HOMEPAGE: WHATS NEW

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11/28/2022

Autism research is a family affair: Steps toward increasing inclusion and diversity

As a research team working with children and adolescents with autism in the Bronx, a racially, ethnically and culturally diverse borough of New York City, we have seen the significant barriers to research participation that families in our area face. Research is an essential step toward improving outcomes of individuals with autism. When research involves children, parents and caregivers make major contributions to the study process by enrolling their children in research, carving out time to bring their children to the research setting, and providing important information about the child's strengths, needs, and developmental and intervention histories. Unfortunately, the racial and ethnic diversity of the US population is not well-represented in many research studies and research findings often do not generalize to excluded groups. This lack of representation in research contributes to health disparities.

 
 

11/22/2022

2022-2023 AUCD Children's Mental Health Champions

AUCD's National Center on Disability in Public Health continues its work with the Children's Mental Health Champions project for a third year. This project is made possible through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Building on the efforts of Champions from 2021-2022, twelve Champions were selected for 2022-2023 to continue to provide timely support for children and their families.

 
 

11/22/2022

Welcome Newly 2022 Elected Board Members

On behalf of AUCD Nominating Committee Chair Tawara Goode and Board President Danny Armstrong, AUCD is pleased to announce the newly elected members of the Board of Directors. These new members will begin their three-year term after the passing of the gavel at the 2022 AUCD Conference closing plenary. Congratulations!

 
 

10/17/2022

Culturally Relevant Trauma Training Video Developed by Georgia State's Center for Leadership in Disability

Researchers from the Center for Leadership in Disability in the Georgia State University School of Public Health have created a trauma training video module that covers the complex needs of Latinx immigrant and migratory children in Georgia.

 
 
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9/9/2022

NIH Awards $100 Million for Autism Centers of Excellence Program

AUCD Network Members Awarded

The National Institutes of Health has awarded a total of $100 million over the next five years to support nine Autism Centers of Excellence (ACEs). This endeavor funds large research projects to understand and develop interventions for autism spectrum disorder (ASD). Created in 2007, the ACE program is renewed every five years.

 
 

9/6/2022

Building Community Capacity for Accessible Vaccine Events

The UCEDD in the Institute on Development and Disability at OHSU worked with the Oregon Health Authority to create resources for vaccine events to be more inclusive. They made videos, guides, and checklists to go with a boxed kit of accessibility tools. This will help people with disabilities and people who speak languages other than English get vaccines in their communities. There are more videos and resources coming soon.

 
 

8/29/2022

Funding Opportunity: Children's Mental Health Champions

Deadline: September 23, 2022 at 5:00 p.m. ET

Through a cooperative agreement, the Association of University Centers on Disabilities (AUCD) and the Centers for Disease Control and Prevention (CDC), will support a pilot program of Children's Mental Health Champions. This funding opportunity is limited to AUCD network members in any state or Territory. The Champions will support AUCD's evaluation of the Children's Mental Health Champions program by documenting and reporting project activities and measurable process outputs and short-term outcomes via program reporting forms conducted at the two-time points (mid-year and end of the program year). AUCD staff will be available to support Champions in different components of the program, including providing training and technical assistance as needed.  

 
 

8/25/2022

LEND Family Mentorship Models

The long-awaited LEND Family Mentorship Models are here! This document was written by LEND programs for LEND programs and contains several different versions of this experience from across the network. The LEND Family Discipline Network (LFDN) hopes you will use this document to help inspire or develop your own family mentorship experience in your LEND program.

 
 

8/9/2022

ANCOR's COVID-19 Vaccine Toolkit

As a DSP, It's Up to Me! Protect yourself and the people you support

Developed by ANCOR with funding from the Association of University Centers on Disabilities (AUCD), "As a DSP It's Up to Me" recognizes that people with I/DD should be able to live and thrive in their communities. We want them to live where they want to live, with whom they want to live. We want them to have jobs that are fulfilling to them. And we recognize achieving these goals requires isolating people with I/DD from the dangers of COVID-19. With a goal of keeping people with I/DD and the people around them safe and healthy, The COVID-19 Vaccine Toolkit was designed with ANCOR members and other community providers in mind. You are an essential partner for this initiative, and these tools were designed for you-to make it as easy as possible for you to engage with your colleagues on the frontlines to get vaccinated.

 
 

7/25/2022

Community Supports in Crisis: No Staff, No Services

All the progress toward community living that has been made in services for people with IDD over decades is now in jeopardy because of catastrophic labor shortages and pervasive high turnover rates in the direct support workforce. This white paper from ICI and its partners at HSRI and NASDDDS explores the depth of the crisis in the workforce and the impact on people with IDD and sounds the alarm about the nature and scope of the workforce crisis in the IDD service system.

 
 

7/13/2022

Columbia University Seeks Participants for Focus Group

Columbia University is seeking participants for a study that explores issues of trust in a type of medical research called "precision medicine research." The study looks at a person's genetics, environment, and lifestyle. It can help physicians improve prevention and diagnosis of diseases and develop new treatments.

 
 

7/5/2022

IDRPP Research Offers Skills List for College-bound Students with Intellectual Disabilities

Are you wondering what non-academic skills a college-bound student with intellectual disabilities should have before entering an inclusive program? AUCD's IDDRC, the Institute for Disability Research, Policy & Practice in has research on that.

 
 

7/1/2022

CDC-AUCD Leadership Opportunity: Act Early Ambassadors-State or Territorial Liaisons to CDC's "Learn the Signs. Act Early." Program

The Centers for Disease Control and Prevention's (CDC) National Center on Birth Defects and Developmental Disabilities and the Association of University Centers on Disabilities (AUCD) announce a funding opportunity for Act Early Ambassadors to work with CDC's "Learn the Signs. Act Early."

 
 

6/10/2022

MI-DDI Co-hosts Vaccination, Health Clinic for People with Disabilities and their Families

The Michigan Developmental Disabilities Institute (MI-DDI) co-sponsored a health and resource fair with Disability Rights Michigan, as a part of the Michigan Vaccination Partners. Here, a new ADA-compliant Wayne Health Mobile Unit offered vaccinations and boosters, as well as diabetes, cholesterol and kidney function screenings; blood pressure screenings; COVID-19 testing; HIV testing; mental health screenings; and referrals to health and care resources in the community.

 
 

6/7/2022

Call for Participation: Understanding Parent or Guardian Perspectives on COVID-19 Testing in Schools

We invite you to participate in a research study being conducted by investigators from Washington University in St. Louis and Kennedy Krieger Institute in Baltimore.

The purpose of this study is to identify the issues most critical to student COVID-19 testing in schools. Questions are asked about family's well-being and child's school experience during the era of COVID-19.

 
 
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