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AUCD - Poster Symposium: Health & Wellness

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Monday, December 5, 2016 4:40 pm - 5:40 pm

Location: Congressional Hall B

Session Description

 

AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room around common themes. Facilitators will open each poster symposia with broad thoughts about the room's theme followed by a brief 2-3 minute presentation by each poster presenter, approximately 15 per room. Attendees will then have time for more in-depth exploration of the information presented and make connections with others in the room. Attendees are attend to select one symposia to attend during each time slot as space allows; pre-registration is not required.




Presenters

The Association Between Adverse Childhood Events, Resiliency, and Health Among Children with Autism

Presenter(s)

Bethany Rigles, MA, , CU Boulder Coleman Institute

This study examines the relationship between adverse childhood events, resiliency, and health/mental health among children with autism compared to the general population as well as compared to other children with special health care needs. Results indicate that the relationships between these variables differ among children with autism compared to their peers, especially in regards to resiliency.


Rock the Boat: Navigating the Bronx River to Change Participation for Children with Developmental Disabilities and Their Families

Presenter(s)

Elizabeth Ridgway, OTD, OTR, Asst. Professor/ OT Asst. Chief, Rose F. Kennedy Center, UCEDD/LEND
Tim Conly, MS, OTR, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Carol Terilli, PT, DPT, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Kadine Walfall, DPT, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Danielle Soba, MS, OTR, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Nantesha Chen, DPT, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Leon Kirschner, OTR, MPH, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;

Canoeing on the Bronx River, we embarked with families and children with developmental disabilities navigating change to increase participation in outdoor community nature activities. In this first time adventure, children with developmental disabilities, their family and therapists join together to embrace leisure participation accessing a natural community resource, challenge abilities and successfully creating a ongoing love for the river.

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Development of a Quality of Care Assessment for Facilities Serving Individuals with Intellectual and Developmental Disabilities

Presenter(s)

Vijay Vasudevan, PhD, Mr., University of Florida

The Texas Department of Aging and Disability Services (DADS) supports over 3,000 people with IDD who live across 12 state supported living centers plus the intermediate care facility service component of the Rio Grande State Center. The purpose of this study was to assess the content validity of quality of care (QoC) measures for facilities that serve people with IDD.


Perinatal Risk Factors for Overweight/Obese Among Preschool Children with Disabilities

Presenter(s)

Ruby Natale, Phd, PsyD, Associate Professor, Mailman Center for Child Development, UCEDD/LEND
Joanne Palenzuela, MS, Miami, FL, FL - Mailman Center for Child Development, UCEDD/LEND;

Children with disabilities are particularly at risk for obesity, yet their first 1000 days of life has rarely been a point of examination for future risk. We explored the relationship between various perinatal/early childhood (EC) factors, and child body mass index (BMI) to determine possible contributors to obesity among 2-to-5 years year olds with and without disabilities.


Early Childhood Mealtime Curricula: Adaptation for Inclusive Environments

Presenter(s)

Elizabeth Koss, Masters of Occupational Therapy, Occupational Therapist, The Nisonger Center, UCEDD/LEND

Nutritional habits are established at an early age. Therefore, it is important that early childhood education address optimal nutrition behaviors. The information presented in this session will demonstrate the strengths and weaknesses of a variety of evidence-based nutrition programs for young children. We will provide a sample lesson to demonstrate modifications to benefit children with a variety of different abilities and special health care needs.

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Responsive Practice Training at Dartmouth Hitchcock Manchester

Presenter(s)

Lisa Plotnik, MD, Dr, INACTIVE-University of New Hampshire, LEND

The Institute on Disability's Responsive Practice Training Curriculum was used to train Dartmouth Hitchcock Manchester's Adult Primary Care Departments (Internal Medicine, Family Practice, and Med-Peds) in how to provide culturally competent care to patients with disabilities.


"Gyn Warrior Princess": Educating young women regarding gynecologic office exams utilizing an educational comic book and video format (Graphic Medicine).

Presenter(s)

Arlene Smalls, MD, OB GYN, Christiana Care Health System
Estelle Whitney, MD, Christiana Care Health System, Newark, DE, United States;
Imani Ayo-Oyar, Moore School of Art, Philadelphia, PA, United States;
Dara Ryan, Dara Ryan Designs, Bel Air , MD, United States;

The Gyn Warrior Princess" comic book and video is the first product of the "Gyn Health Education Series". This comic book and video "walks" a patient through the steps of a gynecology office from the patient's perspective. Lily is a young women with a disability who acts as the main character of the series. Lily, our narrator will undergo a step by step journey through a gynecologic office appointment.

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Navigating Towards Better Nutrition: Strategies to Increase Food Selection in Children With Autism

Presenter(s)

Susannah Poe, Ed.D., Psychologist, BCBA-D, LEND Mentor, Center for Excellence in Disabilities, UCEDD/LEND
Devin Parsons, BA, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Nicole Robinson, MA, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;

Increasing healthy food choices for selective eaters with autism can have a positive effect on the child's health as well as opportunities for social engagement with peers. This presentation will highlight the steps LEND students at our ABA treatment clinic implemented during a three-day-a-week collaborative feeding program geared toward acceptance of healthy foods across all settings. Once successful in therapy, the skill was successfully generalized to home and school.

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Traumatic Brain Injury Survivors Life Satisfaction and Alcohol Use Disorder

Presenter(s)

Terry Cunningham, M.A. , Interim Co-Program Manager, Center for Excellence in Disabilities, UCEDD/LEND

This workshop will share research conducted by the West Virginia University Center for Excellence in Disabilities' Traumatic Brain Injury (TBI) program on the association between alcohol use, the nature of the initiating traumatic brain injury event and perceived life satisfaction among individuals receiving TBI services through a rural UCEDD in 2016. Information will be shared regarding substance abuse among the TBI population and how it relates to survivors.

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Changing Social Norms and Building Relationships: Improving Socio-Sexual Health for Individuals with Intellectual and Related Developmental Disability through Community-Based Training

Presenter(s)

Canyon Hardesty, M.S., , Wyoming Institute for Disabilities, UCEDD
Karen Ward, Ed.D, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;
Julie Atkinson, M.S. , Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;
Katie Lancaster, M.S.W. , Laramie, WY;

Social relationships are important in the live of individuals with ID/DD. This interactive session will illustrate and present data about the evidence-based Friendships & Dating Program (FDP) to promote healthy, meaningful relationships for individuals with ID/DD. This session will also examine the collaborative partnership of the Alaska and Wyoming UCEDDs to offer FDP as a community based training to build capacity within their state�s workforce.


Addressing Health Disparities for Individuals with Disabilities: What Are Their Dental Care Needs?

Presenter(s)

Jae Chul Lee, Ph.D, Health & Wellness Unit Director, Center for Disabilities Studies, UCEDD/LEND

Poor oral health can exacerbate the overall health of people with disabilities and heighten the risks for secondary conditions. This session will share the findings regarding the dental care needs of Delawareans with disabilities based on the results of a statewide dental care survey of adults with disabilities and parents of individuals ages 6 to 49 with disabilities. The implications of these results and next steps will be discussed.

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Barriers to Health Care Access for New England Families with Children that have Genetic Conditions

Presenter(s)

Ashley Hamill, Master's in Speech-Language Pathology, Former NH LEND Trainee, INACTIVE-University of New Hampshire, LEND

The Health Care Access & Financing work group, part of the New England Genetics Collaborative, sent out a survey to families in New England who have children with a genetic, or suspected genetic, condition. The goal was to gain a better understanding of issues related to health care access for this population in order to educate policymakers & key stakeholders about the types of barriers these families face.


Integrating Disability into Public Health: Parent Resource Coordinators are Community Health Workers

Presenter(s)

Sarah Swanson, BS Ed., CPH, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Mark Smith , M.S., Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Megan Shepherd, M.S., Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Rachel Ray, M.A., Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;

Parent-to-Parent and Peer-to-Peer programs have long been recognized as an integral part in ensuring people with disabilities and families have support and information to achieve optimal outcomes. The Family Care Enhancement project which places Parent Resource Coordinators (PRCs) in medical clinics. PRCs are parents of children with disabilities. Learn why PRCs are Community Health Workers and how they are part of the public health workforce.

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Communicating HIV/AIDS risks to people with intellectual disabilities in Washington DC

Presenter(s)

Gregory Stimac, MSc, First Year Medical Student, Georgetown University Center for Child & Human Development, UCEDD/LEND
Steven Carrubba, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Esther Chung, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Janet Shin, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Marisa Brown, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;

First-year medical students at the Georgetown University School of Medicine participate in a service learning project to research and develop a method to better educate people with intellectual disabilities about the risks of HIV/AIDS.