October 24, 2018
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We are excited to launch the ITAC Bulletin Board as part of AUCD's technical assistance to LENDs and DBPs! We realize that important and timely information may be lost within the high volume of e-mails received per week. This quarterly newsletter will hopefully make it easier for you to access and use what is most relevant to MCH training programs. All content is meant to be shared among your faculty and trainees, so please feel free to disseminate widely!
You'll notice that the newsletter sections mirror the AUCD Strategic Map priority areas. In doing so, we wish to highlight network resources and efforts that guide our collective work and mission.
Grow Diverse and Skilled Leaders
This section will highlight resources / opportunities for leadership at all levels by cultivating and equipping leaders with the skills to engage communities and improve systems.
Now Archived! 2018 DMCHWD Grantee Virtual Meeting: "How to Tell Your Program's Story to Key Stakeholders"
The meeting addressed how to compose and share your program's story from a high-level perspective, emphasizing effectiveness, impact, and interaction with key audiences. It also underscored the value of building and establishing relationships with decision-makers, state agencies, community organizations, and more. During this meeting, Dr. Deborah Klein Walker shared her expertise and evidence-based strategies on how to effectively tell your program's story. In addition, three grantees (including Cincinnati LEND) share their examples on how they shared their program's story to a targeted audience.
Newly Added Training Toolbox Strategies!*
ITAC's Training Toolbox serves as resource for programs to share innovative training strategies/activities on topics related to leadership and Maternal and Child Health. This Toolbox makes it easy for your program to browse through different, proven methods used by other programs to teach important concepts to their trainees.
- Policy & Advocacy: Individualized Advocacy Project (IAP)
- An IAP is when a trainee works with a faculty mentor to create an advocacy project that lasts for four weeks. By completing an IAP, trainees will develop leadership skills, recognize the importance of identifying evidence-based practices, and understand the interdisciplinary approach when problem-solving.
- Policy & Advocacy: Leadership and Policy Experience
- An engaging set of activities in which trainees participate in: An eight-week public policy module that covers Maternal and Child Health (MCH), Title V, and public health systems and policy; Three Interdisciplinary Leadership Intensive (ILI) sessions; A policy analysis and policy brief assignment.
- Intervention & Treatment: Clinical Research Training through Facing Your Fears, a treatment protocol for ASD and co-occurring anxiety
- FYF is a Cognitive Behavioral Therapy-based program aimed toward youth with high-functioning Autism Spectrum Disorders who need assistance managing anxiety symptoms that interfere with daily life. Interdisciplinary trainees participate in the project by becoming trained in the protocol and facilitating the implementation, with opportunities for trainees interested in the research components of the project to join ongoing research projects to adapt the treatment for specific populations and settings.
- Adult Health: The Adult Health Case-Based Modules: Module 1 of 4
- The modules are designed to build knowledge about the adult phase of the life course continuum of health and health care for people with developmental and intellectual disabilities.
*Please note that these are summaries of the strategies. By clicking the link and browsing these, and other, strategies, you will be able to learn more details around the strategy, associated learning objectives, benefits, supplemental resources or links, and the challenges/lessons learned.
AUCD Emerging Leaders Community
Every year, AUCD welcomes thousands of new leaders to the network, all with a shared commitment to civil rights and social justice. The AUCD network is proud to be the professional home for these leaders - a place where they can learn about the issues, connect with others, get involved, and grow, with the ultimate goal of impacting the lives of people with disabilities and their families throughout the country and world. AUCD is thrilled to formalize this concept with the launch of the Emerging Leaders Community. Their new "home" contains several new resources specifically designed to support current and former Trainees, as well as other early career leaders.
Now archived! Recent Special Interest Group (SIG) and AUCD Council Webinars
- You are important to me: Help your DSPs be the best they can be
This webinar offered a framework in which to improve the training needs of managers and direct service providers (DSPs), discuss emerging behavioral health issues, discuss emerging client health issues, and establish a culture of workforce well-being. - Best Practices in Accessibility for Training and Dissemination
This webinar offered practical suggestions for addressing AUCD's Community Education and Dissemination Council's (CEDC) priority of delivering accessible presentations. Presenters outlined considerations for preparing and presenting material designed to accommodate individuals experiencing a wide range of disabilities. - Positive Psychology In Practice
This webinar provided an introduction to the art and science of positive psychology and its application to strengths-based practice with People with IDD/DD. Highlighted were evidence-based clinical interventions designed to improve well-being while reducing negative emotions and behaviors.
Announcing the Nutrition Special Interest Group (SIG)
The Nutrition SIG was launched in June 2018 because of the expressed interest of network members, and its listserv will serve as an open discussion forum. Subscribers can now collaborate or share resources on nutrition and disability, including events and success stories, as well as nutrition-related activities that are inclusive of people with disabilities.
Model Diversity, Equity, and Inclusion
This section will highlight resources / opportunities to reach out, engage, and include underrepresented groups to advance our knowledge and impact.
Announcing the redesigned AUCD Diversity & Inclusion Toolkit!
This collaborative toolkit provides concrete objectives, strategies, and resources that help enhance diversity, inclusion, and cultural and linguistic competence; cultivate partnerships; respond to increasingly diverse communities across the country; and develop strategies for continuing efforts to better serve diverse populations. We welcome you to incorporate the resources and strategies outlined in this toolkit within the context of your program!
Advance Policies and Practices that Improve Lives
This section will highlight resources / opportunities that increase the use of evidence-based, culturally-responsive, and inclusive policies and practices.
Promoting Strategic LEND - Title V Collaboration
ITAC staff, with support from network leaders, presented a poster for the CityMatCH Annual Conference that reviewed how LEND programs are driving health workforce development informed by and in partnership with Title V, highlighting innovative approaches from across the country.
Spotlight: LEND - State Act Early Partnership
The CDC has supported an early childhood development tracking campaign aimed at identifying delays at an earlier age, also known as Learn the Signs. Act Early. The materials designed under its program are targeted to parents to help them know their child's developmental milestones. Act Early Ambassadors work within their states to find creative ways to embed the Learn the Signs. Act Early. campaign into systems and programs. AUCD member training programs have much to gain by partnering with their state's Act Early Ambassador. These programs are naturally poised to help state and community programs and systems find ways to use these free, evidence-based materials. For more information about the materials and to find your closest Ambassador visit www.cdc.gov/actearly.
- Minnesota LEND and Minnesota Act Early Project Collaboration
To date, 15 MN LEND fellows have participated in LTSAE outreach and contributed over 1000 hours of community outreach. Projects have ranged from integrating into a variety of systems including county library systems, child care centers, cultural communities (Somali, Latino/Latina, Hmong, Oromo), local child welfare systems, community health care clinics, curriculum for nurse practitioners, and LTSAE website and social media development. Read more. - Ohio's LEND Collaboration to Support Children Impacted by the Opioid Crisis
In just over a month, there have been over 1,400 registered participants for the training module which speaks to the urgent need of these professionals to gain more knowledge and skills to support Ohio's vulnerable children. Given the vast reach of this training, more early childhood professionals have also been exposed to the Learn the Signs. Act Early. materials and specific resources in Ohio to support young children's development. Read more. - Indiana LEND - Act Early Partnership
Stephan Viehweg of the Indiana LEND has been the CDC's Learn the Signs Ambassador to Indiana since 2013. He uses this title to reach out to agency leaders and policy makers to figure out how to make these evidence based, free materials available to families across the state. Being an ambassador opens all sorts of doors and invites opportunities. Read more. - Partnership for Nevada: LEND and Act Early Collaboration
NvLEND trainees are afforded the opportunity to not only participate in a CDC initiative, but also get guidance from NvLEND faculty regarding their own personal leadership goals related to developmental monitoring and screening. Trainees organize and set the agenda for the annual Nevada Act Early Summit, which has occurred for seven consecutive years. Read more. - CDC's Learn the Signs. Act Early. in the University of Tennessee Boling Center LEND Program
LEND faculty and trainees have utilized many of the Act Early program components in teaching, clinical encounters, and community outreach to assist in developmental surveillance for young children. Clinically, Boling Center LEND uses the Act Early family educational materials regularly, particularly in our medical settings, to assist in developmental surveillance. Read more.
Policy: Learn Basics from AUCD's Emerging Leaders Community!
For many new Trainees, AUCD's Policy Team knows that policy can be confusing and overwhelming. It can be hard for Trainees to know where to begin and what to do with the information they learn. The Policy Team has developed several resources that can be used to support your existing curriculum. The resources help Trainees understand some of the foundational, need to know policies, and directs them toward meaningful action steps in the field of disability.
Conduct and Apply Research and Share Knowledge
This section will highlight resources / opportunities that engage the disability community to identify priorities and conduct research with the goal of accessible presentation of information.
October is National Down Syndrome Awareness Month
ITAC staff represent the AUCD network in the Down Syndrome Consortium and are excited to announce the launch of the INCLUDE initiative. Learn more about this initiative and the associated research funding opportunities here.
DS-Connect: Connecting families and those with Down syndrome to research that INCLUDEs them - October 25, 2018
Staff from the National Institutes of Health (NIH) will discuss DS-Connect®: The Down Syndrome Registry (https://DSConnect.nih.gov) and what it can offer families. They will describe how families can fill out surveys, participate in research, and view the aggregate de-identified data. NIH staff will also show how a researcher or clinician interested in any aspect of Down syndrome can use the registry for learning about Down syndrome and recruiting participants for studies. Webinar participants will also learn about progress in studies being supported by DS-Connect. Register here.
Resources and Announcements
AUCD Annual Meeting Preview for LEND and DBP Leaders
We're looking forward to having everyone in Washington, DC for AUCD2018! To help you navigate the various activities and meetings, ITAC staff have developed a targeted agenda for LEND and DBP leaders. Feel free to share this with your program faculty and trainees that plan to attend; and we'll also have print copies available at the LEND Directors Meeting on Sunday, November 11.
Autistic Adults and Other Stakeholders Engaged Together (AASET) Meeting
AASET, a PCORI-funded project, envision a world in which autistic adults have access to appropriate healthcare to support positive health outcomes. Their annual meeting is being held on Saturday, November 11 directly before AUCD2018. It will include a keynote presentation, panel discussion, Twitter chat, and breakout sessions. All interested individuals are welcome to register.
For further information, or to suggest content for future issues, please contact Luis Valdez, AUCD Program Specialist.
AUCD
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This communication is provided in partial fulfillment of tasks outlined in a cooperative agreement (#UA5MC11068) between AUCD and the Maternal and Child Health Bureau (MCHB). The contents do not necessarily reflect the views or policies of MCHB, the Health Resources Services Administration, U.S. Department of Health and Human Services, or the U.S. Government.