HEALTH CARE AND HEALTH DISPARITIES

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11/20/2023

Iowa Creates a New Vaccine Clinic for Patients with Unique Needs

Iowa's Center for Disabilities and Development (CDD) has a new vaccine clinic for children and some adults with unique needs, including sensory issues, anxiety, and other disabilities. Earlier this year, the mother of a child with autism got in touch with CDD, looking for a place to get her child vaccinated against Covid-19. CDD clinical nurse manager Sheree Murphy, RN, took up the challenge, and enlisted the help of UCEDD program coordinator, Anne Crotty, MPH.

 
 

11/15/2023

OHSU UCEDD: A personal and professional experience

In the summer of 2020, Jan Staehely, communication consultant and staff member at the OHSU Institute on Development and Disability UCEDD, and an individual with Cerebral Palsy who uses an assistive communication device, had a frightening experience. Wildfires were approaching the south-eastern towns near Portland, Oregon and her neighborhood was placed in an evacuation zone.

 
 

10/24/2023

AUCD Partners with USAging

AUCD is thrilled to be a partner with USAging for the Aging and Disability Vaccination Collaborative, thanks to vital funding from the Administration for Community Living. AUCD's selected Network Centers and Programs are providing needed flu and COVID-19 shots to people with disabilities and older adults to help keep them healthy.

 
 

10/13/2023

2024 Paul G. Hearne Emerging Leaders Award

Deadline to apply: Wednesday, October 25, 2023 at 5:00pm ET.

AAPD is seeking to recognize two (2) emerging leaders or groups with disabilities who exemplify leadership, advocacy, and dedication to the broader cross-disability community. People can apply as an individual or as a group up to four (4) people being recognized for the award. Awardees will receive $7,500 to further a new or existing initiative that increases opportunities for people with disabilities and $2,500 in recognition of their outstanding contributions to the disability community.

 
 

9/27/2023

2023 Residential Information Systems Project Summative Evaluation

The National Association of State Directors of Developmental Disabilities Services (NASDDDS) is evaluating the Residential Information Systems Project (RISP). Through this evaluation, NASDDDS will assess the extent to which RISP is meeting the needs of state DD agencies, organizations funded by the U.S. Administration for Community Living (ACL), elected officials and interested others. The evaluation is funded by the subcontract with the University of Minnesota from the ACL (Cooperative Agreement #90DNPA0001-05).

 
 

9/21/2023

Host a Fellow from the Professional Fellows Program

Is your UCEDD or LEND eager to drive global change in disability inclusion? Host a Fellow from the prestigious Professional Fellows Program (PFP)! The PFP supports mid-career disability rights professionals from Kenya, Tanzania, Uganda, and Ethiopia to participate in a five-week Fellowship in the US in Spring 2024. As a host, we will match you with a Fellow whose professional interests and goals align with your organization to exchange disability-inclusive civic engagement knowledge and practices.

 
 
REACH Lab Research, Engagement and Advocacy for Community Participation and Health

9/21/2023

Peer Support and Research Engagement for Transition Age Young Adults with IDD Resources

Informed by community members, including young people with intellectual and developmental disabilities (IDD), the REACH Lab and Institute on Disabilities at Temple University developed free and easy-to-access resources about how peer support can help with successful transition and research.

 
 

9/21/2023

Prevalence: Extending ICI's Research

For years, researchers at the MN UCEDD have estimated autism prevalence among Minnesota school children. Now the researchers are also estimating the prevalence of cerebral palsy, spina bifida, and muscular dystrophy.

 
 

9/20/2023

2024 AMCHP Annual Conference - Call for Proposals

The Call for Proposals for the 2024 AMCHP Annual Conference is now open! We highly encourage those working in community organizations and tribal entities, family leaders, students, and early career professionals to share their completed (or in progress) work under any of 10 subject-focused tracks.

 
 

9/20/2023

Nugent Appointed to National Disability Rights Network Board of Directors

Austin Nugent has built bridges between many different parts of the disability community, and she's a Disability Program Administrator at HDI, has been named an At-Large member for the National Disability Rights Network's (NDRN) Board of Directors. That means that she'll help provide oversight to an organization that protects and advocates for people with all sorts of disabilities nationwide, focusing on ensuring that people's rights are protected.

 
 

9/20/2023

OHSU Institute on Development and Disability UCEDD Expands Impact of Sexual Health Education

The UCEDD at OHSU has implemented The Friendships and Dating Program, created by the University of Alaska Anchorage Center for Human Development, in Oregon for the past three years. With its growing success, the FDP has received a grant extension and will continue for another year.

 
 
Dr. Fried-Oken holds up a clear glass award with red and white lettering 'isaac the fellowship award' wearing a black and white top, and a wide open smile that reaches her eyes behind red rimmed glasses that match the red accent.

8/11/2023

Oregon Health & Science University UCEDD co-Director Receives Honor

Dr. Melanie Fried-Oken was named a fellow of the International Society for Augmentative and Alternative Communication (ISAAC) at their biennial conference this July 2023 in Cancun, Mexico. For the past 45 years, she has been developing and evaluating tools, strategies, technologies and intervention protocols with adults, children and their families who experience complex communication needs.

 
 

8/8/2023

AUCD Vaccine Outreach Messaging Toolkit

AUCD has created a vaccine outreach messaging toolkit. Users can find social media posts with easy-to-download graphics on AUCD's website. The toolkit contains caption copy, Instagram stories, and alt-text tips for each post. Check out the National Immunization Awareness Month posts to celebrate this August-contact Allison Haeger at [email protected] with any questions about accessing and using these resources.

 
 

8/2/2023

Project ENGAGE - Survey is Out: Looking for Participants!

Research participants wanted! Share your ideas about being included in a new type of health research! Project ENGAGE at the Syracuse University and Columbia University want to learn what adults with intellectual disability think about being included in a new type of health research. Project ENGAGE will use what they learn to create new resources to help researchers include adults with intellectual disability in health research.

 
 

7/25/2023

Center for Disability Resources Executive Director at White House Meeting

UCEDD director Dr. David Rotholz participated in an invitation only meeting at the White House in May 2023. This event was to discuss innovative ways federal funding can be used to improve the lives of South Carolinians, including those with disabilities. Organized by the Office of Public Engagement the half-day event connected 50 elected officials, community and organization leaders, veterans and clergy from across the state to help build a better South Carolina. Our UCEDD was one of the two disability focused organizations included in this event.

 
 
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