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AUCD - Concurrent Sessions

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Tuesday, November 17, 2015 3:00 PM - 4:15 PM

Session Description

The AUCD Conference features over 55 concurrent sessions over four time slots for attendees to learn, share, and network on a variety of topics around disability. Concurrent sessions all last 75 minutes; a session might be one or more presenters leading an interactive discussion or exertise or a panel of several thematically linked presentations with a moderator. Concurrent session presentations will be listed below once the lineup has been determined.


How LEND/UCEDD Programs are Driving Change by Training and Supporting a New Generation of Family Advocates and Disability Leaders
Fran Goldfarb, MA, MCHES, CPSP, Director, Community Education, USC, Childrens Hospital, UCEDD/LEND
Sheryl Feuer, CPSP, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Barbara Levitz, MS ED, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;

This session, presented by the AUCD/LEND Family Discipline Network, provides useful information on how LEND/UCEDD programs across the country are recruiting, developing, mentoring, and supporting current and former family trainees for roles in advocacy and disability leadership. Strategies for continuing post-training support through networking, opportunities and resources are highlighted. Real-life outcomes illustrate the impact of training on family advocates and disability leaders in bettering lives and driving positive change.

Read and download presentation materials >

Introduction to the Centers for Medicaid and Medicare Services (CMS) Home and Community Based Service System
Karen Ward, EdD, Director, Center for Human Development, UCEDD/LEND
Celia Feinstein, MA, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Kristin Ahrens, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Barbara Merrill, JD, ANCOR, Alexandria, VA, United States;
Kimberly Mills, PhD, BCBA-D, St. Croix, VI, United States, VI - Virgin Islands UCE, UCEDD;

This presentation is an introduction to the Centers for Medicare and Medicaid's Home and Community-Based Service System, its components, advantages, and pitfalls. These programs are the major source of funding services for people with disabilities. States vary in the services and supports offered to assist people to live in the community. Recent rule changes focus on integrated settings, person centered planning and choice will impact the way services are delivered.

Implementation of LEND Trainee Diversity Quality Improvement Projects
Shannon Haworth, MA, Senior Manager, Disability and Public Health
Betsy Humphreys, Ph.D., NH LEND, Lebanon, NH, United States;
Susan Russell, MS, UMaine, Orono, ME, United States;
Cynthia Ellis, MD, NE LEND, Omaha, NE, United States;
Kellie Elerbusch, BLA, NE LEND, Omaha, NE, United States;
Tyler Reimschisel, MD, Vanderbilt LEND, Nashville, TN, United States;

Moderated panel discussion with 3 LEND programs involved in quality improvement projects to increase trainee diversity in their programs. Nebraska LEND, NH LEND, and Vanderbilt LEND will share specific strategies and activities that have been implemented the outcomes of these diversity initiatives as well as challenges, facilitators to success, and lessons learned. Participants will learn about these initiatives and have an opportunity to ask questions of the panelists.

Tools to Support Enhanced Work Outcomes of Youth Who Receive Disability Benefits
Ray Cebula, JD, Sr. Ext. Faculty, Cornell University
Thomas Golden, M.S., Cornell University, Ithaca, NY, United States;

To learn: SSA's policies supporting return-to-work: How best to support decision making. To believe: SSA disability beneficiaries can work at great levels of employment. Decisions regarding what levels to work are that of the beneficiary not others. To provide: information and referral services when needed and support better informed decision-making. To Allow...Youth with disabilities to transition to Workers with disabilities.

The Last Frontier of Equality: Parents with Disabilities Raising Children under the ADA with Help from UCEDD Programs.
Susan Yuan, PhD, Emerita, Center on Disability & Community Inclusion, UCEDD
Tony Antosh, Ph.D., Providence, RI, United States, RI - The Paul V. Sherlock Center on Disabilities, UCEDD;
Kara Ayers, Ph.D., Self-advocate, parent w/a disability, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Bernadette Irwin, M.S., Program administrator/activist, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Christopher Smith, Ph.D., panel moderator, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;

2015 saw real progress in the application of the ADA to parenting, through findings of discrimination issued by the Department of Justice and Health and Human Services in a case in MA. Mandates for training and guidance issued to child welfare present new opportunities for UCEDDs. These opportunities and current creative UCEDD initiatives will be shared.

Best Practices for Opportunity: Public/Private Partnerships for Employing People With Disability and Implementing the Workforce Innovation and Opportunity Act
Jennifer Mizrahi, President and CEO, RespectAbility
Rita Landgraf, Secretary of the Delaware Department of Health and Social Services, New Castle, DE, United States;
Judy Smith, Poses Family Foundation, New York City, NY, United States;
Erin Riehle, RN, MSN, Project SEARCH Founder & Director, Cincinatti, OH, United States;

People with disabilities should be able pursue the American dream and employment is the key. However, success depends on partnerships between public/private/philanthropic/non-profit entities and funders who are committed to building a better future. Successful models in Delaware, Nevada, and other states show how improved employment outcomes can be achieved through collaboration and cooperation. Come and learn about how such partnerships drive real change and opportunity for people with disabilities.

Mental Health in Early Childhood: Priorities to Prevent Expulsions and Suspensions and Implement Responsive Inclusive Practices
Sarah Davidon, MEd, Director of Community, Advocacy and Policy, University of Colorado/Children's Hospital Colorado, DBP
The U.S. Departments of Health and Human Services and Education have identified a national priority of prevention of preschool expulsions and suspensions, and have issued a policy statement on inclusion. This session will assist regional, state and local decisionmakers and implementers to generate strategies for including young children with social/emotional/behavioral difficulties into early learning programs through a discussion of national priorities, state-level data, policy trends and a parent's perspective.

Read and download presentation materials >

Connecting Youth with Disabilities to the Workforce
Derrick Willis, MPA, Research Associate, UMKC - Institute for Human Developement
Ryan Gee, Master of Arts-Economics, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

This presentation will combine key findings and lessons learned from a national demonstration model funded by the U.S. Department of Labor and will allow participants the opportunity to begin planning a repeatable model. This presentation will help participants shape a planning process with the goal of identifying strategies and ideas that can be of use in their own communities.

Leadership Works: How UCEDD Leaders are Connecting Across the Network and Within their Communities and States
Caitlin Bailey, PhD, Director of Research and Evaluation, National Leadership Consortium on Developmental Disabilities
Steven Eidelman, MS, MBA, National Leadership Consortium on Developmental Disabilities, Newark, DE, United States;
Nancy Weiss, MS, National Leadership Consortium on Developmental Disabilities, Newark, DE, United States;

While there is widespread commitment to developing meaningful partnerships with communities and across UCEDD networks, actual collaborative practices are limited. Results from a leadership development study show that many UCEDD leaders are effectively partnering to enhance research and training dissemination. However, others struggle due to leadership, organizational and network barriers. This session will help expand partnerships by providing examples of successful initiatives and strategies from leaders who have done it.

"From Trainee to Executive: Cultivating leadership through participation in research, shared scholarship and policymaking."
Celia Feinstein, Information is Power: Provider Profiles in PA, Institute on Disabilities, UCEDD
Diane Gallagher, PhD, Executive Director, HMS School, Philadelphia, PA, United States;
Deborah M. Spitalnik, PhD, Executive Director, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Colleen McLaughlin, MEd, Training and Technical Assistance Coordinator, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Edward Coleman, PhD, Director, Step by Step, Inc., Upper Darby, PA, United States;
Sally Gould-Taylor, PhD Candidate, Director of Research and Evaluation, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;

Join this panel to hear from the former trainees of the Institute on Disabilities at Temple University, Pennsylvania's UCEDD. The panel members include former trainees from the past 30 years who have gone on to become leaders in the field of intellectual and developmental disabilities. Hear them discuss how their experiences as trainees influenced and shaped their ideological vision and professional drive.

Play it Forward: Reflections on Leadership of UCEDD and LEND Directors
JoAnn Yuen, EdD, Associate Director, Center on Disability Studies, UCEDD/LEND
Rhonda Eppelsheimer, MSW, LMSW/CSWA, Oregon Health & Science University, UCEDD, Portland, OR, United States, OR - Center on Human Development, UCEDD;
Joel Nudi, MBA, PMP, The Boggs Center on DD, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;

Since 2010, 33 of 67 UCEDD/LEND directors have retired. As the next generation steps up, PLAY IT FORWARD provides an historical foundation for leadership to help navigate the future, documenting the perspectives of retiring directors to support future leaders. Watch the 3 minute trailer: and 22 minute video:

Building Capacity and Driving Change by Bridging Aging and Disability Research, Policy and Practice
Margaret Campbell, PhD, Senior Scientist for Planning and Policy Support, HHS / ACL
Tamar Heller, Ph.D, University of Illinois, Chicago, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Michelle Putnam, Ph.D., Simmons College, Boston, MA, United States;

This session will document gaps in the availability of evidence-based practices demonstrated to be effective for adults aging with intellectual and developmental disabilities (IDD); and describe new translation research strategies that can be used to build capacity and leverage knowledge between the fields of aging and disability to inform policy development, improve community-based services, and better equip practice professionals to meet the needs of the aging with IDD populations.

Cultural Perceptions of Disability
Carli Friedman, MS, Postdoctoral Research Associate Departments of Dis, Institute on Disability & Human Development, UCEDD/LEND
^|Aleksa Owen, MSW, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND;
Carol Laws, PhD, Athens, GA, GA - Institute on Human Development and Disability, UCEDD
This session will present, "Everyone Has a Story to Tell: Growing Leaders in Disability Studies through Civic Engagement," "Cultural Framings of Disability in Noninvasive Prenatal Testing: A Thematic Analysis," and "Unconscious and unintentional: Harmful modern forms of disability prejudice."

Inclusive Community Lives
Sharon Gartland, OTD, Clinical Instructor, Waisman Center, UCEDD/LEND
^|Amanda Bell, Madison, WI, WI - Waisman Center, UCEDD/LEND;
Matthew Segall, PhD, Emory Autism Center, Emory University, Atlanta, GA
This session will present, "Enabling Community Participation for Adolescents with Autism Spectrum Disorder," "LOV-Dane uses a community organizing model to build fulfilling and community centered lives for individuals with disabilities," and "Development of Self-Awareness for Adolescents and Young Adults with ASD: Cognitive Behavioral Strategies."

Measurement as Tools for Effective Service Delivery: Linking Personal Outcomes to Provider Performance
Julie Bershadsky, PhD, Senior Research Specialist, HSRI
Caitlin Bailey, PhD, NLCDD, Newark, DE, United States;
Marian Saulino, PMR and Values Into Action, Philadelphia, PA, United States;
Valerie Bradley, MS, President, Human Services Research Institute, Cambridge, MA, United States;
Sue Kelly, Delmarva Foundation, Atlanta, GA, United States;
Drew Smith, MBA, The Council on Quality and Leadership, Portland, OR, United States;

This joint presentation will: 1) provide an overview of quality outcomes most predictive of provider and system performance based on NCI, CQL and provider review data; 2) introduce The Integrated Quality Management Approach - a person-centered organizational development process that yields outcome measurement tools and supports agencies to analyze, interpret and utilize data.