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AUCD Policy Fellowship 2020

The Policy Fellowship is an opportunity for an advanced network member to live and work in Washington, DC for one year, learning about AUCD, current legislation affecting people with disabilities and their families, and exercising leadership skills. The Fellow's responsibilities will be developed based on the needs of the Association and the interest and experience of the Fellow. Deadline: March 31; start date: September 2014.

EHDI scholarship recipients pose for a photo together


2020 EHDI Meeting Scholarships for LEND Audiology Trainees

Application deadline: February 14, 2020

AUCD has made available six (6) scholarships of up to $500 each to support LEND audiology trainees in attending the in Early Hearing Detect8-10, 2020 in Kansas City, MO. All current LEND audiology trainees, including those in their externship year, are eligible to apply. However, priority will be given to trainees from programs that do not currently receive supplemental funding and trainees that have not attended the EHDI Meeting in previous years. Application deadline: February 14, 2020.



NJLEND Culture and Family Panel

On December 6, 2019, the New Jersey Leadership Education in Neurodevelopmental Disabilities (NJLEND) program at The Boggs Center on Developmental Disabilities held a didactic seminar focused on cultural competency. The didactic seminar session included a family panel comprised of three parents representing the following cultural backgrounds: West African, Hispanic/Latino, and South Asian.



1Health Adds MN LEND

The MNLEND fellowship program was accepted as a designated 1Health Interprofessional Activity, the University of Minnesota's interprofessional education curriculum initiative that brings together students from a wide range of health-related disciplines. 1Health challenges medical, dental, social work, public health and other students to cultivate skills in teamwork, communication, and collaborative care. These skills are integral to the medical community's "triple aim" of improving patient outcomes, advancing population health, and reducing costs. In selecting MNLEND, 1Health's Interprofessional Education Team considered the program's mix of learners from different professions, its explicit focus on interprofessional learning and the authenticity of its learning activities.



NH-ME LEND Graduate Honored by New Futures With Legislator of The Year Award

Rep. Joelle Martin, NH-ME LEND graduate, was recently honored with the New Hampshire Legislator of the Year award by New Futures, New Hampshire's leading health policy, and advocacy organization. After working for a decade as an executive in publishing, Martin's focus shifted to education and advocacy. As her daughter, who has a life-threatening food allergy, entered preschool, she began to educate her family and school community about severe food allergies. Soon after, she developed an educational program about life-threatening allergies for teachers and staff.



Iowa LEND Trainee Experience

Prior to their graduation on May 2, Iowa's twenty-three LEND trainees concluded their LEND experience by hosting the program's first LEND Research Poster Session. Trainees identified an area of interest, and then with the assistance of their training directors, either conducted a research project or performed a comprehensive review of current research. The Iowa LEND trainees complete over 370 hours of training over two semesters; the curriculum is focused on interdisciplinary clinical care, disability policy, culturally responsive care, and family/patient and professional partnerships.



The Boggs Center (NJ UCEDD/LEND) Celebrates the Graduation of the 2018-2019 NJLEND Fellows at the 3rd Annual Maternal and Child Health Leadership Symposium

On May 10th, 2019, The Boggs Center celebrated the graduation of the 2018-2019 NJLEND Fellows at the New Jersey Leadership Education in Neurodevelopmental Disabilities (NJLEND) program's 3rd annual Maternal and Child Health Leadership Symposium. Held in New Brunswick at Children's Specialized Hospital, the event featured a keynote address, Life Course Research and Community Engagement to Improve Autism Outcomes, from Paul T. Shattuck, PhD, Associate Professor at Drexel University's A.J. Drexel Autism Institute, and was attended by those from the Rutgers community, New Jersey's Department of Children and Families, SPAN Parent Advocacy Network, and other state and community organizations. During the NJLEND Leadership Projects Poster Session, attendees had the opportunity to learn from each Fellow about the leadership project they conducted over the course of the academic year.

2019 LEND Fellows


2019 ICI MA LEND Graduation

On May 10th the achievements of the 2019 LEND Fellow were celebrated at their graduation. During the event, 2019 highlights were shared including family visits, Title V program visits, work in community based organizations (CBOs), clinical and research reflections, and the Disability Policy Seminar in DC.



Exciting Work Showcased at the LEND Poster Session

The full cohort of Leadership in Education for Neurodevelopmental Disabilities (LEND) trainees filled the atrium of the Van Nuys Medical Science Building's on April 26th for the LEND poster and networking session.



MNLEND Fellow Speaks at Hollywood Fundraiser with Conan O'Brien

MNLEND Fellow Olivia Maccoux spoke at a sold-out Hollywood fundraiser headlined by comedian Conan O'Brien (pictured together). "In Stitches: A Night of Laughs with Conan and Friends" was covered by the Hollywood Reporter and raised over $300,000 to support critical research and programs that improve the quality of life for people living with hydrocephalus, an incurable lifelong condition that affects over one million Americans, and which Maccoux acquired when she was born three months premature.



Active Leadership in the Tucson Community (Arizona LEND)

What a bittersweet end to a fantastic traineeship for the University of Arizona LEND cohort! Over the past nine months, Arizona LEND has been involved in some great Leadership Projects designed to step outside of their comfort zones and serve people with disabilities and complex medical needs in Tucson. From neighborhood playgrounds to customized websites, the trainees in this cohort came together to make the most of their skill sets. Here are some of the highlights.



Kansas LEND Receives Diversity & Inclusion Award

Kansas LEND was honored to accept the University of Kansas Medical Center Executive Vice Chancellor award for Diversity & Inclusion in April. LEND was nominated by Alice Zhang, LEND Postdoctoral Fellow and was supported by our community partner Families Together, Inc. The work to expand understanding, acceptance, inclusion and belonging on our KUMC campus and beyond continues. Pictured: Jessica Schuttler, Ph.D., LEND Training Director, Alice Zhang, LEND Postdoctoral Fellow and Dr. Robert Simari, KUMC Executive Vice Chancellor

LEND Audiology trainees and faculty discuss the role of audiologists in supporting families to accessing timely diagnostic services.


LEND Audiology Trainees Learn Strategies for Early Diagnosis at EHDI 2019

The 18th annual Early Hearing Detection and Intervention (EHDI) Meeting welcomed nearly 1,000 diverse stakeholders on March 4-6 in Chicago, IL. The EHDI Meeting brings together those who work in state-based EHDI Programs, assist in EHDI efforts on the federal level, provide screening, diagnostic, and early intervention support at the state level to young children who are deaf and hard of hearing and their families, and deaf and family advocates. The Meeting is organized by the American Academy of Pediatrics, Hands and Voices, U.S. Department of Health and Human Services: Health Resources and Services Administration, and National Center for Hearing Assessment & Management at Utah State University.



Linking Nutrition and Disability (MN LEND)

What does food have to do with disability? Kalia Thor wanted to know. She is a Fellow in ICI's Minnesota Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) Program, but she is also a second-year Master of Public Health nutrition student at the University of Minnesota, a Maternal and Child Health nutrition trainee, and a nutrition educator for the Women, Infants, and Children (WIC) program. "During undergrad [in nutritional science], I always wondered why nutrition choices were so limited for certain individuals with disabilities and why they tended to be so 'picky' at mealtime," she says.

An SC LEND trainee and practicing nurse presented on information related to providing specialized training for school nurses working with students with disabilities.


SC LEND Trainees Attend the Nurturing Developing Minds Conference

The members of the South Carolina LEND program recently attended a state conference in March 2019 focusing on research and initiatives that are driven to create supportive environments to help children and their families flourish. The Nurturing Developing Minds conference provided several opportunities to the LEND trainees, including attending reviews of recent research and policies on developmental surveillance and screening (with a particular emphasis on the Help Me Grow nationwide initiative) and on the long-term risks of spanking and promising interventions (i.e., the No Hit Zone)

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