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Long COVID Is a Mass Disabling Condition-Treat It Like One

Long Covid is a mass disabling condition, writes Dr. Bonuck. Dr. Bonuck is professor of family and social medicine, of obstetrics & gynecology and women's health, and of pediatrics at Einstein and co-director of the Rose F. Kennedy University Center of Excellence in Developmental Disabilities at Einstein-Montefiore.



Reveling in the Work of Our Rose F. Kennedy Center Programs and Research

Friday, April 21, 2023, the inaugural Rose F. Kennedy Center Day offered an occasion for reflection, celebration, and hope. The day included a brief history of the Center, talks from accredited speakers and creative thinking workshops.



Transitioning to Adulthood: Employment Supports for Patients with Disabilities

The Colorado Office of Employment First (COEF) and JFK Partners, the University Center of Excellence in Developmental Disabilities at the University of Colorado, is proud to highlight the development and delivery of a training for healthcare providers. This curriculum provides a basic understanding of the importance of employment for youth and adults with Intellectual and Developmental Disabilities (IDD), the importance of employment conversations in the healthcare setting, and the evidence based and other employment practices that fully support the employment goals of all people with IDD, regardless of severity of disability.



AIR-P Launches New Academic Channel in Cureus

The Autism and Health: Across the Lifespan Channel (Autism and Health Channel) was founded in 2023 to promote research to increase the life expectancy and quality of life of autistic individuals. With broad support from national collaborative research entities, the goal of this academic channel is to serve as a forum to disseminate scientific articles which contribute to the evidence base of health promotion for autistic individuals and their families across the lifespan.



2023 PATHS Partner Brunch

The Postsecondary Access and Training in Human Services (PATHS) program at Texas A&M University held their annual Partner Brunch on Saturday April 15, 2023. Our theme this year: "BEE Courageous" to Change Lives. This event is held every year to recognize both the partners and the students who have worked in the community this past year.

Ann Switzer (center) helps record artists' sets at Kenwick Table's open mic night. Photo by Lindsay Travis.


Blazing a trail: Ann Switzer 1st to complete UK's College and Career Studies Program

On Monday nights you'll find local artists eagerly waiting for their turn to play a few songs as part of an open mic night. They're greeted near the stage by a familiar face, sharing her love of music with the community built up at Kenwick Table. It's a role she discovered while in the University of Kentucky's College and Career Studies (CCS) Program which is coordinated by the UK Human Development Institute (HDI). Switzer piloted the program and is now the first to complete it. She will also receive an undergraduate certificate in universal design from UK and will be recognized for her accomplishments at an academic showcase with other UK students on May 4.



Patient Driven Innovation with Dr. Christina Gurnett, Neurologist and Director of Washington University IDD Research Center

Dr. Christina Gurnett who is the co-director of The Intellectual and Developmental Disabilities Research Center at Washington University speaks to The Accessible Podcast about her community-based approach to cutting edge scientific research which puts individuals and families at the center.



UM-NSU CARD Constituency Board Members Visit State Capitol

Five Constituency Board Members from University of Miami - Nova Southeastern University Center for Autism and Related Disabilities visited the state capitol of Tallahassee to both thank representatives who have supported UM-NSU CARD and educate policymakers on the importance of resources for the autism community to be included in the state budget.



Abigail Peskin Recipient of The Children's Trust Champions 2023 Excellence in Direct Services Award

Abigail (Abby) Peskin is a clinical child psychologist at the Mailman Center for Child Development. She has won this year's Children's Trust Champions for Children Excellence in Direct Service Award.



Dawn Rudolph to Join the Wyoming Institute for Disabilities

The Wyoming Institute for Disabilities is pleased to announce that Dawn Rudolph, MSEd, has accepted the position of Senior Program Manager to lead initiatives in home and community-based services.



The Center Welcomes Kelly Kurtz Majewski as the New iGROW Program Director

We would like to welcome Kelly Majewski M.Ed. to the Center on Disability and Development at Texas A&M University Team! Kelly Kurtz Majewski has accepted the position of iGROW Program Director and will be leading the rural transition work in Central Texas as well as future replication sites across Texas. The iGROW impact report for year one is included in this post.

 A toddler-aged white boy with Down syndrome looks to the camera. He has straight brown hair, green eyes, and a red T-shirt.


Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Member Works to Improve Sleep Assessment in Down Syndrome Research

Vanderbilt Kennedy Center (VKC) member Sarika Peters, Ph.D., received a VKC Director's Strategic Priorities Grant to determine the feasibility of use of a wearable sensor to assess sleep in children (ages 4-10 years) with Down syndrome. Down syndrome is estimated to occur in 1 out of 700 babies and is associated with many co-occurring conditions including obstructive sleep apnea (OSA). OSA impacts between 50-79 percent of individuals with Down syndrome and the American Academy of Pediatrics recommends screening for OSA in children with Down syndrome starting at age 4.



Aggie ACHIEVE Ring Day

On Friday, April 14 the seven juniors and four seniors from the Aggie ACHIEVE program received the first-ever Aggie ACHIEVE Rings in a ceremony at the Rec center at Texas A&M. The ACHIEVE Ring represents the students' dedication to excellence in their 4 year certificate program of Interdisciplinary Studies. We are so proud of each student's accomplishments!



UW CHDD Promoted to UW IHDD with Sandra Juul as New Director

The University of Washington (UW) Center on Human Development and Disability (CHDD) has been renamed the UW Institute on Human Development and Disability (IHDD), with Dr. Sandra Juul appointed as the new Director. The IHDD is a research, service, and training center that aims to improve the lives of individuals with disabilities and their families through various programs and services, including diagnostic, assessment, and treatment services.



Autism and the Dysregulated Arousal System

By Rebecca Grzadzinski, Kattia Mata, and Jose Rodriguez-Romaguera, The Carolina Institute for Developmental Disabilities - UNC IDDRC

How do babies learn to be social? Babies are born into the world with so much to learn, from basic body movements to complex communication and interaction skills. Philosopher John Locke believed that babies are born into the world as "blank slates" (tabula rasas)-everything to learn will be gained from their environment and experience1. Indeed, environment and experience are critical for learning-studies on enriched environments highlight this. However, research continues to highlight the influence of inherent characteristics, underlying neurobiology and genetics on how and what we learn or know. Researchers aim to understand what and how we learn by studying the dynamic interplay between inherent biological traits, physiological states, and the environment.

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