RESEARCH
07/22/2024
AIR-P Research Day at Autism CARES Meeting 2024: Translating Research to Community Impact
The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its 7th semi-annual Research Day at the Autism CARES Meeting 2024 in July 2024. This event is part of the Autism CARES Meeting and will emphasize "Translating Research to Community Impact", highlighting content related to the physical health and overall well-being of autistic individuals. This virtual event is open to all.
RD@CARES24 RFP.pdf
[download]
Categories:
04/16/2024
AIR-P Presents: Introduction to Plain Language Writing for Academics and Researchers
This webinar, offered by the Autistic Self Advocacy Network in partnership with the Autism Intervention Research Network on Physical Health (AIR-P), will provide an overview of plain language writing for people who may be more used to writing in academic language. Attendees will learn the principles of plain language writing and have a chance to put them into practice with interactive exercises. There will also be time for questions and answers.
Categories:
03/19/2024
AIR-P Presents: Skillflix: A Community-Engaged Process to Create Short Videos that Enhance Skills Across Populations
In this webinar, the research team will tell the story of a community-engaged, academic-industry partnership to create online video libraries for autistic young adults and parents of autistic youth. Join the conversation about community-engaged research, sexuality, and academic-industry-partnerships for enhancing health among autistic people across the lifespan.
Categories:
02/21/2024
AIR-P Presents: The Intersection of Race and Autism Spectrum Disorder
This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P) -- will focus on: The intersection of race and ASD. The webinar will include a presentation by Dr. Sophie Molholm on the findings from a multisite study on autism in African Americans focused on increasing diversity in genetics studies and understanding reasons for later age of diagnosis in this group as well as a collaborative discussion led by Dr. Lisa Shulman, a clinical leader of a large, diverse inner-city Developmental Center in concert with a parent of children with ASD and an Autistic Adult on practical strategies for supporting a diverse ASD population and their families in accessing diagnosis, therapeutic and medical services, and encouraging participation in research.
Categories:
01/16/2024
AIR-P Presents: The Role of "Big Data" in Research on Autism & Physical Health: Challenges, Promising Approaches, and Real-World Implications
This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P)-- will feature a collaborative discussion and brainstorming session hosted by the AIR-P Big Data Working Group, a newly formed interdisciplinary committee focused on using large datasets to improve equity and health for autistic individuals. This discussion will include insights from AIR-P research node leaders regarding the highest priority areas for big data work in autism as well as discussions on key issues in big data (e.g., participatory approaches, real-world implications, and others).
Categories:
12/12/2023
AIR-P Presents: Health outcomes for sexually-diverse and gender-diverse autistic adults
We know that a substantial number of autistic people are sexually-diverse (e.g., gay, lesbian, bisexual, pansexual, asexual) or gender-diverse (e.g., transgender, gender non-conforming), but what do we know about their mental and physical health? Dr. Graham Holmes will discuss the current state of the literature and present findings from two studies that used innovative methods to learn about health disparities for this population. The first study investigated suicidality disparities among autistic versus non-autistic sexually-diverse and gender-diverse youth using a U.S. national sample recruited via social media. The second study investigated mental and physical health disparities more broadly among autistic sexually-diverse and gender-diverse adults versus cisgender heterosexual adults using electronic health record data. Clinical implications will be discussed.
Categories:
11/14/2023
AIR-P Presents: The LBGTQ Community and Autism: A Community Study of Queer and Transgender Autistic Adults
This webinar will focus on the methods and preliminary results of a qualitative, community-engaged study with queer and transgender autistic adults. We will chart how we partnered with 19 community organizations working with this population to conduct open-ended, in-depth interviews with 65 adults in the Philadelphia area. Preliminary findings address nonbinary identity, self reported autism, health and wellbeing, community engagement, and social support. We are using these findings to structure autistic-led programming for autistic adults to improve wellbeing.
Categories:
11/06/2023
AIR-P Research Day at AUCD 2023 Conference
The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its sixth plenary Research Day at the AUCD 2023 Conference in November 2023. This event is part of the AUCD Conference and will emphasize research led by autistic researchers and collaborators, highlighting content related to the physical health and overall well-being of autistic individuals. This AIR-P Research Day will include a poster presentation symposium and two concurrent sessions. AIR-P will also be present at the AUCD 2023 conference via two exhibit tables. This in-person event is open to all.
Categories:
10/24/2023
AIR-P Presents: IDD Curricula in the Health Professions: Current State and Future Directions
While most medical students report that they want to learn more about seeing patients with intellectual and developmental disabilities (IDD) and feel underprepared to serve these patients when they graduate from their programs, the actual amount and quality of IDD-focused curricular content in medical and dental school curricula greatly varies between institutions. This webinar will present data from a recent WITH-funded research project examining the development of inclusive IDD curricula at medical and dental schools, and will also introduce an AADMD initiative, NICHE medical, that coordinates and supports medical schools who are working to develop innovative, community-engaged IDD curricula.
Categories:
09/19/2023
AIR-P Presents: Health of Autistic People During the COVID-19 Pandemic: National Autism Indicators Report Findings
This webinar will explore findings from the latest National Autism Indicators Report (NAIR) focused on health care in autistic people during the COVID-19 pandemic. This report examines the impact of the COVID-19 pandemic on health and health care among autistic children and adults. To build a comprehensive picture, we included various data sources.
Categories:
08/15/2023
AIR-P Neurology Node Updates: Examining co-occurring neurologic conditions in autism across a lifespan
Dr. Rujuta Bhatt Wilson will share Neurology Node Updates from the AIR-P project. The webinar will include updates on intervention studies, examining neurologic conditions in genetic Neurodevelopmental syndromes, and examination of the prevalence of co-occurring neurologic and neurodegenerative diseases in autism in adulthood.
Categories:
07/18/2023
AIR-P Presents: Autistic Stakeholder's Perspectives of a Flourishing Survey Measure
Dr. Samantha Ross will share updates on a current AIR-P Scholars Project that has engaged autistic youth and their parents as stakeholders to evaluate the construct validity of flourishing items within the National Survey of Children's Health.
Categories:
07/11/2023
AIR-P Research Day at Autism CARES 2023
AIR-P Research Day at CARES 2023 Full Agenda
[download]
Categories:
06/20/2023
AIR-P Presents: Genomics for the well-being of autistic people: challenges and recommendations
In this webinar Dr. Heini Natri will discuss the topic that equitable and just genetic research requires an examination of the ethical questions pertaining to marginalized communities. Many have expressed concerns over current practices of autism-related genetic research, urging the field to shift towards practices that ensure benefits and protect against harm. As an interdisciplinary working group of autistic and non-autistic individuals, we have developed guidelines for leveraging genetics to enhance the quality of life, health, and autonomy of autistic persons.
Categories:
05/16/2023
AIR-P Presents: Sound Sensitivity in Autistic Adults: Clinical Manifestations and Correlates
In this webinar, Zack Williams will discuss the different types of sound sensitivity that exist in autistic people and present new research findings on the manifestations, clinical correlates, and neural/perceptual underpinnings of these sometimes debilitating conditions.
Categories: