RESEARCH

<<First  <Back    61 to 74 of 74  

07/28/2023

2023 MIND Summer Institute on Neurodevelopmental Disabilities

This year's theme is "Inclusion and Belonging: Powerful Discussions to Engage our Community." This event focuses on meaningful inclusion of individuals with intellectual and developmental disabilities in many areas. Professionals, family members, disability advocates, community members and students are invited to attend. Sessions will cover topics such as social inclusion and inclusion in medical, education, housing and employment contexts.
pdf File Event Flyer [download]

08/15/2023

AIR-P Neurology Node Updates: Examining co-occurring neurologic conditions in autism across a lifespan

Dr. Rujuta Bhatt Wilson will share Neurology Node Updates from the AIR-P project. The webinar will include updates on intervention studies, examining neurologic conditions in genetic Neurodevelopmental syndromes, and examination of the prevalence of co-occurring neurologic and neurodegenerative diseases in autism in adulthood.

09/19/2023

AIR-P Presents: Health of Autistic People During the COVID-19 Pandemic: National Autism Indicators Report Findings

This webinar will explore findings from the latest National Autism Indicators Report (NAIR) focused on health care in autistic people during the COVID-19 pandemic. This report examines the impact of the COVID-19 pandemic on health and health care among autistic children and adults. To build a comprehensive picture, we included various data sources.

09/27/2023

2023 Del Monte Institute for Neuroscience & UR-IDDRC Symposium Uncovering the Mysteries of Intellectual & Developmental Disabilities: A Scientific Exploration

This symposium aims to bring together experts from diverse fields to discuss and debate the latest discoveries in neurodevelopmental processes across species, shedding light on the brain's systems-level function and dysfunction.
pdf File Event Flyer [download]

10/24/2023

AIR-P Presents: IDD Curricula in the Health Professions: Current State and Future Directions

While most medical students report that they want to learn more about seeing patients with intellectual and developmental disabilities (IDD) and feel underprepared to serve these patients when they graduate from their programs, the actual amount and quality of IDD-focused curricular content in medical and dental school curricula greatly varies between institutions. This webinar will present data from a recent WITH-funded research project examining the development of inclusive IDD curricula at medical and dental schools, and will also introduce an AADMD initiative, NICHE medical, that coordinates and supports medical schools who are working to develop innovative, community-engaged IDD curricula.

11/06/2023

AIR-P Research Day at AUCD 2023 Conference

The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its sixth plenary Research Day at the AUCD 2023 Conference in November 2023. This event is part of the AUCD Conference and will emphasize research led by autistic researchers and collaborators, highlighting content related to the physical health and overall well-being of autistic individuals. This AIR-P Research Day will include a poster presentation symposium and two concurrent sessions. AIR-P will also be present at the AUCD 2023 conference via two exhibit tables. This in-person event is open to all.

11/14/2023

AIR-P Presents: The LBGTQ Community and Autism: A Community Study of Queer and Transgender Autistic Adults

This webinar will focus on the methods and preliminary results of a qualitative, community-engaged study with queer and transgender autistic adults. We will chart how we partnered with 19 community organizations working with this population to conduct open-ended, in-depth interviews with 65 adults in the Philadelphia area. Preliminary findings address nonbinary identity, self reported autism, health and wellbeing, community engagement, and social support. We are using these findings to structure autistic-led programming for autistic adults to improve wellbeing.

12/12/2023

AIR-P Presents: Health outcomes for sexually-diverse and gender-diverse autistic adults

We know that a substantial number of autistic people are sexually-diverse (e.g., gay, lesbian, bisexual, pansexual, asexual) or gender-diverse (e.g., transgender, gender non-conforming), but what do we know about their mental and physical health? Dr. Graham Holmes will discuss the current state of the literature and present findings from two studies that used innovative methods to learn about health disparities for this population. The first study investigated suicidality disparities among autistic versus non-autistic sexually-diverse and gender-diverse youth using a U.S. national sample recruited via social media. The second study investigated mental and physical health disparities more broadly among autistic sexually-diverse and gender-diverse adults versus cisgender heterosexual adults using electronic health record data. Clinical implications will be discussed.

01/16/2024

AIR-P Presents: The Role of "Big Data" in Research on Autism & Physical Health: Challenges, Promising Approaches, and Real-World Implications

This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P)-- will feature a collaborative discussion and brainstorming session hosted by the AIR-P Big Data Working Group, a newly formed interdisciplinary committee focused on using large datasets to improve equity and health for autistic individuals. This discussion will include insights from AIR-P research node leaders regarding the highest priority areas for big data work in autism as well as discussions on key issues in big data (e.g., participatory approaches, real-world implications, and others).

02/21/2024

AIR-P Presents: The Intersection of Race and Autism Spectrum Disorder

This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P) -- will focus on: The intersection of race and ASD. The webinar will include a presentation by Dr. Sophie Molholm on the findings from a multisite study on autism in African Americans focused on increasing diversity in genetics studies and understanding reasons for later age of diagnosis in this group as well as a collaborative discussion led by Dr. Lisa Shulman, a clinical leader of a large, diverse inner-city Developmental Center in concert with a parent of children with ASD and an Autistic Adult on practical strategies for supporting a diverse ASD population and their families in accessing diagnosis, therapeutic and medical services, and encouraging participation in research.

03/19/2024

AIR-P Presents: Skillflix: A Community-Engaged Process to Create Short Videos that Enhance Skills Across Populations

In this webinar, the research team will tell the story of a community-engaged, academic-industry partnership to create online video libraries for autistic young adults and parents of autistic youth. Join the conversation about community-engaged research, sexuality, and academic-industry-partnerships for enhancing health among autistic people across the lifespan.

03/28/2024

2024 Annual Disability Statistics Conference: Surveys, Statistics, and Identity

fromhttps://www.researchondisability.org/annual-event
On Thursday, March 28, 2023 -in a one-day hybrid event in Washington, DC and via Zoom- The Center for Research on Disability will be releasing the Annual Disability Statistics Collection, which fills critical gaps in national, state, and historic data related to people with disabilities by synthesizing complex data from numerous U.S. federal agencies into accessible formats. The Conference will also include two sessions addressing the latest in disability statistics, including survey methods and how disability is defined in national surveys.

04/16/2024

AIR-P Presents: Introduction to Plain Language Writing for Academics and Researchers

This webinar, offered by the Autistic Self Advocacy Network in partnership with the Autism Intervention Research Network on Physical Health (AIR-P), will provide an overview of plain language writing for people who may be more used to writing in academic language. Attendees will learn the principles of plain language writing and have a chance to put them into practice with interactive exercises. There will also be time for questions and answers.

07/22/2024

AIR-P Research Day at Autism CARES Meeting 2024: Translating Research to Community Impact

The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its 7th semi-annual Research Day on July 22, 2024, in conjunction with the 2024 Autism CARES Meeting. This virtual event is an opportunity to highlight research related to the physical health and overall well-being of autistic individuals. The 2024 theme is "Translating Research to Community Impact" and will feature poster presentations from across the nation. This virtual event is open to all.
pdf File RD@CARES24 RFP.pdf [download]
<<First  <Back    61 to 74 of 74