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AUCD - Concurrent Sessions

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Tuesday, November 17, 2015 1:30 PM - 2:45 PM

Session Description

The AUCD Conference features over 55 concurrent sessions over four time slots for attendees to learn, share, and network on a variety of topics around disability. Concurrent sessions all last 75 minutes; a session might be one or more presenters leading an interactive discussion or exertise or a panel of several thematically linked presentations with a moderator. Concurrent session presentations will be listed below once the lineup has been determined.


Family Support for People with Disabilities: Changing Systems to Support Families


Sandy Magana, PhD, Professor, Institute on Disability & Human Development, UCEDD/LEND
Katie Arnold, MS, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND;
Brian Grossman, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Joe Caldwell, PhD, National Council on Aging, Washington DC, DC, United States;
Susan Parish, PhD, Heller School, Brandeis University, Waltham, MA, United States;
Rajan Sonik, Heller School, Brandeis University, Waltham, MA, United States;

This panel presentation represents work from the newly created Family Support Research and Training Center aimed at research, policy and practice on family support. The FSRTC is national in scope and involves collaborators from multiple sites. We will present four projects of FSRTC that are underway ranging from information gathering projects to empirical research that will inform researchers, policy makers and providers about the needs of family members.

PROMISE: A National Research Effort to Break the Cycle of Poverty for Youth with Disabilities


Jade Gingerich, MSc, Director of Employment Policy, MDOD
Ellie Hartman, PhD, Wisconsin PROMISE, Madison, WI;
Carol Ruddell, MS, ASPIRE/Promise consortium, Salt Lake City, UT;

Three grantees, Maryland, Wisconsin and ASPIRE, a consortium of 6 western states, will present their work in recruiting and providing intensive interventions to youth between the ages of 14 and 16 on SSI and their families. Discussion includes: overview of the population and complex barriers faced, challenges with engagement and connection to existing resources, interventions provided to increase employment and education outcomes, lessons learned and initial successes.

UCEDD's as the Designated State Entity (DSE) for State Independent Living Councils (SILCs)


Sarah Swanson, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Kelly Buckland, Director, National Council for Independent Living, Washington, DC, United States;
Wayne Stuberg, UCEDD Director, Associate Director of UNMC Munroe-Meyer Institute, Omaha, NE, United States;

The Workforce Innovation Opportunity Act moved Independent Living from the Rehabilitation and Service Administration into the federal Administration for Community Living and changed the requirement that Vocational Rehabilitation Agencies serve as the Designated State Unit to the Statewide Independent Living Councils in each state. This workshop will discuss the changes to the IL Network and also discuss the pros/cons of having UCEDDs be the Designated State Entity for SILCs.

Self-Advocates & Individuals with Disabilities as an emerging LEND discipline


Kruti Acharya, MD, , Institute on Disability & Human Development, UCEDD/LEND
Tia Nellis, Self-Advocate, Illinois LEND, Chicago, IL, United States;
Deb Zuver, Carolina Institute for Developmental Disabilities, Chapel Hill, NC, United States;
Shelly Baer, MSW, Mailman Center LEND, Miami, FL, United States;
Ben Kaufman, MSW, AUCD, Silver Springs, MD, United States;

LEND programs include people with disabilities; however, participation of Self-Advocates, trainees with a disability who represent self-advocacy as a discipline, varies. In this session, we 1) review data about Self-Advocates' participation in LEND, 2) provide examples of successful models, and 3) introduce a online resource to support the inclusion of self-advocates as trainees. The session concludes with break-out sessions on how best to include Self-Advocates in programs.

Addressing and Eliminating Health Disparities: The Role of Cultural and Linguistic Competence


Maria Avila, PhD, Program Co-Director, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND

This presentation will focus on the connection between health and racial disparities and cultural and linguistic competence (CALC). The presentation will describe how one state initiative decided to address society's long-lasting disparities through building CALC and training more than 1000 providers. We will furthermore discuss content regarding the historical context of racism and other systems of oppression in the US and their long-term impact on health disparities.

Using the New Home and Community Based Services Rules to Drive Change in Your State


Alison Barkoff, Director of Advocacy, Bazelon Center for Mental Health Law
Elizabeth Priaulx, National Disability Rights Network, Washington, DC, United States;
David Machledt, National Health Law Program, Washington, DC, United States;

States are beginning to implement new rules that define "community" for HCBS programs. These rules create an opportunity to transform state systems to support real integration and move away from congregate models that limit autonomy, choice, and community interaction. This presentation will provide an overview of the rules, recent guidance and state level activities and will describe how to advocate for change in your state.

Driving Change in Medicaid Managed Care: A Mini-Boot Camp


Merrill Friedman, Sr. Director, Disability Policy Engagement, Anthem, Inc
Patricia Nobbie, PhD, Georgia Council on Developmental Disabilities, Atlanta, GA, United States;
Constance Garner, Government Strategies Practice Group/ Foley Hoag, Washington, DC, United States;

This session will provide a mini-boot camp for community leaders, advocates, self-advocates, students and others on their important role driving change in Medicaid and how, specifically, with practical steps; they can engage in the development and design of new Long-Term Services and Supports (LTSS) programs through the Medicaid managed care procurement process, advance the availability of self-directed services, promote employment supports as a cornerstone, and assure lasting stakeholder engagement.

Who You Gonna Call? Collaborating with Multi-faith Initiatives in Community Supports


Bill Gaventa, MDiv, Consultant, Educator, Author, Collaborative on Faith and Disability
Curtis Ramsey Lucas, M.Div., American Association on Persons with Disabilities, Washington, DC, United States;
Shelly Christensen, M.A., Jewish Leadership Institute in Developmental Disabilities, Minneapolis, MN, United States;
Maggie Siddiq, MA, Enabled Muslim, Inc., Hartford, CT, United States;
Dilshad Ali, Enabled Muslim and, Richmond, VA, United States;
Jan Benton, M.A., National Catholic Partnership with Disability, Washington, DC, United States;

As UCEDD's reach out to diverse communities and support organizations, there is opportunity for collaboration in training, technical assistance, dissemination and research with national faith-based disability organizations working within Jewish, Muslim, Catholic and Protestant communities as well as interfaith networks.

The LifeCourse Framework: Building leadership capacity of systems, organizations, and communities to drive change


Michelle Reynolds, PhD, Senior Associate Director, University of Missouri, UCEDD/LEND
Mary Lee Fay, NASDDDS, Washington, DC, United States;
Derrick Willis, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Wanda Felty, Family Member, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Erin Leveton, Department of Disability Services, DD Administration, Washington, DC, United States;
Jane St. John, Family Member, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

The LifeCourse framework has been developed and advanced through the work of the National Community of Practice for Supporting Families. Team members from the different Community of Practice states and National organizations will show how they are integrating this work into state systems change activities in the areas of employment, long term services and supports, and supporting families of individuals with intellectual and developmental disabilities.

Using data to tell your implementation story


Ronda Jenson, PhD, Director of Research, University of Missouri, UCEDD/LEND

Putting research into practice requires attention to how the key components of the evidence-based practice are implemented, monitoring outcomes, and the link between the two. Compiling these moving parts can be tricky and even messy. This presentation will provide workable structures for organizing your implementation story and effective ways of displaying data. The presentation will begin with sharing examples follow-up by guided practice and discussion.

Read and download presentation materials >

Using Communication and Rhetoric to Transform from a Project Director to a Thought Leader: Expanding the Scope of Your Project


Stephanie Meredith, MA, Medical Outreach Director, Interdisciplinary Human Development Institute, UCEDD/LEND
Stephanie Meredith, Canton, GA, United States;
Stephanie Meredith, Canton, GA, United States;

When UCEDD and LEND project directors embark on projects, they are often funded by grants with a defined size and scope, but the potential is often much greater than the initial grant requirements. If we reach out to more stakeholders, creatively access additional funds, engage in presentations and publications, and actively communicate using different forms of media, then our projects can be a catalyst for change in the disability community.

2015 Kessler Foundation National Employment and Disability Survey (KFNEDS): Striving for Work and Overcoming Barriers


John ONeill, PhD, Director, Employment Research, Kessler Foundation
Elaine Katz, M.S., Kessler Foundation, West Orange, NJ, United States;
Andrew Houtenville, Ph.D., University of New Hampshire, Durham, NH, United States;

The presentation will review the results of the 2015 Kessler Foundation National Employment and Disability Survey (KFNEDS) that is designed to identify the ways in which Americans with disabilities strive to work and are successfully overcoming barriers.

People with Disabilities as Leaders


Jerry Alliston, PhD, Associate Director, Institute for Disability Studies, UCEDD
Joanne Siegel, LCSW, Associate Director RFK UCEDD, Rose F. Kennedy Center, UCEDD/LEND
Cindy Singletary[1],Self-Advocate/COCA[3],Biloxi[4],MS[5],United States[6],MS - Institute for Disability Studies, UCEDD[7]
Clint Perrin[1],Self-Advocate[2],NEAT NY, SANYS[3],Buffalo[4],NY[5],United States[6]
Anne Fracht[1],Self-Advocate[2],NEAT MA, Massachusetts Advocates Standing Strong[3],Waltham[4],MA[5],United States[6]
Hillary Clark[1],Self-Advocate[2],NEAT VT, Green Mountain Self-Advocates[3],Montpelier[4],VT[5],United States[6]
This session will present "Self-Advocacy Movement in MS: Preparing New Leaders NOW," and "Collaboration among N.E.A.T. (North East Advocates Together) and UCEDDs: Promoting Peer to Peer Connections among 6 North East Atlantic States."

Improving Early Childhood Screening and Identification Across Systems


Eric Kurtz, PhD, Executive Director, Center for Disabilities, UCEDD/LEND
Adriane Griffen, PhD, MPH, MCHES, Senior Director of Public Health and Leadership
This session will present, "Early Childhood Screening and Services For All: How the Six by '15 Campaign Works to Improve Cross-System Information Exchange," and "Collaborative Efforts to Improve Screening and Early Identification Practices for Children with Autism Spectrum Disorders."

Disability and Employment


David Kearon, Director, Adult Services, Autism Speaks
Thomas Conway, MBA, Training Coordinator, Hawaii Center on Disability Studies UCEDD/JABSOM LEND Program
Julie Cook, Senior Consultant, Disability Solutions @Ability Beyond
Julie Christensen, PhD, AUCD Director, Center for Disabilities and Development, UCEDD/LEND
This session will present, "Pepsi ACT: Achieving Change Together- Generation 2.0 Disability and Employment Engagement," "From Workshop to Work: Video Case Studies of the Journey through Discovery," "The Spectrum Careers: A New Tool for the Business Community," and "The EmployAble Project: A Virtual Employment Orientation and Support Center."