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AUCD - Poster Symposium: Self-advocacy: Future Directions of the Movement

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Monday, November 10, 2014 9:15 AM - 11:45 AM

Location: Mount Vernon Square A

Session Description

New in 2014, eight AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room according to theme. Facilitators will open each poster symposia with broad thoughts about the room’s theme, and attendees will be allotted ample time for in-depth exploration of the information presented and make connections with others in the room. Attendees are free to select one symposia to attend as space allows; pre-registration is not required.


Self-advocacy has been integral to the disability rights movement in the United States since the early 1970s. Advancements are being made in policies and practices, but continued momentum and support are crucial to keep moving forward. Join this poster symposium to learn more about self-advocacy efforts and connect with other self-advocates.

Featured Presenter(s)

 Facilitator: Emily Ladau, National Disability Rights Advocate and Blogger, Long Island, NY


Advancing Sexual Self-Advocacy: A Community Forum for People with Intellectual and Developmental Disabilities


Linda Sandman, MSW, Clinical Assistant Professor, Institute on Disability & Human Development, UCEDD/LEND
Katie Arnold, MS, Director of Community Education, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND;

The IL UCEDD Sexuality and Disability Consortium sponsored a community research forum for adults with intellectual and developmental disabilities for the purpose of defining sexual self-advocacy. This qualitative research project was a collaborative effort with people with I/DD. Policy and practice implications to promote sexual self advocacy will be discussed. This research positioned self advocates in the primary role directing the discussion about their sexual lives.

Read and download presentation materials >

Self Advocacy Groups: Operations, Practices and Structures that Support or Challenge Functioning and Sustainability


Caitlin Bailey, PhD ABD, Director of Research and Evaluation, National Leadership Consortium on Developmental Disabilities

This session will explore the internal and external structures, practices and contexts that affect the operations of self-advocacy groups from the perspective of self-advocacy organization leaders, advisors, representatives of partnering organizations and national experts. It will outline the similarities and differences among the goals and purposes of the groups, the common experiences among stakeholders and the challenges to operating an effective self-advocacy group, (sometimes) in partnership with an umbrella organization.

Keeping Safe: My self-determined plan


Ronda Jenson, PhD, Director of Research, University of Missouri, UCEDD/LEND
Cynthia Beckmann, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Carl Calkins, PhD, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

People with intellectual disabilities face numerous challenges to experiencing healthy and safe intimate relationships. Challenges include lack of access to education and information pertaining to sexual health and relationships, epidemic rates of interpersonal violence, low rates of seeking help to escape abusive situations, and beliefs that sexual relationships are inappropriate for people with disabilities. This presentation will share two tools aimed to promote safe and healthy relationships.

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Building a Movement to Advance Self-Determination: Michigan Partners for Freedom Local Leaders


Angela Martin, LMSW, Senior Associate Director, Developmental Disabilities Institute, UCEDD/LEND

Michigan Partners for Freedom (MPF) Local Leaders are building demand for Self-Determination and strengthening the self-advocacy movement. MPF Local Leaders collaborate with a statewide network of people with disabilities, family members, advocates, and service providers to advance Self-Determination. The state's disability service system partners with MPF Local Leaders to redesign the system based on the principles of Self-Determination.

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The past, present, and future of the self-advocacy movement told by Tia Nelis.


Tia Nelis, Self-Advocacy Specialist, Institute on Disability & Human Development, UCEDD/LEND
Renae Alvarez, MPH, IL LEND , Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;

The self-advocacy movement in the US is a human rights movement of and by people with intellectual and developmental disabilities (IDD). It involves people with IDD working together to take charge of their lives, fight discrimination, and advocate for justice. The purpose of the presentation will be to educate others about the history, current landscape, and future directions for the self-advocacy movement.

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Building Community Networks For Change: A promising practice to increase grassroots leadership


Mark Starford, Director (BRC), Tarjan Center UCLA, UCEDD
Molly Kennedy (Self-Advocate), MPA, Chair, CA State Council Developmental Disabilities, Sacramento, CA, United States, CA - Tarjan Center UCLA, UCEDD;

A Network of persons with intellectual disabilities and community allies significantly increases the strength of coalitions and their influence for change at the community and levels. This Network model provides background, tools and strategies to create a common cause coalition highlighting leadership, facilitation support, coalition building, regional planning with measurable outcomes and engagement in influencing public policy.

Self-Advocate Tool Kit: Grant Writing & Grant Management


Elizabeth Weintraub, Self-advocacy Project Specialist, Association of University Centers on Disabilities
Anna Costalas, MPA, Association of University Centers on Disabilities, Silver Spring, MD, United States;

At the Self- Advocacy summits in 2011 & 2012, it was clear from the self- advocate, they were asking for more financial independence. Therefore this tool kit is designed to help self-advocates who are interested in writing a grant application, and to explain how to manage a grant when you receive one. It was created based on feedback received from self-advocates who participated in the AIDD Self-Advocacy Pilot Project grants.

Read and download presentation materials >