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New IDDRC Reporter

The Role of IDDRC Network in Recent Developments in the Treatment of Urea Cycle Defects

AUCD publishes annually a newsletter called the IDDRC Reporter summarizing the role of the IDDRC network in research developments. This year The IDDRC Reporter focuses on the recent developments in the treatment of Urea Cycle Defects.

Emma Smizik and Nicholas McNeill


Nicholas McNeill, MA LEND, Awarded Meyers Memorial Prize

Nicholas McNeill, MA LEND, is currently a fellow in the LEND program at Children's Hospital Boston.

Beth Dixon


Beth Dixon (NH UCEDD) Receives UNH Staff Excellence Award

University of New Hampshire, Institute on Disability staff member, Beth Dixon, was honored with the Presidential Award of Excellence, an award given annually to five staff members who have demonstrated excellence through outstanding performance in their positions and a record of dedication to, and a concern for, the University community.



Marsha Mailick Seltzer, PhD, Waisman Center Director, Honored with Hilldale Award

The Hilldale Award is the University of Wisconsin's most prestigious honor for faculty members. Since 1997 these awards have honored professors who excel in teaching, research, and service. Honors are given in four divisions: biological sciences, physical sciences, social studies, and arts and humanities.



New IDDRC Fragile X Syndrome Registry

Research Centers Join Forces to Study Fragile X Syndrome & Connect Networks

A new collaborative research registry designed to expand research on fragile X syndrome and its associated disorders has just been developed by the Waisman Center at the University of Wisconsin-Madison and the Carolina Institute on Developmental Disabilities at the University of North Carolina-Chapel Hill. Each of these Intellectual and Developmental Disabilities Research Centers (IDDRCs) already has a research registry that has been a critical part of the success of their studies on the causes, course, consequences, and treatments of fragile X syndrome. By merging their existing registries and expanding enrollment to reach families across the U.S., a unique and valuable research resource will be created.



Jenny Saffran, PhD Honored With Chancellor's Award (Waisman Center)

Colleagues describe Saffran as an exceptional and innovative teacher, an outstanding scholar, and a wise, caring, and highly effective mentor.



Researchers Identify Gene Variant Associated with Autism and Gastrointestinal Dysfunction

Study may increase understanding of genetic risks for autism



Three IDDRC Directors and Family Member Present at Congressional Briefing Celebrating 45 Years of NICHD Research



UNC School of Medicine establishes Carolina Institute for Developmental Disabilities



Schiefelbusch Life Span Institute (KS UCEDD/LEND/IDDRC) Awarded $1.6 Million Grant to Establish Model Center on Language and Early Literacy Development



First National Autism Registry Shows Notable Impact on Autism Research in Opening Year (Kennedy Krieger Institute: MD UCEDD/LEND/IDDRC)



IDDRCA Wrtittent Testimony Labor-HHS-ED Appropriations 09

Writtten testimony submitted to the House Labor-HHS-ED Appropriations Subcommittee by Marsha Mailick Seltzer on behalf of the Intellectual and Developmental Disabilities Research Centers Association (IDDRCA)



Leonard Abbeduto, PhD, (Waisman Center: WI UCEDD/LEND/IDDRC) Honored with Named Professorship and Research Award



Summer Internships at NICHD



HHS Secretary Leavitt Announces Members of the New Interagency Autism Coordinating Committee

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