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AUCD - Concurrent Sessions

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Tuesday, December 6, 2016 3:00 pm - 4:15 pm

Session Description

The AUCD Conference features over 55 concurrent sessions over four time slots for attendees to learn, share, and network on a variety of topics around disability. Concurrent sessions all last 75 minutes; a session might be one or more presenters leading an interactive discussion or exertise or a panel of several thematically linked presentations with a moderator. Concurrent session presentations will be listed below once the lineup has been determined.


Parental framing of successful rearing of a child with disability into adulthood
Sheryl Holt, PhD, Assistant Professor, University of MOUNT UNION
The facilitator will share thematic findings of nine parents who successfully reared children with childhood disability into adulthood, opening up the floor for in depth exploration of the contrasts and comparisons of their insider perspectives with those of health care and community frameworks and world views.

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Breaking Down Barriers to Inclusive Health Promotion & Recreation through Creative Partnerships: A Rural Approach
Mindy Renfro, PT, PhD, DPT, CPH, Clinical Coordinator, University of Montana Rural Institute, UCEDD
Donna Bainbridge, PT, EdD, Special Olympics International, Missoula, MT, United States;
Meg Whicher, BS, Missoula Parks & Recreation, Missoula, MT, United States;
Molly Blair, BS, New Directions Fitness Center, Missoula, MT, United States, MT - University of Montana Rural Institute, UCEDD;

Recreation oftentimes is not inclusive for adults living with disabilities and/or aging and is key to physical activity. Many evidence-based programs promote healthy living and decrease risk of chronic disease, falls and/or social isolation but are not available to special populations. We will examine a multi-faceted approach to physical activity and health promotion for ALL adults established in rural Montana as a result of creative win-win partnerships.

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Using a Community of Practice Model to impact systems change
Mary Lee Fay, Executive Director, NASDDDS
Mary Lou Bourne &Rie Kennedy-Lizotte &Barb Brent, Masters, NASDDDS, Alexandria, VA, United States;
Sheli Reynolds, PhD, UMKC, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
John Butterworth, PhD, UMASS, Boston, MA, United States;
Parthy Dinora, VCU, Richmond, VA, United States;

NASDDDS has facilitated several successful Community of Practices for systems change: Person Centered Planning, Supported Employment Leadership Network and Supporting Families. This session will describe key factors and lessons learned that have made these models successful.

Supporting Families: Using the LifeCourse Framework to Engage Families and Transform Systems
Erin Leveton, JD, Project Director, DC Department on Disability Services
Sheli Reynolds, PhD, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Wanda Felty, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Erin Leveton, JD, DC Department on Disability Services, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Jane St. John, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

The National Community of Practice for Supporting Families of People with Intellectual & Developmental Disabilities (IDD) involves working with states to develop systems of support for families throughout the lifespan of their family member with IDD. Missouri, Oklahoma and the District of Columbia will share their successes in engaging families to envision and plan a good life for themselves, and to inform state systems throughout the process.

Leveraging Social Capital Through Faith Communities and Faith Based Organizations to Improve Employment and Social Integration for People with Disabilities
Bill Gaventa, Mdiv, Director, Summer Institute on Theology and Disabil, Summer Institute on Theology and Disability
Jo Anne Schneider, Ph.D., George Washington University, Baltimore, MD, United States;
Erik Carter, Ph.D., Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Derek Nord, Ph.D., Bloomington, IN, United States, IN - Indiana Institute on Disability and Community, UCEDD;
Joe Timmons, MSW, MA, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;

Congregations and faith based organizations are portrayed as resources for people with disabilities that presumably offer social capital, employment, volunteering, and relationships with others. How exactly do people with disabilities and their supporters generate social capital through these organizations? What factors influence whether or not these institutions successfully support someone with IDD toward independence? Three related presentations explore these questions.

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New Frontiers in Implementing the National Standards for Systems of Care for CYSHCN: Forging Partnerships to Improve Systems
Sarah McLellan, MPH, Sr. Program Manager, CYSHCN, Association of Maternal and Child Health Programs (AMCHP)
Kate Taft, MPH, Association of Maternal and Child Health Programs (AMCHP), Washington DC, DC, United States;

This interactive session is designed for professionals who serve CYSHCN and who are dedicated to improving the system of care. This session will provide an overview of the revised National Standards for Systems of Care for CYSHCN, current state use of the Standards, and new opportunities for training centers and university partners interested in adopting the Standards through structured group discussions using new Standards Implementation Guides.

Navigating Change: Authentic Youth Leadership Development
Jack Brandt, MS, Disability Policy Specialist, Partnership for People with Disabilities, UCEDD/LEND
Jack Brandt, MS, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND;
Maria Rivas, Woodbridge Senior High School, Woodbridge, VA;
Aaron Miller, Radford High School, Radford, VA;
Martha Hicks, MA, Northumberland Public Schools, Heathsville, VA;
Cameron Wilmer, Longwood University, Charlottesville, VA;

Do we allow youth with disabilities to truly become leaders? We did! Join us to learn from authentic leaders about the inception and design of The Inclusion Project. We will share tools and processes used to support their engagement in developing products, skills that will aide them in future postsecondary education and employment settings, and outcomes of The Inclusion Project pilots held in 5 different schools in Virginia.

Play it Forward 3?Mentoring Leadership for Change
JoAnn Yuen, EDD, Associate Director, Center on Disability Studies, UCEDD/LEND
Joel Nudi, MBA, PMP, Rutgers, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Rhonda Eppelsheimer , MSW, Portland, OR, United States, OR - Oregon Institute on Development & Disability, UCEDD/LEND;

Designed as a project of the Delaware Leadership Institute 2013 cohort, this is the third installment of the PLAY IT FORWARD Series of Leadership Forums. We are the next generation of AUCD leaders, and with so many of our mentors retiring we attempt to capture the institutional knowledge and leadership skills of past leaders. We go back, through live discussion and recorded interviews, to navigate the future of AUCD.

Getting Real with Coaching: Benefits, Purpose, and Practical Strategies for Improving Systems and Practices with Coaching
Ronda Jenson, PhD, Director of Research, University of Missouri, UCEDD/LEND
Carla Williams, EdD, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

This interactive session focuses on job-embedded coaching for improved implementation of effective practices and systems. In this session, participants will explore the research identified elements of quality coaching, the benefits of coaching, and strategies for putting the elements in place. Presenters will share a coaching observation checklist used throughout Missouri that can be applied to education and human service settings.

Navigating the Future of Services and Supports: How the Next Generation of Leaders will Design, Develop and Implement Quality.
Caitlin Bailey, PhD ABD, Director of Research and Evaluation, National Leadership Consortium on Developmental Disabilities
Steven Eidelman, MSW, MBA, National Leadership Consortium on Developmental Disabilities, Newark, DE, United States;
Nancy Weiss, MSW, National Leadership Consortium on Developmental Disabilities, Newark, DE, United States;

The future of supports for people with disabilities will continue to change dramatically as the aging population reaches its peak and the workforce retires the generation of leaders who have built the service systems in place today. To inform the next generation of leaders of the characteristics and skills needed to navigate these changes, this study draws from experiences and expertise of national leaders in policy, research, advocacy and supports.

Finally ABLE to Save: How ABLE Accounts Are Changing Lives
Heather Sachs, Vp of Advocacy & Public Policy, National Down Syndrome Society
Sara Hart Weir, National Down Syndrome Society, New York, NY, United States;
Mary Morris, Virginia529 College Savings , North Chesterfield, VA, United States;

After nearly a decade of grassroots advocacy efforts, there finally exists a savings vehicle to enable people with disabilities to save more than $2,000 in assets without jeopardizing their eligibility for critical government supports. Achieving a Better Life Experience (ABLE) accounts are now widely available. This presentation will explore the rules regarding these accounts such as eligibility, tax treatment and allowable expenditures, and will summarize current ABLE program offerings.

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Employment Works: The Business Case for Employing People with Disabilities
Mary Kay Cunningham, Assistant Director, Institute on Disabilities, UCEDD
MIchelle Fullem, Master's, University of Pittsburgh, Pittsburgh, PA, United States;
Megan Grabski, MBA & Elaine Katz, MA, Kessler Foundation, West Orange, NJ;
Celia Feinstein & Anne Marie White, Philadelphia, PA, PA - Institute on Disabilities, UCEDD;
Julia Barol & Tracy Katz, Transition Consultants, Philadelpha, PA;
Kristen Pedersen, MPH, The Arc San Francisco, San Francisco, CA;
This presentation will examine three models for employing people with disabilities. First, Employment Here and Now! aims to provide students and young adults with disabilities participation in authentic internships at Temple University in Philadelphia resulting in participants becoming productive, employed citizens. This business directed education-to-work training model is the first at the University designed to obtain competitive employment for people with diverse disabilities. Second, The University of Pittsburgh is partnerhipg with the Career Transition Project of United Way of SWPA's 21andAble initiative to source, hire and retain young adults with disabilities utilizing an embedded professional placed inside the employer's HR offices. Funded by the Kessler Foundation, this successful model is making impact in hiring, culture, education of employees, and more. Third, the Universal Learning for the Workforce (ULW) is a new framework that applies learning style theory to better match job-seekers with intellectual and developmental disabilities to the right position, improve communication, optimize employee performance and increase employer satisfaction.Educators, employers and self-advocates can learn how to de-code individual learning preferences and apply ULW tools and strategies to eliminate hiring barriers and optimize on-the-job success.

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Voices of Adults With DD: Ensuring Person Centered Policy and Practice
Robin Greenfield, Ph.D., Associate Director, Center on Disabilities and Human Development, UCEDD
Faythe Aiken, Council on Quality and Leadership, Washington, DC, United States;

This presentation will describe the outcomes of a 10 month study that was conducted to identify the perceptions of adults with developmental disabilities who were receiving Home and Community Based Services or their guardians regarding the extent to which individuals were integrated into the community, had choices, individual rights, and autonomy within a living setting.

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Creative Program Financing
Mark Innocenti, Ph.D., Research & Evaluation Director, Center for Persons with Disabilities, UCEDD/LEND
^|Lisa Rossignol, MA, Parents Reaching Out, Albuquerque, NM;
Peter Doehring, PhD, Consultant in Design and Delivery of ASD Services and Training, Chadds Ford, PA
UCEDDs can incubate new programs in partnership with community-based agencies by assuming a co-leadership role in creating and managing new services and training during a formative period. The incubator model marries the university's expertise in training, outcome research, policy, and advocacy with the provider's experience in delivering services, and may be especially attractive to philanthropists eager to have an immediate impact at the local level.

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