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OHSU UCEDD: A personal and professional experience

In the summer of 2020, Jan Staehely, communication consultant and staff member at the OHSU Institute on Development and Disability UCEDD, and an individual with Cerebral Palsy who uses an assistive communication device, had a frightening experience. Wildfires were approaching the south-eastern towns near Portland, Oregon and her neighborhood was placed in an evacuation zone.



WIHD Develops Post-COVID Roadmap to Recovery and Resilience

WIHD took on the challenge of strategic planning during these uncertain times in order to be well-positioned to respond to whatever scenarios may arise over the coming years. This effort culminated in the development of what we are calling our Post- COVID Roadmap.



Resources for Disasters and Disability

The REDDy Directory is an online searchable guide to disability-related resources, services, and information for those affected by COVID-19. The site allows visitors to search by zip code, key word, or resource type. Useful for case managers, organizations, and individuals.



HDI Launches Storytelling Website

The University of Kentucky Human Development Institute Digital Storytelling Initiative highlights the stories and lived experiences of people with disabilities. Interviews address multiple life experience living and working in the community. Most recently, the Vaccine Confidence and Access for People for People with Disabilities Initiative interviewed with people with disabilities about their vaccine experience and the importance of keeping our communities healthy.



Request for Application: Trainee and Training Director Stipend Opportunity for Local Vaccine Outreach

Submission deadline is extended to 5 pm ET on September 21, 2021.

Through an upcoming single-source award from the Centers for Disease Control and Prevention (CDC) to Association of University Centers on Disabilities (AUCD), a selection of Trainees and Training Directors from the AUCD network members will conduct COVID-19 vaccine outreach with the disability community as part of a larger effort, Local Vaccine Outreach with the Disability Community. Successful applicants will propose innovative message delivery streams and local modalities to reach people with disabilities (including individuals not connected to service delivery systems), their families, and Direct Support Professionals (DSPs), with the overarching goal of boosting COVID-19 vaccination rates in the disability community.



Dr. Laura Stough awarded the Knowledge Award for Excellence in Education or Research

This summer Dr. Laura Stough was awarded the Knowledge Award for Excellence in Education or Research from the Texas Chapter of the American Association on Intellectual and Developmental Disabilities. It was awarded for significant contributions to the dissemination of knowledge in the field of intellectual and developmental disabilities through education and/or research.



COVID-19 Screening in Schools for Children with IDD

Since November 2020, investigators at Washington University in St. Louis School of Medicine have studied whether weekly saliva-based screening testing of staff and students and mitigation strategies may help keep children with disabilities safe at school.

Blue waves are in the background behind white text that reads,


MI-DDI and FEMA Flood Disaster Speakers Panel

Michigan Developmental Disabilities Institute (MI-DDI) joined the Federal Emergency Management Agency (FEMA) to host a webinar featuring several speakers from FEMA on August 25, 2021. The session focused on resources and aid available to Michiganders affected by the severe storms and floods of June 2021. The webinar and links to resources and information can be accessed on MI-DDI's video resources page.



AUCD's Prepared4ALL Initiative Selected for 2021 Horace G. (Hod) Ogden Award

AUCD's Prepared4ALL initiative has been selected for the 2021 Horace G. (Hod) Ogden Award from the American Public Health Association's Public Health Education and Health Promotion Section. This award is highly competitive and honors outstanding use of humor to promote better health education, health promotion and health communication practice.



CLD Launches COVID-19 Vaccine Confidence Initiative

The Center for Leadership in Disability (CLD) at Georgia State University is launching a new public health initiative: COVID-19 Vaccine Access and Confidence for People with Disabilities. This initiative is focused on building vaccine confidence in the disability community through conversations among people with disabilities, families, and the direct support workforce during the 2021 summer months.



MI-DDI to Promote COVID-19 Vaccine Confidence

Michigan Developmental Disabilities Institute is excited to #VaccinateByADA! Follow us on Facebook (@MIDDIatWSU) and Twitter (@DDIatWSU) to learn more about the COVID-19 vaccines and why they are important for people with disabilities and their caretakers, family, and friends. Help spread the word by reposting and sharing our content to help reduce access barriers and promote vaccine confidence.

Our PN Team, left to right, consists of Fran Goldfarb (Parent Specialist and Director of UCEDD Community Education), Helen Setaghiyan (Project Coordinator), Guadalupe Lorena Eaton (Parent Navigator), Lucia Babb (Parent Navigator), Dr. Christine Mirza


Parent Navigator Team's COVID-19 Response at the USC UCEDD

The Parent Navigator (PN) Project provides three full-time Parent Navigators, who are parents of individuals with developmental disabilities themselves and have extensive experience in system navigation, to assist families with linkage to Early Intervention Services, the CA Regional Centers, and other appropriate community resources.



AUCD's Prepared4ALL Launches Online Training

The Prepared4ALL initiative, offered by AUCD's new Technical Assistance and Training Center, is excited to announce the launch of their online training, "Prepared4ALL: Whole Community Inclusive Emergency Planning". This free self-paced online training aims to help disability organizations increase their knowledge about emergency planning so they can begin or continue to get involved in these efforts in their local community while also building sustainable partnerships with their local emergency and public health professionals. This training is centered around the Prepared4ALL process, a strength-based model which helps organizations creatively and flexibly navigate inclusion and accessibility issues.



Families with IDD Praise State's Vaccination Clinic

The high risk that people with intellectual and developmental disabilities face from COVID-19 is well-documented. During the COVID-19 pandemic, UNMC's Munroe-Meyer Institute (MMI) has been working to address the need for vaccination opportunities for people with IDD, as well as their parents and caregivers.



Westchester Institute for Human Development Leading the Way to Vaccinate People with IDD

A year ago we were trying to figure out what this virus was all about and how/if it would affect our lives. Now, just a year later, the Westchester Institute for Human Development began vaccinating people with Intellectual and Developmental Disabilities against this deadly virus. This was made possible through the tremendous work of WIHD to advocate for and persist in becoming an approved NY State vaccination site, turning our lobby into a state of the art vaccination site, training registrars and vaccinators, and assuring that people with IDD are in a vaccine priority category.

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