AUCD: Poster Session: Self-Determination & Advocacy Leadership: Self-Determination in Adolescents and Adults with FXS: Findings of Self-Report and Parent Perspectives

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Self-Determination in Adolescents and Adults with FXS: Findings of Self-Report and Parent Perspectives [download]

Presenter

Adrienne Villagomez, Trainee
Carolina Institute for Developmental Disabilities, UCEDD/LEND

Description

Involvement in health care decisions is important for promoting healthy behaviors and compliance with treatment. However, there is a paucity of research that addresses how to include individuals with intellectual/developmental disabilities in health-related decisions. Supporting self-determination is one avenue to encourage inclusion in decision-making. This study explores factors associated with self- and parent-reported self-determination in individuals with fragile X syndrome, the leading known inherited form of ID and autism.

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