David Helm, PhD

Institute for Community Inclusion/ UCEDD
Boston Children's Hospital
300 Longwood Ave.
Boston, MA 02115
Phone: 857-218-4327
Email: [email protected]
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Last Updated: August 26, 2013

David Helm

Leadership: LEND Director
Discipline(s): Disability Studies
Education: Early Intervention/Early Childhood
Family Studies
Public Health
medical sociology
AUCD Council Membership: National Training Directors' Council
Community Education Directors' Council
No Council Membership
Education: College of William & Mary, BA, 1973

Boston University, MA, 1976

Boston University, PhD, 1981



Director, Leadership Education in Neurodevelopmental and Related Disabilities (LEND)

Director of Interdisciplinary Training, Institute for Community Inclusion (UCEDD), Children's Hospital Boston, and University of Massachusetts Boston

Professional Employment

1979-1983 Senior Research Fellow, Boston Univ., National Institute of Mental Health, Community-Based Training Prog., Boston, MA

1983-1985 Research Coordinator, Rehab. & Family Adjustment for Handicapped Children, Weston, MA

1986-1990 Director, Center for Occupational Awareness & Placement (COAP), Merrimack Special Ed.Collaborative, Chelmsford, MA

1990- Present Director of Interdisciplinary Training, Institute for Community Inclusion, UCEDD, Children's Hospital Boston Univ. Massachusetts Boston

Professional Affiliations

1991- Present Adjunct Associate Professor in Behavioral Sciences, Bentley College, Waltham, MA

1995- Present Adjunct Lecturer in Maternal & Child Health, Harvard School of Public Health, Boston, MA

Selected Funding:

1990- Present LEND Program, US Dept HHS, Maternal & Child Health Bureau,                           Director (since 2009)

1990-present ADD/UCEDD core, US DHHS, Administration on Developmental Disabilities, Interdisciplinary Training Director

1991-1992 Center for Disease Control/Association for Retarded Citizens of the United States Co-PI Stopping AIDS Through Functional Education

1992-1993 Maternal & Child Health Bureau, SPRANS Co-PI Curriculum Guide: Primary Health Care to Early Intervention

1996-1997 The Deborah Munroe Noonan Memorial Fund Co-PI, Learning Together: A Parent/Professional Training Project

1999-2003 US Dept. of Education, OSERS, Leadership Personnel Prep., Project Coordinator

Selected Teaching:

1990- Present MCH-LEND Interdisciplinary CORE Curriculum:accredited at: Boston College, Boston Univ., Brandeis Univ., Emerson College, Harvard Sch of Public Health, Simmons College

1991 - 2010 Bentley University, Department of Sociology, Waltham, MA

1991- 2001  Harvard Medical School - Patient-Doctor I (preceptor)

1991- 2007  Harvard School of Public Health, Dept. of Maternal & Child Health Services for Children with Disabilities (co-teach)

Selective Publications

Hagner DC, Helm DT. Qualitative methods for rehabilitation research. Rehabilitation Counseling Bulletin 1994;37(4):290-303.

Hagner DC, Helm DT, Butterworth J. This is your meeting: A qualitative study of person-centered planning. Mental Retardation 1996;34(3):159-171.

Helm DT, Shishmanian E. Information physicians need about early intervention. Children's Health Care 1997; 26(4):255-264.

Helm DT, Kiernan WE, Miranda S. Employment opportunities: Creative approaches. In: Pueschel, SM., ed. Adolescents with Down syndrome. Baltimore, MD: Paul H. Brookes Publishing Co. 1997:267-283.

Helm DT, Miranda S, Chedd NA. Prenatal diagnosis of Down syndrome: Mothers' reflections on supports needed from diagnosis to birth. Mental Retardation 1998;36(1):55-61.

Friedman S, Helm DT, Marrone J. Caring, control & clinicians' influence: Ethical dilemmas in developmental disabilities. Ethics & Behavior 1999;9(4):349-364.

Butterworth J, Hagner DC, Helm DT, Whelley TA. Workplace culture, social interactions, and supports for transition-age young adults. Mental Retardation, 2000; 38 (4): 342-353.

Helm, DT. The measurement of happiness. American Journal on Mental Retardation, 2000; 105 (5): 32-335

Friedman S, Helm DT, Marrone J. Ethical dilemmas in developmental disabilities. Directions in Rehabilitation Counseling, 2003: 14 (6): 57-69.

Berman L, Freeman L, Helm DT. People and programs. In: Rubin IL & Crocker AC (Eds). Developmental Disabilities: Delivery of Medical Care for Children and Adults (2nd ed.). Baltimore, MD: Paul H. Brookes Publishing Co, 2006.

Friedman SL & Helm DT. End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Washington, DC: AAIDD. 2010.