underserved Latino... 
The Washington Autism Advisory Council (WAAC) is now in its 5th year. The Council was formed in 2009 to guide the work of the two competitive federal grants awarded under the Combating Autism Act of 2006: the WA State Department of Health Children with Special Health Care... 
The Riley Child Development Center (RCDC), Indiana's LEND Program, is taking part in an innovative system development model being spear-headed by faculty in the Indiana University School of Medicine Department of Pediatrics and Children's Health Services Research. 
NH LEND faculty and trainees in New Hampshire and Maine continue to be actively involved in Act Early initiatives in both states. The NH LEND program is a collaboration among the Geisel School of Medicine at Dartmouth, the Institute on Disability/UCED... 
The iCan Chat project was a collaborative demonstration project funded by the CVS CAREMARK Charitable Trust at the University of Miami Mailman Center for Child Development from January 1, 2012 to May 31, 2013. We collaborated with several agencies in... 
One in five families has a child with special health care needs-but medical and human service professionals often don't get the training they need to provide long-term, integrated care for these children. Filling a critical gap in... 
Dr. Kerim Munir, Associate Professor at Harvard Medical School and Director of Psychiatry for the ICI/LEND program at Boston Children's Hospital, working with... 
The Combating Autism Act Initiative (CAAI) has a goal of advancing research in treatment of autism spectrum disorders (ASD). The Autism Intervention Research Network on...
The Family Implemented TEACCH for Toddlers study (FITT, renamed from Home TEACCHing Program to emphasize the project's relationship with families) recently finished its second of three funded years. Based on structured teaching and... 
AMCHP's mission is to support state maternal and child health programs by providing national leadership on issues affecting woman and children. In support of this mission, the State Public Health Autism Resource Center (SPHARC) has several new... 
A new "Learn the Signs. Act Early." funding announcement, Act Early State Systems Grants, has recently been released. Approximately seven grants, of up to $20,000, will be awarded for a two-year project period. The purpose... 
The Nebraska Act Early State Autism Team, in partnership with the Autism Society of Nebraska (ASN), sponsored two events at the State Capitol in Lincoln, NE to enhance ASD awareness among members of the 2012 and 2013 Nebraska... 
2013 National Autism Leadership Summit, hosted by OCALI, welcomed over 80 leaders from 25 states on November 18, 2013. The second annual event gathers leaders from multiple systems of services and supports to promote... 
Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by social communication impairments and restricted, repetitive behaviors. Current pharmacological interventions for ASD focus primarily on psychiatric symptoms, such as... 
Select presentations from AUCD2013 are now available, including many on autism and LEND! This year's AUCD Conference theme promotes our network values of inclusion of all persons with developmental and other disabilities in community life and engages the network in conversation and practices to ensure our work reflects the changing cultural and linguistic landscape in our Centers and States. 
CDC's NCBDDD, in partnership with NIH, Autism Speaks, and AUCD, recently conducted the largest project to date looking at the number and characteristics of Somali children with autism spectrum disorder in any U.S. community. Today, key findings from this project were released. 
The Association of University Centers on Disabilities (AUCD) was recently awarded a new cooperative agreement with the Centers for Disease Control and Prevention (CDC) to collaborate on "Learn the Signs. Act Early." initiatives. AUCD will be working with the CDC, the Health Resources and Services Administration (HRSA) and the... 
As you know, the Combating Autism Act must be reauthorized this year or it will expire! This law provides critical funding for LEND programs and other coordinated federal efforts to address the needs of people on the autism spectrum as well as other developmental disabilities. LEND trainees are encouraged to become involved. 
3 new training categories are now available in ITAC's Training Toolbox: Genetics, Audiology, and Adult Health. The Toolbox is an easy way to browse and share innovative and time-tested training strategies on a variety of topics relevant to leadership and Maternal and Child Health. Curious how others teach a topic? Check out the 4 new training strategies in the 
The Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was released in May 2013, bringing with it several revisions to the criteria for the diagnosis and classification of mental disorders. See select resources that network members have found to be helpful in... 
The Connecticut Guidelines for a Clinical Diagnosis of an Autism Spectrum Disorder are a direct result of collaborative efforts that were initiated under the Act Early Summit Project. The Summit Project began in 2007 as a partnership... 
The 2013 CAAI Meeting brought together individuals from the training, research, and state programs funded by HRSA/MCHB's Combating Autism Act Initiative, as well as partner organizations and supporters. Directors and key faculty from each of the CAAI grants (DBP, LEND, States, and Research) were all in attendance. 
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