Taking Charge of My Health Care


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Archived Recording
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Tuesday, June 11, 2019
12:00 p.m. - 1:00 p.m. PM
Location: Webinar

About this Webinar

The Oregon Self-Advocacy Coalition, the Oregon Office on Disability and Health and the University Center of Excellence on Developmental Disabilities is excited to share their newly released, free on-line toolkit, called “Taking Charge of My Health Care”.

The toolkit was designed for and by people with intellectual and developmental disabilities (IDD) in order to help them better advocate for their own health and health care needs. The toolkit is comprised of 9 modules on various health topics and each module includes a corresponding packet and worksheet, PowerPoint and video. The toolkit is designed to be used by people with IDD and/or their support professionals, on an individual basis and/or in a group setting, i.e., a workshop.

The project fulfills the gap for the much needed health care advocacy resources for people with IDD and their care providers. People with disabilities need health care and health programs for the same reasons anyone else does – to stay well, active, and a part of the community. Individuals experiencing IDD often encounter difficulty in obtaining the healthcare services that they need, and require health care that meets their needs as a whole person, not just as a person with a disability. In addition, people with disabilities experience higher rates of chronic disease and less participation in healthy behaviors that help prevent or manage such conditions.


Lindsay Sauvé is the Evaluation and Program Manager for the University Center for Excellence in Developmental Disabilities at Oregon Health & Science University (OHSU) in Portland, Oregon. Her work involves leading the evaluation of the OHSU UCEDD’s core grant, which includes strategic planning, developing performance metrics, measuring program progress, and writing and disseminating program results. She also develops and evaluates outcome-based model programs for community members with disabilities, with a focus on health promotion for transition-age youth.


Michael Steen is a lifetime Oregonian, Michael Steen attended Linfield College and has had a career in banking. He is currently a Small Business Underwriter for Beneficial State Bank. Outside of work, Michael is engaged in various community activities, including Rotary, serving on United Cerebral Palsy Oregon Board since 2009 and being a Member of OSAC's Health Care Committee. Experiencing cerebral palsy, Michael's philosophy is “CP has been part of my life since day one, providing a certain amount of richness to embrace and a unique perspective to live from.” Impacted by moderate physical limitations, Michael structures his life to include regular low impact exercise such as urban walking & hiking, swimming and riding his 3 wheel recumbent around town. “I’m a bit of a health nut. Possibly this is due to having CP or possibly it is simply actually listening to Mom’s advice, but whatever motivating reason is, I’m pleased that a healthy diet (and a physically active lifestyle) has kept me able to participate in all that life has to offer.”

Erin Taylor  is the Health Promotion and Outreach Coordinator for the OHSU Oregon Office on Disability and Health and for the UCEDD. Taylor’s work focuses on creating accessible, universal and age-appropriate materials for trainings, workshops, and curricula for both young adults and adults with intellectual and developmental disabilities. She is a Healthy Lifestyles Master Trainer and a certified Lay Leader on several evidence-based programs including the Self-Management Resource Center programs Chronic Disease Self-Management, Chronic Pain Self-Management, and Diabetes Self-Management as well as the Diabetes Education and Empowerment Program and the Diabetes Prevention Program.