RESEARCH
9/21/2023
Peer Support and Research Engagement for Transition Age Young Adults with IDD Resources
Informed by community members, including young people with intellectual and developmental disabilities (IDD), the REACH Lab and Institute on Disabilities at Temple University developed free and easy-to-access resources about how peer support can help with successful transition and research.
9/21/2023
Prevalence: Extending ICI's Research
For years, researchers at the MN UCEDD have estimated autism prevalence among Minnesota school children. Now the researchers are also estimating the prevalence of cerebral palsy, spina bifida, and muscular dystrophy.
8/24/2023
Publishing Opportunity with AIR-P Cureus Channel
The AIR-P would like to share the Autism and Health: Across the Lifespan channel, where our authors can publish articles without cost and at a faster rate than is typically available through the traditional scholarly publication process.
8/16/2023
Research Opportunity-University of Pittsburgh
The REAACT Program, is currently recruiting for our new EDI-Self-Report (EDI-SR) study. The purpose of this new research study is to create a questionnaire known as the EDI-Self-Report (EDI-SR). This project is funded by the Eunice Shriver National Institute of Child Health & Human Development (NICHD). The EDI-SR was designed in partnership with autistic individuals to measure emotional experiences in autistic teens and adults and teens and adults with other intellectual and developmental disabilities (IDD).
8/11/2023
Oregon Health & Science University UCEDD co-Director Receives Honor
Dr. Melanie Fried-Oken was named a fellow of the International Society for Augmentative and Alternative Communication (ISAAC) at their biennial conference this July 2023 in Cancun, Mexico. For the past 45 years, she has been developing and evaluating tools, strategies, technologies and intervention protocols with adults, children and their families who experience complex communication needs.
7/20/2023
"Let's Try a Different Way"
Agnes Cole is a recent MN LEND graduate who works at a service provider, runs her own non-profit organization, and who spent much of her fellowship working on a longitudinal study that tracks the living arrangements of people with intellectual and developmental disabilities who receive services.
7/19/2023
New Podcast from the Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab
The Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab launched INside the OUTcomes: A Rehabilitation Research Podcast in March. Episodes feature research on employment and people with disabilities, home and community-based services and research highlights from the Center. Listen on Spotify or Apple Podcasts.
5/25/2023
AIR-P Launches New Academic Channel in Cureus
The Autism and Health: Across the Lifespan Channel (Autism and Health Channel) was founded in 2023 to promote research to increase the life expectancy and quality of life of autistic individuals. With broad support from national collaborative research entities, the goal of this academic channel is to serve as a forum to disseminate scientific articles which contribute to the evidence base of health promotion for autistic individuals and their families across the lifespan.
5/25/2023
Perspectives on the Implementation of Pre-ETS Services: Identification of barriers and facilitators to early career planning for youth with disabilities
There are differences between and within states in the delivery of Pre-Employment Transition Services (Pre-ETS) for students with significant disabilities early in their career planning process. This complicates the delivery of services for these youth with disabilities (YWD) and leaves gaps in communication between families, educators, and vocational rehabilitation (VR) counselors.
5/18/2023
Patient Driven Innovation with Dr. Christina Gurnett, Neurologist and Director of Washington University IDD Research Center
Dr. Christina Gurnett who is the co-director of The Intellectual and Developmental Disabilities Research Center at Washington University speaks to The Accessible Podcast about her community-based approach to cutting edge scientific research which puts individuals and families at the center.
5/16/2023
UW CHDD Promoted to UW IHDD with Sandra Juul as New Director
The University of Washington (UW) Center on Human Development and Disability (CHDD) has been renamed the UW Institute on Human Development and Disability (IHDD), with Dr. Sandra Juul appointed as the new Director. The IHDD is a research, service, and training center that aims to improve the lives of individuals with disabilities and their families through various programs and services, including diagnostic, assessment, and treatment services.
5/15/2023
Autism and the Dysregulated Arousal System
By Rebecca Grzadzinski, Kattia Mata, and Jose Rodriguez-Romaguera, The Carolina Institute for Developmental Disabilities - UNC IDDRC
How do babies learn to be social? Babies are born into the world with so much to learn, from basic body movements to complex communication and interaction skills. Philosopher John Locke believed that babies are born into the world as "blank slates" (tabula rasas)-everything to learn will be gained from their environment and experience1. Indeed, environment and experience are critical for learning-studies on enriched environments highlight this. However, research continues to highlight the influence of inherent characteristics, underlying neurobiology and genetics on how and what we learn or know. Researchers aim to understand what and how we learn by studying the dynamic interplay between inherent biological traits, physiological states, and the environment.
5/3/2023
EDI-Self-Report (EDI-SR) Survey
The purpose of this new research study is to create a questionnaire known as the EDI-Self-Report (EDI-SR). This project is funded by the Eunice Shriver National Institute of Child Health & Human Development (NICHD). The EDI-SR was designed to measure emotional experiences in autistic teens and adults and teens and adults with other intellectual and developmental disabilities (IDD). This study is enrolling individuals ages 11 and older who are autistic or have an intellectual or developmental disability (IDD) and their parents/caregivers, as well as individuals without these diagnoses. Individuals must be current United States residents to participate.
4/24/2023
Harnessing Uniqueness: MNLEND Fellow Leverages Neuroscience Advances to Explore Brain-Behavior Links
A MN LEND fellow searches neuroimaging databases for patterns that could lead to more personalized and effective strategies for regulating emotions, or developing social cognition, among other skills.
4/12/2023
Special Education Research & Bots Survey
Are you a researcher who studies services and/or supports for children/youth with disabilities? Have you conducted at least one online research survey anytime between January 2010 and today? Researchers from Coastal University and Vanderbilt University are recruiting participants for a research study to learn about your experiences conducting online surveys in special education and related fields, including any experiences you may or may not have had with online bots.