Staff from the National Institutes of Health (NIH) will discuss DS-Connect: The Down Syndrome Registry (https://DSConnect.nih.gov) and what it can offer families. They will describe how families can fill out surveys, participate in research, and view the aggregate de-identified data. NIH staff will also show how a researcher or clinician interested in any aspect of Down syndrome can use the registry for learning about Down syndrome and recruiting participants for studies. Webinar participants will also learn about progress in studies being supported by DS-Connect.

The 2013 AUCD Conference will be held at the Washington, DC, Renaissance Hotel.

AUCD, The Arc of the United States, United Cerebral Palsy, AAIDD, and the National Association of Councils on Developmental Disabilities are joining together again to host the 2008 Disability Policy Seminar: Advancing Disability Policy in an Election Year.