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AUCD - Poster Symposium: Systems Change

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Monday, December 5, 2016 2:00 PM - 3:00 PM

Location: Congressional Hall C

Session Description


AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room around common themes. Facilitators will open each poster symposia with broad thoughts about the room's theme followed by a brief 2-3 minute presentation by each poster presenter, approximately 15 per room. Attendees will then have time for more in-depth exploration of the information presented and make connections with others in the room. Attendees are attend to select one symposia to attend during each time slot as space allows; pre-registration is not required.


Care Coordination between Families, Schools, and Primary Care.


Dian Baker, PhD, MS, MA, RN , Professor School of Nursing , UC Davis at the MIND Institute, UCEDD/LEND

The presentation will: (a) analyze the significant gaps of data related to children with disabilities and how what monitoring exists for safety and effectiveness of school health services, (b) evaluate the strengths and weaknesses in schools? systems of care for children with disabilities, and (c) provide tools for participants to translate research findings into action.

Transforming Systems of Long Term Services and Supports through Person-Centered Thinking and the LifeCourse Framework


Erin Leveton, JD, Project Director, DC Department on Disability Services
Joan Christopher, JD, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Rhonda White, Quality Trust for Individuals with Disabiltiies, Washington, DC, United States;
Mat McCullough, MPA, DC Developmental Disabilities Council, Washington, DC, United States;

The District of Columbia has been working to transform its developmental disabilities system to include an extensive emphasis on person and family centered thinking. Members of the DC Supporting Families Community of Practice team will share their experience infusing person centered thinking and the Supporting Families LifeCourse framework and tools into system change efforts and reflect on the way that this touches people with disabilities and their families.

"Include Me": Evidence-based Research on the Social and Academic Outcomes for an Innovative Teacher Inclusion Mentoring Model


Stephen Bagnato, Ed.D., Professor of Psychology & Pediatrics, LEND Center of Pittsburgh, LEND
Rita Cheskiewicz, M.Ed., The Arc of Pennsylvania, Harrisburg, PA, United States, PA - UCLID Center, LEND;
Tracy Larson, M.Ed., Pittsburgh, PA, Canada, PA - UCLID Center, LEND;
Pat Hozella, Ed.D., PA Department of Education, Bureau of Special Education, Harrisburg, PA, United States;

The Pennsylvania Department of Education designated the Arc of PA to design an innovative teacher mentoring initiative. "Include Me" (IM) aimed to include students (Pre-K to High School) with significant disabilities into regular education classrooms in their neighborhood schools. The 6-year IM model in over 100 school districts; 800 classrooms for 700 students demonstrates significant and notable outcomes in effective instructional practices; student progress; & parent-school partnerships.

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Statewide model of building capacity and leadership teams for IEP development in Delaware


Niki Roberts, Masters of Special Education, , Center for Disabilities Studies, UCEDD/LEND

University of Delaware with the Delaware Department of Education is implementing a statewide model of IEP development. This provided training for districts on IEP development and coaching to build leadership teams. Supports are developed to increase capacity of building and district level staff to promote self-sustainability. This initiative provided a model to follow up with a more specific training on IEP development for students with behavioral concerns.

Exploring Premature Exit from the Vocational Rehabilitation System


Catherine Ipsen, Ph.D., Rural Director and Director of Employment Research, University of Montana Rural Institute, UCEDD

Nearly half of all Vocational Rehabilitation (VR) consumers who are evaluated, determined eligible, and begin services, drop out of VR before completing the program. This presentation reports longitudinal research about facilitators and barriers to retention in the VR program as reported by VR consumers.

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Using statewide needs assessment data in building a plan for the future


Kathy Sheppard-Jones, Executive Director, Interdisciplinary Human Development Institute, UCEDD/LEND
MaryLee Underwood, Commonwealth Council on Developmental Disabilities, Frankfort, KY, United States;
Alice Rhodes, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;

State DD Network UCEDD and DD Council partners describe use of statewide needs assessment data as used in agency planning and policy development..

New England Genetic Collaborative Stakeholder Survey 2016- Recommendations for Improving the System of Care


Raven Vigars, Occupational Therapist, INACTIVE-University of New Hampshire, LEND
Raven Vigars, Occupational Therapy, Stratham, NH, United States, NH - New Hampshire LEND Program;

�It takes a village� resonates with one of the important characteristics of leadership, Encouraging Others to Act. Participating in the NH LEND program and collaborating with the New England Genetic Collaborative (NEGC) on their stakeholder survey, emphasized the importance of group involvement in creating change. This poster presents methods and results from the 2016 NEGC Stakeholder survey with recommendations to enhance the lives of people in the disability community.

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Regional Autism Advisory Council of Southwest Ohio (RAAC): Leading, Planning, and Partnering


Steph Weber, PsyD, Psychologist; Training Director, University of Cincinnati UCE, UCEDD/LEND

Participants will learn about unique collaborations in southwest Ohio with county boards of developmental disabilities, provider agencies, school districts, family members, and self-advocates to address the needs of individuals with Autism Spectrum Disorder (ASD). Descriptions of the work related to training, advocacy, and gaps in services and community need will be addressed. Challenges and benefits will be discussed to encourage replication and further advance community partnerships.

The California Autism Professional Training and Information Network (CAPTAIN): Navigating Change Through Facilitating Inter-agency Collaborations


Patrice Yasuda, Ph.D., CA-LEND Training Director, USC, Childrens Hospital, UCEDD/LEND
Patrice Yasuda, PhD, Los Angeles, CA, United States, CA - USC, Childrens Hospital, UCEDD/LEND;
Ananda Aspen, MS, MA, Diagnostic Center Central--CA Dept of Education, Fresno, CA, United States;
Robin May, LCSW, EdM, Alta Regional Center--CA Dept of Disability Services, Sacramento, CA, United States;
Jessica Suhrheinrich,, PhD, University of CA, San Diego, San Diego, CA, United States;
Patricia Schetter, MA, BCBA, Sacramento, CA, United States, CA - UC Davis UCEDD at the MIND Institute, UCEDD;

CAPTAIN is an exemplary model of intentionally affecting broad systems' level change by identifying/engaging key stakeholders, and leveraging their existing infrastructures/resources for maximum effectiveness. What began as the vision of a few state leadership members to institute a statewide standardized process of implementing evidence-based practices in autism throughout the state, has evolved into a a collaborative effort by key agencies mandated to provide services for individuals with autism.

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The Partnership for Hope: Statewide Collaboration to Change the Implementation of Home and Community Based Services in Missouri


George Gotto, Ph.D., Director, University of Missouri, UCEDD/LEND
Valarie Huhn, Missouri Division of Developmental Disabilities, Jefferson City, MO, United States;
Les Wagner, Missouri Association of County Developmental Disabilities Services Board, Columbia, MO, United States;
Laura Hurse, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Kelli Barton, Ph.D., Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

In 2007 the Missouri Association of County Developmental Disabilities Services studied Medicaid waivers with the goal of learning about innovative HCBS implementation. This study's recommendations to the Missouri Division of DD led to the creation of the Partnership for Hope Waiver. PfH serves as a model for providing needed community services and supports for individuals with DD and their families through a unique Federal, State, and County partnership.

Community Self-Management Programs to Support People with Epilepsy


Jody Kakacek, MNPM, PhD, Senior Director of CDC Programs, Epilepsy Foundation

Review of two pilot programs conducted by the Epilepsy Foundation and its affiliates to improve self-management skills among people with epilepsy using community health worker programs and community coalitions.

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