RESEARCH

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10/4/2021

MMI Contributes to Study on Whole Genome Sequencing

For nearly three years, Kristen Fishler, a genetic counselor at the Munroe-Meyer Institute Department of Genetics, and her colleagues at UNMC and MMI, have been working with sites across the country to document the impact of whole-genome sequencing (WGS) as a diagnostic tool for acutely ill infants with a suspected genetic disease.

 
 

9/16/2021

Research Survey Opportunity (with a $10 gift card) for Parents and Guardians of Youth with Disabilities

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute (Maryland's UCEDD) and the University of Missouri Kansas City's Institute for Human Development (Missouri's UCEDD) are seeking parents and legal guardians of school-age children with intellectual or developmental disabilities to participate in an online survey to help us understand their concerns about their child's return to school in-person during COVID-19.

 
 

9/3/2021

Truth and Reconcilation Activity from START/UNH

Are you a young adult with a developmental disability and mental health condition (IDD- MH)? Are you a family member of a young adult with IDD-MH? Would you like to learn more about how people with IDD-MH, their families, and researchers learn can do research together? Researchers at START/UNH, the University of Florida, and Georgetown University are inviting you to attend a "Truth and Reconciliation" activity. Reconciliation means to make things better.

 
 

9/1/2021

New Hawk-IDDRC in Iowa

The University of Iowa Stead Family Children's Hospital Center for Disabilities and Development (CDD) and the Iowa Neuroscience Institute (INI) are joining forces with other researchers, clinicians, physicians, and scientists across the UI enterprise to form a new center aimed at advancing care for Iowans with IDDs. The center will be funded over 5 years by a $6.2 million dollar grant from the National Institutes of Health. The new center, dubbed Hawkeye Intellectual and Developmental Disabilities Research Center, or Hawk-IDDRC, will partner with CDD to integrate clinical care, teaching, and community outreach using a unique model found at only a handful of other health care institutions in the country.

 
 
A headshot photo of Beth Malow, a middle-aged white woman with chin-length brown hair, a pink sweater, and a black beaded necklace. Another headshot photo of Jeff Neul, a middle-aged white man with red hair, including a mustache and beard, wearing a

8/30/2021

Vanderbilt Kennedy Center Efforts Enhance Inclusivity in Clinical Trials

Following the Vanderbilt Kennedy Center�s (VKC) (TN IDDRC, UCEDD, LEND) renewal as a national Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center in 2020, the center underwent a shuffling of their four scientific cores that support basic and applied research on intellectual and developmental disabilities (IDD).

 
 

8/12/2021

AIR-P Scholars & Pilot and Feasibility Funding Program

Call for Applications and Proposals

The Autism Intervention Network on Physical Health (AIR-P) seeks applications for the AIR-P Scholars & Pilot and Feasibility funding program during January-December 2022 project year. Proposals must address a topic or topics related to autism and physical health with a focus on enhancing the health and well-being of autistic people. Preference will be given to projects with an emphasis on underserved groups.

 
 

4/13/2021

Call for Submissions: AIR-P Research Day at Autism CARES

Deadline: May 17, 2021, 4:00pm PST

AIR-P is pleased to launch this call for proposals. This call includes submissions for virtual rapid fire presentation sessions on autism and physical health. Submissions of work in progress is encouraged, as the Research Day will provide opportunity for structured questions and feedback from peers and experts. 

 
 
Sheryl Larson, principal investigator for RISP

3/11/2021

Vital Statistics: ICI Supplies Key Housing Data

The Centers for Disease Control and Prevention cites data monitored by the Institute on Community Integration (MN UCEDD) in its Healthy People 2030 objectives. The CDC has set a target for reducing the percentage of people with intellectual and developmental disabilities (IDD) living in congregate settings serving seven or more people with disabilities to 11.5 percent in 2030, down from the current baseline of 22.7 percent.

 
 

3/2/2021

Care Coordination Implementation and Best Practice: A Comparison of National and Nebraska Standards

Emily Costello, Munroe-Meyer Institute on Genetics and Rehabilitation

Emily Costello, a UCEDD Trainee from the Munroe-Meyer Institute in Omaha, NE outlines elements of best practice for care coordination, based on a review of recent literature, and compares national standards to that of Nebraska.

 
 

2/22/2021

2021 Disability Policy Seminar

April 19-22, 2021 - A Virtual Event

The Disability Policy Seminar offers the opportunity for passionate advocates, self-advocates, experts, and professionals in the field to come together and learn about key issues that affect them most. After two days of training and learning, attendees head to Capitol Hill for a day of meetings with their Members of Congress.

 
 

1/19/2021

From MN LEND to the National Institute of Mental Health

Institute on Community Integration (MN UCEDD/LEND)

A fascination with the brain and how it influences behavior began with a high school psychology class for Sunday Francis (MN-LEND 2014-16). It has brought her through the fields of neuroscience, engineering, genetics, and autism research at several prestigious universities.

 
 

1/11/2021

Vanderbilt Kennedy Center Researcher Documents How COVID-19 Multiplies Stress and Trauma for People with a Disabilities

In a article published in Rehabilitation Psychology, Anjali J. Forber-Pratt, Ph.D., assistant professor of Human and Organizational Development and a Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) member, reviews research on disabilities and COVID-19 to help rehabilitation psychologists mitigate the effects of the added stress of the pandemic. In addition, the work addressed how systemic discrimination against people with disabilities intersects with other forms of inequity.

 
 

12/20/2020

Advances in Autism Research and Care Webinar Series: 2020 Schedule

Please join the Autism Speaks Autism Treatment Network/Autism Intervention Research Network on Physical Health for our upcoming Advances in Autism Research and Care (AARC) webinar series scheduled for 2020!

 
 

11/30/2020

The Wyoming Institute for Disabilities Receive University Funding Award to Further Statewide Telehealth Infrastructure

The Wyoming Institute for Disabilities, on behalf of the College of Health Sciences, has been awarded the 2020 University of Wyoming Foundation's Heywood Fund Award. The funded project will enhance research, teaching, scholarship, and community engagement related to telehealth services delivery in the College of Health Sciences. The project will equip graduate and undergraduate students with the necessary knowledge and skills to implement telehealth services in their future practices. In addition, the college will deliver ongoing professional development to community-based providers for relevant and complex healthcare conditions.

 
 

9/28/2020

America at a glance: Social isolation and loneliness during the first wave of COVID-19 Organization: RTC:Rural

America at a glance: Social isolation and loneliness Before the current pandemic, people with disabilities reported significantly higher rates of social isolation and loneliness than those without disabilities. When restrictions are put in place to help protect people from COVID-19, what happens to these rates? RTC:Rural's newest research brief explores how COVID-19 and public health responses may contribute to feelings of social isolation and loneliness among people with disabilities.

 
 
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