TRAINING AND PROFESSIONAL DEVELOPMENT
_sm.png)
5/7/2018
Online Professional Development: Photovoice Research Methods (HI UCEDD/LEND)
For 25 years, "Photovoice" has involved people with disabilities, patients, youth, families and communities in representing their lives, point of view, and experience using photos and captions. Photovoice is a participatory approach to communication about health, healthcare, and daily lives in clinical and other settings to encourage dialogue and mutual learning. Photovoice generates powerful data (photographs, captions)thatengage clients, clinicians, evaluators, and the public in identifying opportunities for change, fostering knowledge and awareness, and helping people to feel their 'voices' are heard.
5/2/2018
Iowa LEND Educates Legislators on the Hill
The Iowa Leadership Education in Neurodevelopmental and Related Disabilities (LEND) trainees traveled from Iowa City, Iowa to attended the 2018 Disability Policy Seminar (DPS) in Washington, D.C from April 23rd-25th, 2018. Earlier in the year, the trainees spoke with Iowa's State legislators (Representative Ashley Hinson, Representative Bobby Kaufmann, Senator Liz Mathis, and Senator Joe Bolkcom) in Des Moines, Iowa to discuss the importance of LEND and state-level disability issues. The trip to the U.S. Capitol served as the culmination of the Iowa LEND experience, allowing trainees to use the tools they had learned in the past year to advocate and educate on disability rights at the federal level.
5/2/2018
LEND Audiology Trainees at EHDI 2018
The 17th annual Early Hearing Detection and Intervention (EHDI) Meeting took place in Denver, CO. The Meeting welcomed around 1,000 diverse stakeholders nationwide to enhance the implementation of comprehensive state-based EHDI programs and expand opportunities for young children who are deaf and hard of hearing. The EHDI Meeting was organized by American Academy of Pediatrics, U.S. Department of Health and Human Services: HRSA, Hands and Voices, and National Center for Hearing Assessment and Management at Utah State University.
5/1/2018
Just Released - Responsive Practice: Providing Health Care & Screenings to Individuals with Disabilities (NH UCEDD/LEND)
The New Hampshire Disability and Public Health (DPH) project's Responsive Practice training is now available online, on-demand, and is free for a limited time. Responsive Practice enhances health care providers' ability to deliver disability-competent care that is accessible to people with intellectual, mobility, and other disabilities.
4/23/2018
Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial
Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.
4/19/2018
AIR-B Network Activities
The Autism Intervention Research Network for Behavioral Health (AIR-B) provides a free annual community conference to increase awareness of autism services, current research, and evidence-based interventions in the local regions of each of its network partners: University of Pennsylvania, UC Davis MIND Institute, University of Rochester, and University of California, Los Angeles. Experts in the network share their expertise and invite other prominent autism advocates to discuss topics ranging from non-clinical based autism interventions, to parent advocacy, to school-based transition supports for students with autism.
4/10/2018
Nutrition is for Everyone Ambassador Updates - Arkansas
Nutrition is for Everyone Arkansas (NIFE AR) has been working hard to wrap up the grant in its final month. They've made arrangements with three existing organizations that will continue NIFE AR after the grant ends. Arkansas Hunger Relief Alliance, Arkansas Special Olympics, and Arkansas Disability and Health have all taken on the mission to continue increasing fruit and vegetable intake and overall nutrition education with their programs. They have agreed to continue offering adapted cooking classes throughout the state and also to continue offering NIFE AR adapted nutrition education materials in one-day classes, Live Healthy events, and online video series.
4/10/2018
Nutrition is for Everyone Ambassador Updates - Louisiana
Nutrition is for Everyone Louisiana (NIFE LA) project wrapped up its 8-week pilot program with Special Olympics Louisiana (SOLA) this month called the Unified Fitness Club. Each week, athletes and their families participated in a 30-mintue physical activity session and a 30-minute interactive nutrition lesson developed by the NIFE LA team. Nutrition lessons are currently being compiled into a user-friendly instructor's manual that will be disseminated to SOLA organizations across the state.
4/10/2018
Nutrition is for Everyone Ambassador Updates - Oklahoma
The Nutrition is for Everyone Tennessee Oklahoma (NIFE OK) Deputy Nutrition Ambassadors taught a class for Spanish-speaking families on how to add more fruits and vegetables to the diet. They also provided nutrition handouts and advertised for nutrition classes at "On the Road", a one-day conference designed to help people with disabilities and their friends and families find resources. Deputy Ambassadors participated in "People with Disabilities Awareness Day at the Capitol" in Oklahoma City and met with legislators to advocate for better services for people with disabilities.
4/10/2018
Nutrition is for Everyone Ambassador Updates - Tennessee
Nutrition is for Everyone Tennessee (NIFE TN) continued distributing NIFE information (including social media connections) at the 1-day workshops for professionals and families related to intellectual and developmental disabilities. It was a good opportunity for them to provide nutrition resources to physicians, therapists, and other healthcare professionals! Four more workshops were scheduled across the state, with the last one being in mid-April, expanding their reach with health care professionals as well as families.
4/9/2018
Spanish Interpreters Trained in Serving People with IDD in Medical Settings (NY UUCEDD/LEND)
Through funding from the WITH Foundation, Strong Center for Developmental Disabilities partnered with University of Rochester Medical Center Interpreter Services, Ibero-American Action League, and Jeiri Flores and Jensen Caraballo, two Latinx self-advocates, to deliver a training to Spanish medical interpreters, medical liaisons, and Medicaid Service Coordinators to improve the healthcare experience for Spanish-speaking people with intellectual and developmental disabilities and their families. Built over a six-month period, the training covered health disparities for people with IDD, disability history, intersections between Latinx and disability cultural values, and communication strategies for working with patients. While interpreters are familiar with many Latinx cultural values, they were able to consider how these cultural values impact Latinx people with IDD in medical settings, and how to act as advocates in ensuring patient understanding.
3/29/2018
CT LEND Students Present at the EHDI Meeting in Denver Colorado
In its 17th year the EHDI Meeting has built a strong reputation for bringing together a wide variety of attendees including those who: work in state Early Hearing Detection and Intervention programs; assist in EHDI efforts on the federal level; provide screening, diagnostic and early intervention support at the state/ local level to young children with hearing loss and their families; champion Medical Home activities within each state; are parents of children with hearing loss; or are deaf or hard-of-hearing adults who are helping to expand opportunities for young children with hearing loss.
3/27/2018
SC LEND and Greenville Health Systems co-sponsor 12th annual Nurturing Developing Minds conference
Over 230 people gathered for the 13th annual Nurturing Developing Minds conference in Greenville SC. These included professionals, family members, self-advocates, and current and past SC LEND trainees. This year's conference theme was Building Resiliency.
3/12/2018
Nutrition is for Everyone Ambassador Updates - Mississippi
Nutrition is for Everyone Mississippi (NIFE MS) held the project's second nutrition education workshop last month. Seventeen students and their instructors from transition classes at Gulfport and Pass Christian high schools participated. The workshop was held at the Institute for Disability Studies (IDS) office in Long Beach at The University of Southern Mississippi's Gulf Park campus. Deputy Ambassador LaShaundrea Crook, MS, RDN, LD, led the workshop and hands-on snack activity, and Deputy Ambassador Taylor Carley provided workshop support.
3/12/2018
Nutrition is for Everyone Ambassador Updates - Oklahoma
The Deputy Nutrition Ambassadors at Nutrition is for Everyone Oklahoma (NIFE OK) are teaching a class this month for Spanish-speaking families on how to meet the dietary guidelines using MyPlate. NIFE OK has also partnered with the LEND (Leadership Education in Neurodevelopmental Disabilities) program and is in the process of developing a curriculum for healthy meal planning and food safety for people with disabilities and their friends and family.