Jan Moss, Family Advocate

Center for Interdisciplinary Learning and Leadership
College of Medicine
University of Oklahoma Health Sciences Center
PO Box 26901, ROB 342
Oklahoma City, OK 73190-3042
Phone: 405-271-4500 41004
Email: [email protected]
Login to Update Your Profile
Last Updated: October 06, 2010

Jan Moss

Leadership Administrative Staff: LEND Core Faculty, Family Discipline
Family Partners, Title V Contract Manager, Child Study Center, OUHSC
Primary Activity Coordinators: Parent/Consumer
Discipline Coordinators: Parent/Family Resources
Family Faculty
Specialty Resource Contacts: Health Transition,
Family Support
Family/Professional Partnerships
Project/Program/Clinic Contacts: Community Leadership
Family Leadership
Consumer Advisory Council
University Affiliated Developmental Disabilities Network (UADDN)
Discipline(s): Family Discipline
AUCD Council Membership: Council on Community Advocacy
Research: Community Capacity Building for Children, Youth and Individuals with Disabilities and their Families; Family Supportive Health Care, Comprehensive, Coordinated Services for families; National Family Faculty Programs; Personal Preference Indicators Research Project


 Position; Director of Community Leadership and Advocacy    

Professional Experience and Appointments Summary

1. University Center for Excellence: Core Family Faculty, OK LEND, Co-Teach OU College of Nursing Course, "Human Experience of Disability"; Contract Mgr. OUHCS/DDHS/MCH Title V Family Partners Project

2. Keynote Speaker, Presenter: Summary  * Estimated 90 Keynotes/Presentations in 22 states and Canada from to 2010: Humor As a Coping Mechanism, Preference Indicators, Health Transition, Employment Support Indicators, Working with Families, Caregiver Supports, Inclusion, Early Intervention, Families as Leaders, Families as Advocates

3. Chair, Oklahoma Family Leadership Council, Family Supportive Health Care Network

4. Senate Finance Committee witness, testimony on behalf of "Lifespan Respite Care Act" 2004

5. Parent Training and Information Project: Parent Training and Counseling, Education

6.  Parent and Family Support Group Organizer - Volunteer and Speakers Board Organizer

Publications: Promising Practices in Family Mentorship, Introduction-Family Centered Health Care, Journal of Family Social Work (Co-author w/LEND Family Discipline Workgroup),                                                                                                                                                                               Primary Author: Child/Personal Preference Indicators, Employment Support Indicators, 3 articles Blood and Thunder, Medicine and Literature. Anthology,  2004 Senate Finance Committee Testimony, Congressional  Record, "Family Expertise" UCE 2000; "Learning the Ability Words," beyond diagnosis, Exceptional Parent Magazine, June 1995, National Education Award letter.