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AUCD: Welcome Reception and Poster Session: Empowering Individuals and Their Families as Advocates


pptx File AdvocacyATLAS EmpoweringAdvocates.pptx [download]


Sharon Romelczyk, MPA, Program Manager
Genetic Alliance

Other Presenter(s)

James O'Leary, MBA, Genetic Alliance, Washington, DC, United States;
Kathy Brill, MEd, MPS, Parent to Parent USA, Washington, DC, United States;
Beverly Baker, National Center for Family Professional Partnerships (NCFPP) Family Voices, Inc., Albuquerque, NM, United States;


Every day individuals advocate on behalf of themselves or others to communicate needs, share experiences, and take steps to get what they want and need. The online Advocacy Toolkit created by Genetic Alliance, Parent to Parent USA, and Family Voices provides individuals with genetic conditions and their families tools and strategies to advocate to get what they need. Personal stories are included to illustrate positive examples of successful advocacy.

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