SCREENING, ASSESSMENT AND DIAGNOSIS

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12/18/2019

AIR-P Network Activities - January 2020

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on reaching underserved communities.

 
 
James Booth, Vanderbilt Peabody College, principal investigator

10/21/2019

$3.2M Grant to Fund Study of Reading Skills in Children who are Deaf or Hard of Hearing at Vanderbilt (TN IDDRC/UCEDD/LEND)

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Investigator James R. Booth, Ph.D., has been awarded a $3.2 million grant by the National Institutes of Health to better understand how children who are deaf or hard of hearing (DHH) excel at reading.

 
 
(L-R) Maura Rouse, PsyD, HSPP and Brett Enneking, PsyD, HSPP

10/21/2019

Indiana LEND Faculty Receive Grant to Increase Access

Previous LEND trainees and current Indiana LEND faculty, Maura Rouse, PsyD, HSPP and Brett Enneking, PsyD, HSPP, were recently awarded grant funding for their project to bring the telehealth model of care into the Indiana University/Riley Hospital for Children LEND clinic. Their project builds on previous care coordination research demonstrating that families need continued education and support related to diagnosis (e.g. autism spectrum disorder, intellectual disability) and treatment following their child's initial evaluation. As Riley Hospital for Children at Indiana University is one of the premier care centers for children with neurodevelopmental disabilities in the state of Indiana, approximately 68% of the families travel more than an hour to receive this high quality care for their child.

 
 

10/15/2019

Mailman Center Implements Early Start Denver Model (FL UCEDD/LEND)

Therapists at the University of Miami Mailman Center for Child Development (MCCD) have embarked on an ambitious project to bring Early Start Denver Model (ESDM) services in English and Spanish to Miami. ESDM is an evidence-based intervention specifically developed for very young children with autism that fuses behavioral and developmental principles for an integrated approach. ESDM can be implemented in a clinic as well as different natural settings such as the home or the daycare/preschool by trained therapists and by parents within play and daily routines.

 
 

9/19/2019

AUCD Applauds Congress' Passage of Autism CARES Act

AUCD applauds Congress' passage of the Autism Cares Act of 2019, a bipartisan bill to expand research and coordination, increase public awareness and surveillance, and expand interdisciplinary health professional training to identify and support individuals with autism and their families. Passage of the bill, which occurred by voice vote, has been championed by Senators Enzi (R-WY) and Menendez (R-NJ) and Representatives Smith (R-NJ) and Doyle (D-PA), which reauthorizes CARES programs at NIH, CDC, HRSA, and IACC over the next five years.

 
 

8/19/2019

Promising Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) Study on Treating Core Symptoms in Rett Syndrome Supports Further Trials

Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) Director Jeffrey Neul, M.D., Ph.D., and colleagues studied the safety and effectiveness of the drug trofinetide in female children and adolescents (age 5-15) with Rett syndrome (RTT). Findings were recently published in the journal Neurology and show promise for improving core features associated with the rare disease, supporting further trials.

 
 

8/12/2019

Kansas LEND CARE-A-Van

Kansas LEND faculty "hit the road" bringing services and training to rural parts of Kansas. As part of our mission to improve access to care and build capacity, LEND faculty drove a CARE-A-Van nearly 800 miles from Kansas City to Garden City and Hays, Kansas. While there, the team worked closely with local school districts and providers to conduct autism and developmental evaluations.

 
 

8/12/2019

Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) Welcomes 2019 ACM Lifting Lives Music Camp Campers

ACM Lifting Lives and the Vanderbilt Kennedy Center (IDDRC, UCEDD, LEND) partnered again to bring a week of country music and research to campers with Williams syndrome. 2019 marks the 10th year of the ACM Lifting Lives Music Camp and the 15th anniversary of the VKC's involvement. This creative and celebrity-filled week of discovery continues to put individuals with Williams syndrome in the spotlight, both on the stage of the Grand Ole Opry and in the research labs at the VKC.

 
 
 Delaware stakeholders and experts from the University of Missouri Thompson Center for Autism and Neurodevelopmental Disorders met in Lewes June 24-25 to discuss best-practice guidelines for autism evaluation and diagnosis.

7/8/2019

New Initiative to Improve Autism Diagnosis and Evaluation Commences for Professionals (DE UCEDD)

Experts and other stakeholders in the Delaware autism community are taking action to improve diagnostic practices for autism, which has risen in prevalence by 80 percent in Delaware over the last decade. Delaware-specific guidelines will be created to ensure that diagnostic evaluations are informed by research and incorporate local resources and services. The process began with two days of training and workshops hosted by the Delaware Network for Excellence in Autism (DNEA) on June 24-25 at the Virden Center in Lewes. The events were led by Dr. Stephen Kanne, the executive director of the University of Missouri Thompson Center for Autism and Neurodevelopmental Disorders, a nationally known expert on diagnosis of ASD.

 
 

7/1/2019

22q at the Bronx Zoo (NY UCEDD/LEND)

Rose F. Kennedy UCEDD/LEND's Children's Evaluation and Rehabilitation Center (CERC) partnered with Einstein Buddies, (a medical school service learning club), Children's Hospital at Montefiore 22q11.2 specialty clinic, Bernice Morrow's Einstein Genetics lab and Harboring Hearts to sponsor 22q at the Bronx Zoo. The International 22q11.2

 
 

6/25/2019

Dedication, Hard Work, and Achievement: Honoring John B. Moeschler, MD, MS (NH ME LEND)

John B. Moeschler, MD, MS. is retiring from his role as Program Director for the New Hampshire-Maine Leadership Education in Neurodevelopmental Disabilities Program after 27 years of service from 1992-2019. As a developmental behavioral pediatrician and geneticist in NH, he served thousands of children and families with, or at risk for, intellectual and developmental disabilities (IDD) and trained hundreds of interprofessional leaders in high quality, innovative clinical care. In recognition of his many accomplishments, John was awarded Pediatrician of the Year by the NH Pediatric Society in 2012.

 
 

5/28/2019

54 Learn the Signs.Act Early. Ambassadors Complete Annual Training at NCBDDD/CDC

42 new Learn the Signs. Act Early. Ambassadors joined forces with a veteran cohort of 12 Ambassadors representing 48 states, 3 territories and the District of Columbia on the campus of the Centers for Disease Control and Prevention (CDC) for the Annual Act Early Ambassador Training April 30-May 1, 2019 hosted by the Learn the Signs. Act Early.

 
 

4/25/2019

Early Reading Can Improve Communication Skills

Supporting early reading experiences can improve communication skills over time. Technology-based training from Texas A&M University provides reading skills to parents/community partners to increase language & communications skills of children with ASD.

 
 

4/25/2019

The Act Early Ambassador Provide Parents with Tools

Alicia Brewer Curran manages Thompson Center for Autism and Neurodevelopmental Disorders ECHO Autism training program and is 1 of 54 NCBDDD's Act Early state/territory Ambassadors providing parents and providers with tools to identify and address developmental concerns.

 
 

4/22/2019

Dr. Rackensperger's Impact - It's all about Attitude

In this video produced by Institute on Human Development & Disability / UGA, Dr. Rackensperger describes her passions and the impact she has had on her students and community members, with the assistance of augmentative and alternative communication devices.

 
 
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