Hearing our Voices: Treatment Needs of Young Adults with IDD and Mental Health Conditions


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Archived Recording
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Thursday, April 11, 2019
1:00 p.m. - 2:00 p.m. ET
Location: Webinar

About this Webinar:

The Intellectual and Developmental Disability Mental Health (IDD-MH) Research Partnership was created to learn about the experiences and needs of young adults with IDD-MH while accessing and using mental health services. Our national partnership consists of six young adults, five professionals, researchers at Boston University, and representatives from Self Advocates Becoming Empowered and The Arc of the United States. We designed and conducted a web survey with young adults with IDD-MH ages 18-30 living in the United States We also completed four national storytelling sessions that included young adults with IDD-MH and parents. We identified eight priority topic areas for young adults with IDD-MH that will be reviewed in this webinar. These priorities highlight the importance of community-based options, choice, autonomy, and control for young adults with IDD-MH. We will also share our recommendations to advance research, policy, and practice in areas important to young adults with IDD-MH.



Micah Peace is an Autistic, multiply disabled advocate and community organizer from Louisville, KY currently working as a Community Engagement & Advocacy Specialist at Louisville's Center for Accessible Living. Grounded in an Intersectional, interdisciplinary approach as well as their own personal experiences of Disability, Micah strives to foster collaboration between Disability service providers and the Disability Community to promote true access, inclusion, and empowerment through creativity, acceptance, and collaboration. They are a founding member of the Kentuckiana Autistic Spectrum Alliance (KASA), an affiliate group of the Autistic Self-Advocacy Network serving the Louisville Metro Area, including Southern Indiana.


Janet Shouse works at the Vanderbilt Kennedy Center in Nashville, TN, as the program coordinator for the IDD Toolkit, www.iddtoolkit.org, an online resource for medical professionals to better serve adults with intellectual and developmental disabilities, and she serves as the liaison to individuals with disabilities and their families for TennesseeWorks, a partnership with state agencies and disability organizations to improve the employment landscape for people with disabilities in Tennessee. She is also the parent of three adult children, including a son with autism, ADHD, anxiety, depression and an intellectual disability.


Destiny Watkins has an intellectual disability and is also wheelchair bound. Her struggle with many issues got her involved with advocating for changes, and being a voices for others. She has been involved with IDD-MH Research Partnership and represented the panel at a SAMHSA expert panel meeting in Washington DC, and is doing a few different break out sessions at the SNTI National Conference.


Jessica Kramer is an Associate Professor at Boston University, and is the organizer of the IDD-MH Research Partnership. Her research centers around the involvement of youth and young adults with disabilities in research and intervention planning, the development of theory-based assessments and interventions, and disability rights and culture.