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OHSU & UW Study Genetic Contributions to Autism

Researchers at Oregon Health & Science University (OHSU) and the University of Washington (UW) are conducting a study on genetic contributions to autism, involving identical twins. The study is funded by the Simons Foundation Autism Research Initiative (SFARI) and seeks to better understand how genetic changes that occur early in development might lead to autism. In particular, the researchers are seeking pairs of identical twins who are discordant for autism (that is, one has any autism spectrum diagnosis and one does not) to help answer this important question.



AUCD Leadership Academy

Application Deadline: March 2

The Association of University Centers on Disabilities (AUCD) in partnership with the Center for Leadership in Disability at Georgia State University (GSU) is pleased to announce that it is accepting applications for the inaugural AUCD LEADERSHIP ACADEMY. The academy will be held on the downtown GSU campus in Atlanta, Georgia on June 25-30, 2017.



Now Archived UCEDD Grants Management Series: Needs Assessment for UCEDD Core Grant

The UCEDD core grant application must be based on data-driven strategic planning, per 45 CFR 1388.5(c)(2). State- or Territory-wide needs assessments typically inform this strategic planning process and are discussed in the "Problem Statement" section of the UCEDD core grant application. This webinar will present results of a network-wide survey of how needs assessments are implemented, the Florida Center for Inclusive Communities' experience in conducting their needs assessment, and will provide significant opportunity for discussion. See relevant materials on the event page.



2015 UCEDD Leadership Institute - Deadline Extended!

June 14-19, 2015 in Newark, DE at the University of Delaware

After another successful year, the UCEDD Leadership Institute will be back in 2015! Please consider recommending your staff for the 2015 class of future UCEDD leaders representing the full diversity of the country.



Two New UCEDD "Promising Practice Briefs" Focus on Diversity

Promising Practice Briefs highlight projects of excellence and offer a model from which UCEDDs can glean inspiration for new activities to augment their work. A promising UCEDD practice may be a research or evaluation project, policy analysis, data assessment, outreach initiative, or awareness effort. It may provide a direct service or a supported opportunity to people with a developmental disability, indirect support to family and community caregivers, or interdisciplinary training for students, fellows, professionals, and policymakers. It may involve leadership development, community work, or clinical practice.



The Postschool Outcomes of Students With Mild Intellectual Disability: Does it get Better With Time?

An article by researchers affiliated with Vanderbilt University examines an online survey of parents of individuals with IDD on their definition of a successful transition to adulthood. Rather than focusing only on developmental tasks of adulthood, responses reflected a more varied and dynamic view of success in adulthood. (full text access available at no cost with member subscription to IDD)



Changes to OMB Circulars Addressing Administrative Rules and Cost Principles

In December 2013, OMB published final regulations that reform Federal grant-making with the intention of decreasing administrative burden for grantees and reducing waste, fraud and abuse. These new regulations combine the multiple Federal regulations that currently govern the way grants are administered into a single uniform policy guide; this changes the OMB Circulars as you know them. The cross-agency Council on Financial Assistance Reform (COFAR) worked closely with OMB on developing these rules, and will work with stakeholders to facilitate implementation.



Going Global: ICI (MN UCEDD) in Oman, Costa Rica, and Siberia

The Institute on Community Integration (ICI) has long shared its expertise internationally. In recent months, Institute staff have connected with new international partners in Oman, Costa Rica, and Siberia to do innovative work focusing on young people with and without disabilities.



AIDD-AUCD Disability Leadership Fellowship

Deadline: April 30, 2013

The AIDD-UCEDD Fellowship program seeks to recruit outstanding individuals in the UCEDD community for an intensive year-long experience in Washington, DC, at the offices of AIDD. Application deadline extended.



Strategies to Incorporate the Voices of People with Significant Disabilities in UCEDD Information Gathering and Operations

New Report by Rachel Patterson, MPA

This report provides tools and strategies on how to better attune to the viewpoints of people with most significant disabilities. The focus of the report is on the inclusion of people who have traditionally faced high barriers to participation, particularly given intellectual, communication, or behavioral challenges. Strategies for inclusion that focus on flexibility and finding new opportunities to listen, as well as the use of proxy respondents, are included.



2013 UCEDD Leadership Development Institute

Application Deadline 02-28; Consider Talented Individuals Today!

After a very successful first year, the UCEDD Leadership Institute is back in 2013 to help prepare the next generation of UCEDD leaders for the important task ahead. Please consider your staff for the 2013 class of future UCEDD leaders.



Materials from the NIRS Data Coordinators Meeting are now available!

This session was a great opportunity for Data Coordinators to meet and discuss topics of interest related to NIRS.

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