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AUCD - Poster Symposium: Advocacy

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Monday, December 5, 2016 3:20 PM - 4:20 PM

Location: Grand Ballroom South Salon

Session Description


AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room around common themes. Facilitators will open each poster symposia with broad thoughts about the room's theme followed by a brief 2-3 minute presentation by each poster presenter, approximately 15 per room. Attendees will then have time for more in-depth exploration of the information presented and make connections with others in the room. Attendees are attend to select one symposia to attend during each time slot as space allows; pre-registration is not required.


Navigating the World of the Special Needs Family; Transition Period


Mark Friese, Bachelors Special Needs Financial Planning, Vice President, Head of Merrill Lynch Special Needs Group
Cheri Belkowitz, Bachelors, JD, Belkowitz Law. PLLC., Fairfax, VA, United States;
Scott Wilbur, Bachelor, Next Level Transitions, Alexandria, VA, United States;
Chase Phillips, Bachelor, Merrill Special Needs Group, Arlington, VA, United States;
Matthew Bogin, Bachelor, JD, Bogin Law, Bethesda, MD, United States;

Teach techniques to navigate the schools system, maximize educational support, review your rights, and monitor and advocate for the results. Help you understand the tools and support system that increase the chances of your child's success. Discuss life after school? How can work force development programs benefit my child? What are supportive services, adaptive technology? How can they help? How do I make sure this is all affordable?

Cincinnati Homelessness Study: The Family Point of View


Pamela Williams-Arya, MD, , University of Cincinnati UCE, UCEDD/LEND
Benjamin Byington, Cincinnati, OH;

Our study worked with community partners to augment the Cincinnati Family Homelessness Study by conducting group level assessments with homeless families specifically directed at providing an intensive examination of developmental and behavioral needs of Cincinnati homeless children.

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Project Self-Advocate Leadership Training (SALT): Becoming Leaders


Rochelle Baer, MSW, Director, Leadership Training Initiaitves, Mailman Center for Child Development, UCEDD/LEND

Project SALT's vision is to produce an ever-growing cadre of individuals with disabilities with the capacity for self-determination, independence and the ability to participate in their communities in meaningful ways. We teach a leadership skills curriculum to individuals with disabilities so that they can learn strategies to advocate for themselves, others and affect larger systems change. We will share our curriculum, design process, best practices and outcomes of the training.

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Looking Through a New Lens: How to Make Managed Care Work


Anna Keith, BS Business Management, VP Innovative Solutions, Centene Corporation

This presentation will present key strategies to understanding how health plan operations work internally in order for consumers, providers, and IDD advocates to better understand the nuances of a managed care environment.

Finding Our Voice: Black Mothers Navigating ASD Diagnosis and Services


Elizabeth Morgan, Ed.M., Program Coordinator/Faculty, UC Davis at the MIND Institute, UCEDD/LEND

Utilizing Community Partnered Participatory Research (CPPR) techniques, this poster will discuss the challenges that Black mothers of children with autism face during diagnosis, early intervention, and in critical transitions during school. This poster will discuss the specific themes extracted and make suggestions for systems change interventions that could ameliorate the process and bridge the gaps to help Black families become effective advocates for their children.

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Combining Risk Factors and Preventative Measures to Help At-Risk Youth


Naeri Hakopian, B.A., Miss, Pepperdine University Graduate School of Education and Psychology
Natalie Sisneros, B.A., Pepperdine University Graduate School of Education and Psychology, Duarte , CA, United States;
Ngozika Egbuonu, B.A., Pepperdine University Graduate School of Education and Psychology, Pasadena, CA, United States;
Victoria Boone, B.A., Pepperdine University Graduate School of Education and Psychology, Calabasas , CA, United States;

This literature review aims to make a connection between specific risk factors and protective measures for students who are at-risk of dropping out of school. Communities should focus on the specific risk factors that are prevalent among their adolescents, and help schools, families, and youth programs focus their efforts on protecting against each risk factor.

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Changing Places: Keeping persons off the floor


candice aaron, Community Organizer / Mom, Southside Support
Dawn Alford, GCDD, Atlanta , GA;
Samantha Buck , Don't Pass the Buck and Changing Places UK, UK, AB, United Kingdom;

� Inclusive Communities and the ADA � Person�s not currently covered by ADA � The need for expanding ADA to provide better restroom accommodations � The health implications of changing disabled persons on the floor or having them stay soiled. � Inclusive communities: The need for mobile multi-purpose units - SNAZ- at outdoor spaces. Special Needs Accommodation Zone.

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Student advocacy through State Legislative Page Activity


Pam Hunter-Dempsey, MPA, Trainee, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Pam Hunter Dempsey, MPA, Rome, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;

Caroline is a high school student with intellectual/developmental disabilities who has a vision for her future of a full, rich life. During transition planning, Caroline found little support and soon wanted to share her story in hopes that state leaders would understand. She did this through serving as Page in the Georgia House of Representatives. Listen as she shares her experience that includes a long-term relationship with state leaders.

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Beyond Tokenism: People with significant developmental disabilities serving in influential leadership positions on boards, task forces, and advisory committees.


Susanna Miller-Raines, Georgia IPSE Consortium Coordinator, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Liz Weintraub, none, Self-Advocacy Specialist, AUCD, Washington, DC, DC, United States;
James Conroy, Ph.D., Center for Outcome Analysis, Philadelphia, PA, United States;
Miyah, Sundermeyer, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;

Learn the best practices to support the effective participation of people with intellectual and developmental disabilities to serve on Boards, Committees and Task forces currently being used by University Centers for Excellence in Developmental Disabilities, DD Councils, and Protection and Advocacy agencies across the US. The results of the Beyond Tokenism National Study on Effective Practices for People with Significant Needs Serving on Board and Committees will be presented.

Navigating Global Change: Transforming our World through Human Rights and the 2030 Agenda for Sustainable Development


Charmaine Crockett, Masters, Special Projects Coordinator, Hawaii Center on Disability Studies UCEDD/JABSOM LEND Program

This poster presentation will highlight two prominent global initiatives � the 2030 Agenda and the CRPD - and offer insights into how we, as individuals and communities, can mobilize efforts to end all forms of poverty, fight inequality and ensure that no one is left behind. The presenter will illustrate how these initiatives can be used as valuable advocacy tools to actualize principles of inclusion and self-determination.

Nothing about us without us: Maryland passes legislation in first year of introduction to phase out sub minimum wage use


Kenneth Capone, Public Policy Director, Kennedy Krieger Institute, UCEDD/LEND

People on the Go and Maryland Center for Developmental Disabilities discuss how self advocates strategically pulled together state agencies providers and disabilities rights organizations to bring about change in Maryland. The coalition of partners created a bill that will phase out the use of sub minimum wage certificate in the next 4 years. The law passed with majority in both house and Senate first year it was introduced.

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Policy Practice in Action


Rebecca Scheinberg, Master of Social Work, Ms., INACTIVE-University of New Hampshire, LEND

This poster will outline the legislative process using examples from actual policy work. This involved changing the language in the Adult Protective Services law in New Hampshire from 'incapacitated' to 'vulnerable.' This poster will explain the steps taken to make an idea a law.

#DSWORKS The National Down Syndrome Society?s New Employment Campaign


Sara Weir, President, National Down Syndrome Society
Vanessa Quick, New York, NY, United States;
David Egan, Vienna, VA, United States;

#DSWORKS is an employment campaign developed by NDSS that is designed to educate the general public about how individuals with Down syndrome are employable individuals and should be included in all aspects of the work force while encouraging corporations and businesses to invest in hiring people with Down syndrome and increasing the number of opportunities for individuals with Down syndrome to work in meaningful and competitive employment settings.