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COVID-19 Community Education Coordinator, Miranda Hooper, delivering KN-95 masks across Oklahoma.


The Center for Learning and Leadership Oklahoma's University Center for Excellence in Developmental Disabilities (UCEDD) Distributes over 150,000 Masks Across the State

The Center for Learning and Leadership Oklahoma's University Center for Excellence in Developmental Disabilities (CLL/UCEDD), at the University of Oklahoma Health Sciences Center, received a large donation of KN-95 masks to offer to our community affiliates and academic partners at no cost thanks to their partnership with OU Health. Through this generous donation, the CLL/UCEDD was able to provide over 150,000 high-quality KN-95 masks to more than 25 university affiliates, and CLL-affiliated community-based provider agencies and programs that serve people with intellectual and developmental disabilities (IDD) and their families across the state of Oklahoma.



Team for Infants Exposed to Substance Abuse: Supporting Families at Risk for Over 30 Years

The Team for Infants Expose to Substance abuse has been providing intensive home based services for pregnant and postpartum women affected by substance use and their families Kansas City.

A headshot of A. Pablo Juarez, M.Ed., BCBA, LBA. He is a middle-aged man with a medium complexion, a short buzz cut, black glasses, and a dark blue button-down shirt and a pink and blue plaid bow tie.


A Commentary from Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Applied Behavior Analysis Therapist, TRIAD Co-director on ABA Controversies and the Need for Substantive Community Engagement

This opinion piece is shared by A. Pablo Juarez, M.Ed., BCBA, LBA, co-director of the Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Treatment and Research Institute for Autism Spectrum Disorders (VKC TRIAD). This commentary is not meant to be a definitive resource documenting numerous issues surrounding the use of applied behavior analysis, but to instead provide a surface-level overview of conversations currently being held among self-advocates and disability support professionals.



Excellence in Autism Support Award Goes to Delaware UCEDD Research Manager

For her "Outstanding Research on Autism in Higher Education," Jessica Monahan, research manager with the University of Delaware Center for Disabilities Studies' Spectrum Scholars program, has won an inaugural Excellence in Autism Support award from the College Autism Network.



KU and UNC Collaborate on Propel Project

Launched in 2020, the Propel Project will examine the impact of a comprehensive intervention combining the Self-Determined Learning Model of Instruction and Peer Supports, on academic, social, and functional outcomes for autistic secondary students in inclusive general education classrooms. This collaboration between the University of Kansas (KU) and the University of North Carolina (UNC) is led by KU Center on Developmental Disabilities Director (KUCDD) Karrie A. Shogren, KU Juniper Gardens Children's Project Director Brian Boyd, KUCDD Assistant Research Professor Sheida K. Raley, and UNC Associate Professor Kara Hume.



Mailman Center Launches Prevention Research Program for Children with Special Health Care Needs

A research program led by the Mailman Center for Child Development at the University of Miami Miller School of Medicine received funding of $900,000 from the Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau. The study "Health Equity at the Intersection of Disability and Ethnic Group Status: Adaptation of 'Healthy Caregivers-Healthy Children' for Children with Special Healthcare Needs (HC3)" will implement and evaluate the effectiveness of an obesity prevention program for children with developmental, physical, and/or intellectual disabilities.



The Ohio State University Nisonger Center LEND Trainees Address Health Disparities through Virtual Sessions for New Mothers

Moms2B, a community-based pregnancy program for low-income mothers in central Ohio, was established by The Ohio State University Medical Center in 2010 to decrease high infant mortality rates in the state and help mothers deliver healthy, full-term infants. This community-based program meets weekly throughout pregnancy and through the infant's first year to provide education and support to moms. In-person meetings occur in a safe, familiar space where Moms can ask questions, receive education on infant development and reproductive health, and connect with local services.



Wisconsin UCEDD SaferKids Program

Benji is a bright-eyed and energetic six-year-old. He and his two brothers keep their mom, constantly on her toes. But Benji, who was recently diagnosed with autism, was exhibiting some behaviors that were leaving his mother fearful for his safety. While at the Waisman Center Benji's mother mentioned her concerns to one of the clinic's family navigators. That's when she was told about the Waisman Center's SafterKids program.



AUCD Launched Podcast - AUCD Network Narratives

This fall, AUCD launched its first ever podcast called AUCD Network Narratives: Real Stories from Our Members. The podcast shares real stories from network members who are working to change systems and structures that impact people with disabilities. Each AUCD Network Narratives episode features a conversation about experiences at a LEND, UCEDD or IDDRC, especially highlighting emerging leaders and the voices of BIPOC disabled people and their families.



AUCD's Children's Mental Health Champions Project Extended for 2021-2022

AUCD's National Center on Disability in Public Health continues its work with the Children's Mental Health Champions project for a second year. This project is made possible through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Building on the efforts of the year one Champions, 2020-2021, twelve Champions were selected for 2021-2022 to continue to provide timely support for children and their families. The Champions developed state-specific work plans to implement effective strategies for mental health promotion, prevention supports, and the creation of networks (e.g., school, healthcare, and community) to promote better connections between these systems. The 2021-2022 Champions represent American Samoa, California, Colorado, Connecticut, Georgia, Kentucky, Maine, Montana, New Hampshire, New Mexico, and South Dakota.



Autism Intervention Research Network on Physical Health (AIR-P) Updates

Autistic Researcher Review Board (ARRB) member Mornik Giwa Onaiwu was featured on AUCD's podcast, AUCD Network Narratives: Real Stories from Our Members. The episode is titled "Using Storytelling to Connect Research and Lived Experience". The episode covers an important discussion on the need for respectful, affirming, and accurate language as well as the difference between person-first language versus identity-first language.



Grants Create New Center to Address Native American Disability Challenges

Two grants totaling more than $1.3 million will help establish the foundation for the Native Center for Disabilities, which is aimed at bringing Tribal communities together to improve disability services and employment access for youth and adults with intellectual and developmental disabilities.



Growing Self-Advocacy in the Heartland

The second SOAR Conference sponsored by four Midwestern UCEDDs was held virtually this fall, with Iowa's UCEDD taking the lead for 2021.



UNH IOD to Lead Development of New Children's Behavioral Health Resource Center

The NH Executive Council approved a $4.3 million, three-year contract to the University of New Hampshire Institute on Disability (IOD) to develop a new Children's Behavioral Health Resource Center (CBHRC). Working in collaboration with other institutions, family groups, providers, and youth and families, the CBHRC will strengthen the network of behavioral health supports for children across NH.



Charting the LifeCourse Nexus Ambassador Badge Academy

In the summer of 2021, Charting the LifeCourse Nexus piloted the Ambassador Badge Academy courses with a select group of LifeCourse Nexus Coaches. And, after a successful pilot run, the Ambassador Badge Academy courses are now available to all certified Charting the LifeCourse Ambassadors.

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