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Mitochondrial Medicine 2009: Capitol Hill

Each year, the United Mitochondrial Disease Foundation brings together clinical and basic science researchers sharing an interest in mitochondria from all over the world.


National Database for Autism Research (NDAR) Overview for Research Investigators

As indicated in the March 19th, 2009 Notice in the NIH Guide, all ASD researchers are strongly encouraged to share their data using NDAR. To support this announcement, NDAR has scheduled webinars focusing all aspects of NDAR, including data submission, data definition, and how NDAR can be used to communicate research results with other researchers.


Webinar- Autism Spectrum Disorders Research and Resources at NICHD

This webinar will provide an overview of the Autism Centers of Excellence Program at NICHD, including the research sites and projects; research and research resources funded by the NICHD Intellectual and Developmental Disability Branch (IDD); and a discussion about integrating aspects of the HRSA/MCHB CAA mission and the NICHD ASD mission into a common effort towards addressing Autism Spectrum Disorders and opportunities for collaboration


Topical Webinar: A Participatory Approach to Adapting Measures of Health and Violence for Use with People with Developmental Disabilities

This topical webinar features Rosemary Hughes and Marsha Katz of The University of Montana Rural Institute on Disabilities.  Their presentation will discuss how to include and capture people with disabilities in research and studies, with specifc attention to health and violence measures.



Latent Variable Analysis in Maternal and Child Health: A Practical Application of Structural Equation Modeling and Latent Growth Models; MCHB's EnRICH Webinar Series

This interactive webinar will highlight a statistical method used in maternal child health research. Specifically, the session will describe practical application of structural equation modeling and latent grown models.


Measurement Selection and Development for Maternal and Child Health Research: MCHB's EnRICH Webinar Series

The webinar will focus on the following two objectives: 1. To determine best practices for the selection of measurement instruments in maternal-child health research; 2. To understand methods for measure development in maternal-child health research.


2012 AUCD Conference: Innovating Today, Shaping Tomorrow


Thank you to all who attended and participated in the 2012 AUCD Conference! We had a great time learning and sharing the newest in promising practices and innovations that shape the lives of people with disabilities and their families through research, policy, education, and service. We continue to post additional session materials, photos, and wrap up items on the conference website and in the app, so check back often, and save the date for Nov 16-20, 2013.


2014 AUCD Conference

The 2014 AUCD Conference will be held at the Washington, DC, Renaissance Hotel.


The Fifteenth Annual Multiple Perspectives on Access, Inclusion & Disability

The Multiple Perspectives conference is an ongoing exploration of disability as a reflection of the human condition seen through multiple lenses (theory, discipline, social constructs, personal experience, shared experience...). Presentations should encourage conversations across the typical divisions, boundaries and disciplines. Proposers are encouraged to consider parallels, distinctions and intersections with race, gender and ethnicity. This year's conference will celebrate the 25th anniversary of the ADA -out progress and the journey ahead. What have we learned? Where are we going? What are the important questions for the next 25 years?


2015 AUCD Conference

The 2015 AUCD Conference will be held at the Washington, DC, Renaissance Hotel.


How to Increase the Research Capacity of Your Center

Do you have a vision to develop your center as a producer of high-impact research? Do you believe your center would benefit by developing an increased capacity for scholarly research? Are you interested in learning from other centers in the network that have recently added capacity to their research operations? Please join this CORE webinar presented by Drs. Andrew Roach of Georgia State University's UCEDD/LEND and Parthy Dinora of Virginia UCEDD. They will share their experiences and approaches and provide some logical paths you may wish to emulate on the journey towards building a strong center for research. We look forward to your participation.


Policy to Practice: Falls in Adults with Intellectual Disabilities

Falls occur at a younger age for adults with intellectual disability than the general population and are a major cause of serious injury and hospitalization. This webinar, Falls and Intellectual Disabilities, will summarize the findings from a large-scale study called the Longitudinal Health and Intellectual Disability Study or LHIDS on the prevalence of falls, a comparison with the general population, and the risk factors for falls in adults with intellectual disabilities. Policy implications and recommendations will be discussed.
pdf File Presentation Slides [download]


The National Autism Data Center: Building Gauges to Measure National Progress on Transition Outcomes

There is a high rate of unemployment and underemployment among individuals on the autism spectrum. Paul Shattuck, founder of the National Autism Data Center, will describe the Center's activities with special emphasis on national indicators related to transition. Participants will learn about the range of information products available through Dr. Shattuck's center and plans for additional transition research projects. Shattuck's team reports that young adults on the autism spectrum often have worse employment outcomes in the first few years after high school than do peers who have other types of disabilities. Ms. Laura Ivanova Smith, UW LEND Advocate Faculty, will describe the support she received from her mother while transitioning out of high school and into college.
pdf File Webinar Presentation Slides [download]


Nothing About Us Without Us: Including People with Intellectual and Developmental Disabilities in Research

This webinar is the result of a collaboration between the AUCD Research and Evaluation and Leadership in Advocacy Councils. The focus of the presenters will be on research methods and models that are inclusive; that is, research practices that include individuals with disabilities and/or family members as contributing members of the research team. Both presenters have extensive experience in disability research utilizing these approaches."
pdf File Presenation Slides [download]


2016 Annual Disability Statistics Compendium & State of the Science Conference

This conference aims to bring together scientists, administrators, and staff from disability programs, and leaders from disability policy and advocacy communities to discuss the state of disability statistics and how to move the field forward.
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