RESEARCH

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05/19/2020

Calling All Minority-Serving Research Centers within the AUCD Network!

The Langston University Rehabilitation Research and Training Center will use the study findings to highlight the visibility of high-quality research created through MSI-based research centers. The LU-RRTC will also use study findings to make recommendations to policymakers, NIDILRR, and other federal research funding agencies, and other stakeholders on how to address identified challenges.

08/03/2020

Supporting Families in the Post-COVID World: Using Technology to Maximize Reach and Remain Connected

During this webinar, speakers from two large rural states will describe approaches they've used to stay connected and support families during the COVID-19 pandemic. Their use of distance technology will be highlighted as a means of reducing exposure to COVID-19 and in maximizing the reach of their efforts. The programs featured are the University of Wyoming's ECHO for Families and the Autism Family Support Program at the University of South Dakota Center for Disabilities.

02/09/2021

Virtual Release of the Annual Disability Statistics Compendium

fromhttps://unh.zoom.us/webinar/register/WN_XzukrzsrTuKEXU-Xl368FA?mc_cid=b130f6f966&mc_eid=35d95f5b31
DSTATSRRTC at the University of New Hampshire's Institute on Disability is hosting a four-part virtual release of the Annual Disability Statistics Compendium on February 9-12, 2021, 12:00-1:15 pm. During this webinar series, experts will present three web-based tools (Compendium, Supplement, and State Report) that make finding and using disability statistics easier for individuals working on legislative and other matters relating to persons with disabilities. In addition, we will highlight two special topics: implications of COVID-19 for people with disabilities, and disability and African Americans.

02/16/2021

AIR-P Presents: COVID-19 Vaccine, I/DD Populations, and the Needle Anxiety Program at UCLA

Immunizations are crucial to protect all people from vaccine-preventable illnesses. Some studies suggest that autistic individuals have lower rates of immunizations, for reasons that are not entirely clear. Multiple organizations have called for individuals with intellectual and developmental disabilities to be prioritized in COVID-19 vaccination distribution. Vaccine hesitancy and needle phobia are two likely contributors towards lower vaccination rates. One of the initial intervention projects from the AIR-P focuses on reducing needle anxiety and improving immunization rates among autistic individuals. This intervention was developed as a pilot to address needle anxiety in conjunction with Pfizer and the American Academy of Pediatrics (AAP) for use in an Improving Pediatric Immunization Care collaborative but has not been widely implemented. The AIR-P network provides an opportunity to implement this needle anxiety intervention in multiple sites. Measures of success for this intervention would include vaccination rates among autistic individuals and satisfaction with the vaccine administration process.

04/20/2021

AIR-P and ARRB Present: Conducting Quality Participatory Autism Research

In this webinar, the AIR-P Autistic Researcher Review Board (ARRB) will discuss how autism researchers can respect and include the autistic community in their work from participants to co-researchers. ARRB researchers will discuss autistic experiences with participatory research approaches that include diverse autistic people from across the autism spectrum as members of research teams. Furthermore, ARRB researchers will present concrete recommendations about how participatory research practices can be implemented. Considerations around appropriate and respectful autism terminology will be addressed.

05/21/2021

AIR-P Presents - Brain and Body in Motion: Understanding and supporting motor dysfunction in Autism

Motor dysfunction are prevalent and pervasive in autistic individuals. However, due to the heterogeneity of motor dysfunction and the categorization in DSM-5 as an associated deficit, this condition often goes undetected and undertreated. Improving our understanding of motor dysfunction in autism is important so that we can adequately screen for these difficulties and ultimately provide the best interventions.

06/23/2021

Opportunities with the National COVID Cohort Collaborative

This informational session about the National COVID Cohort Collaborative (N3C) will discuss the largest limited electronic health record data set in the US and opportunities for collaborative research within the AUCD network as part of the Lifespan Disability Domain. The N3C aims to improve the efficiency and accessibility of analyses using a very large patient-level COVID-19 clinical dataset and demonstrate a novel approach for collaborative pandemic data sharing.
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08/23/2021

Information Session - AIR-P Scholars & Pilot and Feasibility Funding Program

This is an information session for the Autism Intervention Network on Physical Health (AIR-P) application for the AIR-P Scholars & Pilot and Feasibility funding program.The goal of the program is to launch the next generation of researchers seeking to promote the health and well-being of autistic individuals across the lifespan.The session will include an overview of the applications requirements along with time for Q&A.

09/24/2021

AIR-P Presents: Genetics Care in Adults and Children with Autism and Neurodevelopmental Disabilities

Current advances in our knowledge of the genetic contributions to physical health and its integration into medical care have generated both opportunities for advancing healthcare and critical gaps in knowledge on its impact. We will introduce the landscape of genetic advances for individuals with neurodevelopmental differences, from diagnostics to ancestry and predictive risk. We will also explore the current state of genetics within healthcare, the role of early diagnosis on outcomes, opportunities for implementation of individualized interventions, and discuss future directions for this advancing field.

10/19/2021

AIR-P Presents: Epilepsy in Autism

This presentation will provide an overview of the incidence and pathophysiology of epilepsy in patients with autism spectrum disorders, as well as special considerations in treatment.

11/06/2021

Spina Bifida Research Workshop

On November 6, 2021, from 12-4 pm ET, the Spina Bifida Association (SBA), in collaboration with the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC), will convene a workshop on the first Community-Centered Spina Bifida Research Agenda.

01/19/2022

IACC Full Committee Virtual Meeting

fromhttps://iacc.hhs.gov/meetings/iacc-meetings/2022/full-committee-meeting/january19/.
The Interagency Autism Coordinating Committee (IACC) will be holding a virtual full committee meeting on Wednesday, January 19, 2022 from 10:00 a.m. to 5:00 p.m. ET. The virtual meeting is free and will be accessible to the public via NIH Videocast. The Committee welcomes public comments, which are due by Friday, January 7, 2022 at 5:00 p.m. ET.

03/15/2022

AIR-P Presents: A to Zzzzs of Sleep and Autism

Dr. Rujuta B. Wilson provided education on sleep difficulties in autism in this webinar. The following areas were addressed: (1) prevalence and diagnosis of sleep difficulties in autism, (2) the current knowledge in the field of why sleep difficulties occur in autism, and (3) behavioral and pharmacologic treatment for sleep difficulties.

04/19/2022

AIR-P Presents: Autism Acceptance Month Double Webinar

This month, AIR-P celebrated Autism Acceptance Month with two webinar presentations! We held a back-to-back webinar session as follows. 12-1pm PT / 3-4pm ET: The Intersection of Autism, Health, Poverty and Racial Equity (2022 National Autism Indicators Report (NAIR)). This presentation will be provided by Dr. Lindsay Shea and Dr. Kristy Anderson from Drexel Autism Institute. 1-2pm PT / 4-5pm ET: Why Studying Puberty in Autism Research Matters. This presentation will be provided by Dr. Jenny Mai Phan, postdoctoral fellow at University of Wisconsin Madison.

05/17/2022

AIR-P Presents: Tele-therapy for autism during COVID-19: A survey of parents in Southern California

In this webinar, Dr. Kristen Choi will discuss emerging evidence on using telehealth to deliver therapy to children with autism spectrum disorder (e.g., speech therapy, occupational therapy, applied behavior analysis). Using data from a recent survey of parents in Southern California, the mental health impact of the pandemic on parents and their children will be discussed, as well as how COVID-related stress affected perceptions of telehealth.
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