COVID-19

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1/12/2022

COVID-19 Vaccines for Children with Developmental Disabilities: Parent Survey of Willingness and Concerns

Compared to the general pediatric population, parents of nearly 400 children with a DD were more willing for them to receive COVID-19 vaccines. In this new pre-print by the RFK UCEDD (Bronx, NY) and SCDD UCEDD (Rochester, NY), parents of 75%, 49%, and 38% of children aged 12-17, 6-11 and 0-5 years-old, respectively, had gotten or would get their child vaccinated ASAP. (the study was fielded when vaccines were authorized for children aged 12+ years.)

 
 

1/12/2022

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Produces Trio of Videos on the COVID-19 Vaccine and Individuals with Intellectual Disability

The Vanderbilt Kennedy Center of Excellence in Developmental Disabilities (VKC UCEDD)(TN IDDRC, UCEDD, LEND) has produced three brief videos to build COVID-19 vaccine confidence in the disability community. These videos feature an adult with an intellectual disability and a parent and her daughter with autism, who share their personal experiences, hesitancy, and decision-making related to getting themselves or their child vaccinated.

 
 

1/10/2022

Georgetown UCEDD Creates COVID-19 Video Series featuring Family Physician

The Georgetown UCEDD created a COVID-19 video series featuring a family physician, called "Ask Dr. Kim." This series answers questions like "What is COVID-19?" and "What is all the talk about needing a booster shot?"

 
 

12/20/2021

HRSA Awardees Study Impact of COVID-19 on Receipt of Services and Parent Mental Health in Children with ASD

University of Delaware�s Dr. Anjana Bhat, associate professor in physical therapy, and JP Laurenceau, professor in psychological and brain sciences, have been awarded a grant from the Health Resources and Services Administration (HRSA) at the Department of Health and Human Services (DHHS) for a new study to analyze the impacts of COVID-19 on receipt of behavioral, speech, occupational and physical therapy services and parent mental health in 9,000 children with autism from the SPARK cohort and to determine value derived from these services in an online capacity.

 
 

12/13/2021

It's Worth the Shot!

The second video in a series of the Worth The Shot Campaign by the Mississippi Developmental Disabilities Network is now available to view at https://www.youtube.com/watch?v=MkHUA1cRv4w. In this video, Taylor shares his journey of getting vaccinated and how the vaccine has helped him get back to doing the things he loves: advocating for the disability community and creating awesome things.

 
 

12/13/2021

Telehealth and Individuals with IDD: Challenges and Best-Practices

On October 21, the WITH Foundation announced a $50,000 award to the Institute on Disability for a one-year initiative to investigate best practices for offering telehealth care to people with intellectual and developmental disabilities (IDD). Under the direction of Research Assistant Professor Kimberly Phillips, the research team will undertake a scoping review to identify challenges and best practices associated with providing telehealth to individuals with IDD

 
 

11/19/2021

Friends and Family Campaign

As we move into the fall and winter, we'll see our friends and families on special occasions. Our "Friends and Family" Campaign shares tools on how to keep encouraging vaccine confidence in non-judgmental ways. Ask a friend or a family member that you may have who is in a local community or civic group and reach out together to listen to any questions or concerns and share information in a kind way.

 
 

11/17/2021

Partners in Maine DD Network Collaborate on COVID-19 Vaccination Video PSAs

Partners in the Maine Developmental Disabilities Network (the University of Maine Center for Community Inclusion and Disability Studies, Disability Rights Maine, Maine Developmental Disabilities Council, and Speaking Up for Us) collaborated with Gray Media Group (WAGM-TV) to design, produce and broadcast seven video public service announcements (PSAs) to help increase COVID-19 vaccinations among people with disabilities and direct support professionals; the individuals who support people with disabilities where they live and work.

 
 

10/14/2021

HDI Launches Storytelling Website

The University of Kentucky Human Development Institute Digital Storytelling Initiative highlights the stories and lived experiences of people with disabilities. Interviews address multiple life experience living and working in the community. Most recently, the Vaccine Confidence and Access for People for People with Disabilities Initiative interviewed with people with disabilities about their vaccine experience and the importance of keeping our communities healthy.

 
 

10/11/2021

Your Shot to End COVID

Hear from people with disabilities, their families and direct support professionals on why they got or are looking forward to getting, the COVID-19 Vaccine.

 
 

9/16/2021

Request for Application: Trainee and Training Director Stipend Opportunity for Local Vaccine Outreach

Submission deadline is extended to 5 pm ET on September 21, 2021.

Through an upcoming single-source award from the Centers for Disease Control and Prevention (CDC) to Association of University Centers on Disabilities (AUCD), a selection of Trainees and Training Directors from the AUCD network members will conduct COVID-19 vaccine outreach with the disability community as part of a larger effort, Local Vaccine Outreach with the Disability Community. Successful applicants will propose innovative message delivery streams and local modalities to reach people with disabilities (including individuals not connected to service delivery systems), their families, and Direct Support Professionals (DSPs), with the overarching goal of boosting COVID-19 vaccination rates in the disability community.

 
 

9/16/2021

Research Survey Opportunity (with a $10 gift card) for Parents and Guardians of Youth with Disabilities

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute (Maryland's UCEDD) and the University of Missouri Kansas City's Institute for Human Development (Missouri's UCEDD) are seeking parents and legal guardians of school-age children with intellectual or developmental disabilities to participate in an online survey to help us understand their concerns about their child's return to school in-person during COVID-19.

 
 

9/15/2021

The Center on Disability and Development Joins Forces to Make Sure People with Disabilities Can Get Vaccinated

The Center on Disability and Development joins forces to make sure people with disabilities can get vaccinated The CDD has joined forces with our DD network partners in Texas and other organizations to make sure that people with disabilities have the opportunity to get vaccinated!

 
 

9/15/2021

Tips for Keeping Kids Safe as They Head Back to School During COVID-19

Worried about your child being exposed to COVID-19 you can take to ensure they have a safe return to school. Produced by the University of Cincinnati UCEDD.

 
 

9/7/2021

COVID-19 Screening in Schools for Children with IDD

Since November 2020, investigators at Washington University in St. Louis School of Medicine have studied whether weekly saliva-based screening testing of staff and students and mitigation strategies may help keep children with disabilities safe at school.

 
 
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