pdf File Getting Involved in Research Final.pdf (1,026KB) [download]

pdf File Presentation 9 18 13 final.pdf (1,961KB) [download]

Archived Recording
In order to view the webinar presentation, please click on the webinar icon below.

Monday, September 23, 2013
2:00pm ET - 3:30pm ET
Location: webinar

About the Webinar

This webinar was a collaborative effort among CORE members and individuals with intellectual disabilities.  The intent was to provide participants with an overview of ways to address and overcome some of the challenges faced when conducting research with individuals with intellectual disabilities. 


Kelly Roberts, PhD: Dr. Roberts is the Chair of AUCD's Council on Research and Evaluation. She is an associate professor at the University of Hawaii at Manoa, Center on Disability Studies. Her research interests are broad and include multicultural education and assistive technology.


Karen Ward, EdD: Dr. Ward is a Professor of Psychology at the University of Alaska Anchorage and the Director of the University of Alaska Anchorage, Center for Human Development's UCEDD and LEND. Dr. Ward has over 30 years of professional experience working in the field of developmental disabilities and mental health, with both and children and adults. She was the Executive Director of a community-based agency providing supported employment and living services for 15 years and the founder of the Center for Psychosocial Development providing specialized clinical services for individuals with cognitive disabilities who exhibit high -risk and sexual offending behavior. She has published numerous articles on both offending and victimization of people with intellectual and developmental disabilities.  

Roxann Lamar MA: Ms. Lamar holds a master's degree in Clinical Psychology with an emphasis on research. She has 14 years of professional experience at the University of Alaska Anchorage Center for Human Development UCEDD working on numerous evaluation projects, with particular skill interpreting results using both quantitative and qualitative data and writing reports for dissemination. Examples of recent work include annual evaluation of family outcomes for Alaska's Early Intervention program, and diverse evaluation services for Alaska's Aging & Disability Resource Center.

Virginia Miller, DrPH: Dr. Miller is an Assistant Professor of Public Health in the University of Alaska Anchorage Department of Health Sciences and the LEND Training Director. Dr. Miller has over 25 years of experience in the field maternal and child health with expertise in disabilities and public health issues and genetics. Her research interests include preventive screening for women with disabilities and health promotion for individuals with intellectual disabilities.

Glenn Fujiura PhD; Dr. Fujiura is a Professor of Human Development in the Department of Disability and Human Development (DHD) and Director of the College's PhD Program in Rehabilitation Sciences. He has returned full time to DHD after serving as interim Dean and Associate Dean for the College. His research includes studies of the fiscal structure and demographics of the disability service system, on family policy, evaluation of long-term care services, poverty and disability, ethnic and racial issues in disability, and on the statistical surveillance of disability.  Current research projects include a methodological study of the reliability and validity of self-reported health among persons with intellectual disabilities, secondary analysis of the shifting demographics of family structure and support, a latent class modeling analysis of knowledge utilization by recipients of ADA related technical assistance, and demographic analysis of health care disparities among Americans with disabilities. Dr. Fujiura just completed service on the National Academy of Sciences Committee on the External Evaluation of the National Institute on Disability and Rehabilitation Research and is the editor-in-chief of the journal, Intellectual and Developmental Disabilities.

Elena Andresen:  Dr. Andresen is Professor, Division of Epidemiology, in the Department of Public Health & Preventive Medicine; Chief, Disability & Health Research Group, Institute on Development & Disability at OHSU; and Director, Oregon Office on Disability & Health at OHSU. Dr. Andresen's training is in epidemiology as well as health services research. Her research includes a focus on survey and measurement instruments and methods, including self and proxy-reports of health and quality of life.  She has contributed to over 100 peer-reviewed publications and engaged in over 30 funded research projects and center, with a longstanding attention to disability and aging populations.

Edlynne Sanchez: Ms. Harrell-Sanchez is a student at Honolulu Community College in her third semester. She graduated from Farrington High School in 2012. During her time in high school and her work with her church, Ms. Sanchez has participated in a number of community projects including beach and park cleanups, fundraisers, and citizen patrol. Edlynne is also a participant in the Hawaii Dual Enrollment Project which supports individuals with ID to succeed in postsecondary education. This project collects data from participants related to their participation. 

For additional information on inclusive practicies, visit: here or contact Meaghan McHugh.