POLICY AND ADVOCACY

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3/16/2023

NH-ME LEND Spring Kick-Off: Engaging in Advocacy and the Policy Process

In January, NH-ME LEND convened trainees, faculty, and five panelists for a Leadership Intensive: Organizing to Influence Your State's Policy. Panelists represented perspectives on advocacy at the state, local, and personal levels. The Leadership Intensive was the first step in preparing the 2023 LEND cohort for the spring Disability Policy Seminar (DPS) and subsequent meetings with congressional delegations.

 
 
Pictured: Dr. Mirian Ofonedu, Martina Penalosa, Melanie Ong

3/15/2023

Developmental Disabilities Day at the Legislature Reflection

by Melanie Ong and Martina Penalosa, MCDD Trainees

Every year, the Maryland Developmental Disabilities (MDD) Coalition sponsors DD Day. On this day, participants come together to educate legislators about issues that are important to people with intellectual and developmental disabilities (IDD) and their families.

 
 
A woman stands behind a man in a motorized wheelchair and smile as they pose with copies of Kindred Stories to hand out to legislators during Tennessee's Disability Day on the Hill.

3/13/2023

Educating Legislators and Policymakers Through Storytelling and Legislative Visits

Each year, the Vanderbilt Kennedy Center's (TN IDDRC, UCEDD, LEND) University Center for Excellence in Developmental Disabilities, in collaboration with The Arc Tennessee and AbleVoices, produces a collection of stories and images that highlight the challenges individuals with disabilities and their families face as they navigate service systems and supports in the state of Tennessee. Kindred Stories of Disability highlights a different topic in each issue and is shared with Tennessee legislators and policymakers to educate them with first-hand accounts from constituents in their districts.

 
 

6/27/2022

Statement of the Association of University Centers on Disabilities on Reproductive Health

In response to the U.S. Supreme Court's decision today in Dobbs v. Jackson Women's Health Organization, the Association of University Centers on Disabilities (AUCD) issues the following statement. First and foremost, AUCD recognizes the significance and complexity of the impact of the decision on all people, including those with disabilities. For many, this is deeply personal. AUCD fully supports and advocates for people with disabilities to have the right and freedom to make their own decisions about healthcare.

 
 

6/27/2022

Statement on Gun Violence and Mass Shootings to Ensure the Safety of People with Disabilities

AUCD is concerned about the increased incidence of mass shootings and gun violence in the past few years, and we are grateful for the bipartisan efforts to address it. We recognize this issue is a complex balancing act of personal freedom and collective safety in the United States. However, we must also acknowledge that among developed economies, the United States has the highest level of gun violence, gun shots are the leading cause of death for children, and many of these deaths occur at home or in other homes and not in schools or mass shootings.

 
 

6/16/2022

NH Leadership Series Graduate Receives SAR-TAC Fellowship

Nathaniel Livernois '22, has received a prestigious fellowship from the Self Advocates Becoming Empowered and ACL's Administration on Disabilities. The fellowship provides full funding for six self-advocates to carry out independently designed self-advocacy leadership and policy-related projects with host organizations.

 
 

4/1/2022

Self-Advocates from WIHD interviewed by Fox5NY

Hear Our Voices at The Westchester Institute for Human Development (WIHD) has developed a Speaker�s Network of self-advocates who present at local, state, and national conferences. The Speaker's Network offers individualized coaching to young adults with disabilities that want to share their story. The program empowers self-advocates to use their lived experiences to increase disability awareness. After completing the program, participants have a custom professional presentation that reflects their passion on a relevant topic. They have presented at the New York Medical College, the Touro College of Dentistry, Sarah Lawrence College and various statewide and national conferences.

 
 

3/10/2022

NH-ME LEND Spring Kickoff Event Helps Prepare Trainees for Disability Policy Seminar

In late January, the NH-ME LEND Program hosted a two-state panel discussion and a keynote speaker as part of their virtual Spring Semester Kick Off Event, Organizing to Influence Your State's Policy. The session was designed to help prepare NH and ME trainees to participate in the annual Disability Policy Seminar in Washington, DC on March 28-30, 2022.

 
 
A close up of three folded white tshirts layered vertically on top of each other. The top one reads Vacunada Vaccinated. The middle one reads Vacunado Vaccinated. The bottom one reads Vacunadx Vaccinated.

1/31/2022

Vacunda? Vacundo? Vacundx?

AUCD Efforts with the National COVID-19 Resiliency Network (NCRN)

AUCD participated in NCRN's Regional Community Coalition to increase COVID-19 vaccination efforts. Read a story from one of our AUCD Network members, who engaged in this coalition.

 
 

12/13/2021

Growing Self-Advocacy in the Heartland

The second SOAR Conference sponsored by four Midwestern UCEDDs was held virtually this fall, with Iowa's UCEDD taking the lead for 2021.

 
 

12/13/2021

Iowa's Legacy of Policymaking Inspires LEND Trainees

LEND trainees, faculty and staff recently visited the Harkin Institute in Des Moines, Iowa. The visit, which served as part of the program's policy curriculum, will become an annual event.

 
 

10/13/2021

AUCD 2021 Hill Day Virtual Meeting Request

We have provided a sample script that you may individualize to set-up a meeting with members offices for the #AUCD2021 Virtual Hill Day. Note: you will need to fill in the editable fields and delete the highlighted text before sending.

 
 

10/13/2021

Creating a Map to Navigate Missouri's Abuse and Neglect Investigations System

UMKC Institute for Human Development has partnered with the Missouri Developmental Disabilities Council to develop the Missouri Adult Abuse & Neglect Investigations System interactive Map. The map has multiples uses, including Missouri reporting agencies to improve the abuse reporting system, and for training and educational purposes.

 
 

10/13/2021

Getting and Keeping Iowa ON-TRAC for Health

Iowa's UCEDD recently received an award from ACL to implement a plan for community-based transition to adult health care for individuals with intellectual and developmental disabilities.

 
 

6/2/2021

Innovation in Self-Advocacy and Family Networks Award Winner

Tracey Manz, the lead parent facilitator and program coordinator of Aspirations at the Nisonger Center, was awarded the Innovation in Self-Advocacy and Family Networks Award by the National Charting the LifeCourse Nexus.

 
 
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