May 22, 2019
As you finish the current academic year and look forward to future cohorts, we recognize the importance of delivering information and resources that may be timely to MCH training programs. It is our hope that you find the resources contained in this newsletter useful in supporting the work of your faculty, staff and trainees.
You'll notice that the newsletter sections mirror the AUCD Strategic Map priority areas. In doing so, we wish to highlight network resources and efforts that guide our collective work and mission.
Grow Diverse and Skilled Leaders
This section will highlight resources / opportunities for leadership at all levels by cultivating and equipping leaders with the skills to engage communities and improve systems.
ITAC's Training Toolbox serves as resource for programs to share innovative training strategies/activities on topics related to leadership and Maternal and Child Health. This Toolbox makes it easy for your program to browse through proven/innovative methods used by other programs to teach important concepts to their trainees.
- Transition: Postsecondary Apprenticeship Pilot for Youth (PAYCheck)
- The PAYCheck program is offered as one option for trainees to fulfill their clinical hours. Trainees shadow students with developmental disabilities ages 18 to 22 and can assist with various support activities.
- Research: Development of the Family-centered Autism Navigation (Family CAN) measure
- The Family CAN is a semi-structured interview guide designed for use by family navigators or care coordinators who serve caregivers. Trainees participated in data collection and analysis that supported the development process.
- Transition: Clinical and Research Training through Transitioning Together (TT) and Working Together (WT) programs for Adolescents with ASD
- The Transitioning Together (TT) program is a support and education program for families of adolescents (ages 14-21) with ASD. Trainees develop and hone research skills when they participate in the development and evaluation of these programs by contributing data collection, data analysis, and presentation of results at professional meetings.
- Interdisciplinary Training: Solution Focused Learning
- Quarterly solution-focused learning (SFL) sessions, an application of problem-based learning, are conducted with a local family who has a child or teen with a disability. Through these class sessions, trainees research most of the content areas required or recommended by Maternal and Child Health Bureau.
2019-2020 AUCD Emerging Leaders Internship - Deadline June 19, 2019
AUCD is seeking two (2) Emerging Leaders Interns to who are interested in learning more about information sharing, resource development and stakeholder engagement in a national non-profit organization setting. Interns will work together to passionately represent the network of current and former trainees, as well as early career professionals, and act as connection points between these individuals at their respective centers/programs and the broader national network. Apply here.
AUCD and the Emerging Leaders Intern Team is pleased to announce the 2019 Emerging Leaders Map: "Centering People with Disabilities/Disabled People." "Centering" means that PWD/DP are at the core of our work. It requires actively listening to and respecting people with disabilities/disabled people and their needs and wants within our communities. This map features the work and perspectives of 24 Emerging Leaders from across the AUCD network. Select a map pin to learn more about each individual's discipline, Center, and more related to the map theme.
This webinar, led by one of AUCD's Emerging Leaders Interns, provided prompts for trainees to reflect on the importance of their LEND, UCEDD, DBP, or IDDRC traineeship; shared practical tips for how to stay connected with the AUCD network no matter what their next steps are; and, most importantly, how they can apply what they've learned over the past year to advance their professional goals. View webinar.
Model Diversity, Equity, and Inclusion
This section will highlight resources / opportunities to reach out, engage, and include underrepresented groups to advance our knowledge and impact.
This collaborative toolkit provides concrete objectives, strategies, and resources that help enhance diversity, inclusion, and cultural and linguistic competence; cultivate partnerships; respond to increasingly diverse communities across the country; and develop strategies for continuing efforts to better serve diverse populations. We've highlighted some of the existing resources based on some of the needs identified in programs' most recent NCC progress updates.
Strategy: Prepare for a sustained effort when recruiting in diverse populations. Budget for it, engage for it, be present for it consistently over time. Include this topic in organizational management plan.
- Resource: SAMHSA Minority Recruitment for the 21st Century: An Environmental Scan
- Resource: Increasing Diversity in the Biomedical Research Workforce: Actions for Improving Evidence
Strategy: Create relationships outside of traditional partners, including criminal justice, military, arts, civic, civil rights, refugee, community planning/action, ethnic-specific Chambers of Commerce, health, mental health, outreach clinics, ethnic-specific advocacy groups, sororities and fraternities, ethnic-specific professional associations, social justice organizations, immigrant rights organizations, and other groups tasked with serving diverse communities. Networking with cross-silo cultural and linguistic competence initiatives connects to others who may serve as resources for AIDD/AUCD/UCEDD/LEND work, helps other "mainstream" human services see the ways cultural and linguistic competence issues play out in disability services, and helps those mainstream organizations recognize the ways that disability is also a diversity and inclusion issue.
A Whitepaper from AUCD's Family Discipline Workgroup
This white paper approaches family involvement from the perspective of the family discipline itself, and the ongoing paradigm shift in family-centered care--from fringe to fabric. This document includes a summary of the history of family involvement in the LEND network and a series of 8 individual handouts which detail the definition, need, benefits, resources and strategies associated with each type (e.g. families as mentors, families as trainees) of family involvement. Read more here.
Advance Policies and Practices that Improve Lives
This section will highlight resources / opportunities that increase the use of evidence-based, culturally-responsive, and inclusive policies and practices.
The Milestones Matter Community is a new social media project organized by Act Early Ambassadors. This community targets caregivers and early childhood professionals with resources for supporting the developmental health of all children.
In response to this need the Northeast Regional LEND programs partnered with Dartmouth Hitchcock Medical Center to provide a full day training on the Effects of Substance Abuse on Young Children on Friday, May 17, 2019 in Concord, NH.
The goal of this series was to share new and innovative work from AUCD member programs from across the country in brief, accessible presentations tied together across a common topic, and to support conversation around each. Topics included: Transition, Early Identification, and Diversity in Autism Spectrum Disorders. View the archived presentation and slides here.
In honor of SAMSHA's Children's Mental Health Awareness Day this episode of the Pediatric Podcast includes a series of three 10-minute conversations featuring Douglene Jackson (Mailman Center - FL), Kris Barnekow (Waisman Center - WI), and Ben Kaufman (AUCD) to highlight the importance of supporting children's mental health through participation in everyday occupations, such as learning and play. The interviews are led by American Occupational Therapy Association (AOTA) member and pediatric occupational therapist Colleen Cameron Whiting, MS, OTR/L. These interviews highlight children's mental health as an important feature of strong communities and promotes occupational therapy as a key service provider. Listen here.
Conduct and Apply Research and Share Knowledge
This section will highlight resources / opportunities that engage the disability community to identify priorities and conduct research with the goal of accessible presentation of information.
AUCD's Council on Research and Evaluation (CORE)
CORE will hold its quarterly call on Wednesday May 29, 2019 at 2:00pm ET. To subscribe yourself and/or a member of your faculty to the CORE e-mail list and to get more information about upcoming Council activities, please visit CORE's webpage or contact Luis Valdez ([email protected]).
Youth with autism are growing up in a world where awareness of autism and expectations for full inclusion in society are increasing. Today, one in 59 children have an autism spectrum disorder (ASD) according to the Centers for Disease Control and Prevention. Because autism spectrum disorder is a lifelong neurodevelopmental disorder and no two youth with ASD are alike, their service and support needs vary and continually change as they age. Read more.
Resources and Announcements
2019 Autism CARES Grantee Meeting - Deadline to register is July 10, 2019
This meeting will be an opportunity for MCHB-funded CARES legislation grantees to share information about activities within their respective networks, discuss emerging trends, and facilitate meaningful collaboration. There will be a $200 fee for each (non-federal) attendee to cover the production of materials and meals associated with the event. Note: grant dollars can be used for registration costs. Registration closes July 10. Register here.
LEND Directors Meeting - July 17, 2019
LEND Directors will be meeting on Wednesday, July 17 from 10:00am - 5:00pm ET in the State Room at the Mayflower Hotel, the site of the Autism CARES Grantee Meeting on July 18-19. More information coming soon. MCHB strongly encourages LEND Directors to attend all in-person technical assistance meetings and should make every possible effort to do so. In the event that a LEND Director has an unavoidable conflict, they should designate another leader (e.g. Associate Director, Training Director) to attend in their place. Each program should have at least one but no more than three representatives, as this meeting is focused on high-level content. Please contact Ben Kaufman at AUCD for more information.
Submit a Proposal for AUCD 2019 Today - Deadline May 24, 2019
Concurrent session and poster proposals for AUCD 2019 ("Leading Change Together") are encouraged from students, self-advocates, family leaders, clinicians, and researchers in over 25 topics. Submit a proposal today!