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AUCD: Poster Symposium: Diagnostic and Clinical Services: Lend Me Your Ears, the Deafness Continuum � Navigating Access to Genetics Education and Services


PDF File Lend me your ears, the deafness continuum_navigating access to genetics education and services [download]


Janice Palumbos, MS, Genetic Counselor
Institute for Disability Research, Policy & Practice, UCEDD/LEND

Other Presenter(s)

Judith Holt, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Karl White, PhD, Director, National Center for Hearing Assessment and Management, Logan, UT, United States;
Joann Bodurtha, MD, MPH, McKusick-Nathans Institute of Genetic Medicine, Baltimore, MD, United States;
Michelle Koplitz, MHS, DSCSHN-MCHB-HRSA, Washington, DC, United States;


Panel members will discuss integration of genetics education and services with Hearing Loss (HL) services and education for children with HL and their families. Objectives: Attendees will be able to: --Describe LEND-AUCD initiatives on hearing loss and genetics education. --Identify unmet needs of families, professionals, and trainees related to genetics services and education for children with various types and degrees of HL. --Discuss strategies to improve education/understanding about HL genetics.

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