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AUCD - Concurrent Sessions

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Monday, November 18, 2013 2:15 pm - 3:30 PM

Location: Meeting Room Level


Developing MCH Leaders to Promote Inclusion in an Increasingly Diverse World.


Tawara Goode, MA, Director, Georgetown University Center for Excellence in Developmental Disabilities , Georgetown University Center for Child & Human Development, UCEDD/LEND
Suzanne Bronheim, PhD, National Center for Cultural Competence, Washington, DC, United States;

This session presents an approach for MCH training programs to reflect on and develop action strategies for addressing cultural and linguistic competence in multiple aspects of their programs. It will utilize a Checklist Series developed by the National Center for Cultural Competence for MCH training programs, with input from MCH training program leaders, that address the following program dimensions: research, experiential learning, learning climate, community engagement and curriculum.

Managed Care and Care Coordination: Ideas from the field


Ilka Riddle, PhD, Director, University of Cincinnati UCE, UCEDD/LEND
Donald Lollar, Portland, OR, OR - Oregon Institute on Disability & Development, UCEDD/LEND;
Helen Hendrickson, Worcester, MA, MA - Eunice Kennedy Shriver Center, UCEDD/LEND;
Stephen Sulkes, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Barbara LeRory, Detroit, MI, MI - Developmental Disabilities Institute, UCEDD;
Elizabeth Hecht, Madison, WI, WI - Waisman Center, UCEDD/LEND;

This session will provide an overview of strategies that UCEDDs and LENDs have used in five states to increase awareness about health needs of individuals with disabilities in managed care efforts, such as coordinated and integrated care organizations, state health exchanges, and navigator programs. Ideas on care model and delivery, outreach and education, and partner engagement will be shared. This session is sponsored by the AUCD Health & Disability SIG.

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HBCU Disability Consortium


Denize Stanton-Williams, Master of Arts, Director HBCU Disability Consortium, University ofthe District of Columbia
Sislena Ledbetter, PhD, University of the District of Columbia, Washington, DC, United States;
Wendy Harbour, EdD, Syracuse University, Syracuse, NY, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;

The University of the District of Clumbia , in collaboration with the Taishoff Center for inclusive Higher Education at Syracuse University and Howard University, have entered a partnership to create an Historically Black Colleges and Universities (HBCU) Disability Consortium whose purpose is to promote systematic dialog among HBCUs that will support students with disabilities more effectively as they matriculate at their campuses.

Using the SIB-R to assess housing and independent living skills outcomes for postsecondary students with intellectual disabilities.


David Lojkovic, Ph.D. Candidate, George Mason University
Catherine Creighton Thompson, George Mason University, Fairfax, VA;
Heidi J. Graff, PhD, Mason LIFE Program, Fairfax, VA;
Michael B. Frye, MS, George Mason University, Fairfax, VA;
Jugnu S. Agrawal, PhD, Fairfax County Public Schools, Fairfax, VA;

The focus of this presentation is on the first two years of data collected as part of an ongoing longitudinal study on independent living skills and housing outcomes for postsecondary students with intellectual disabilities. The SIB-R was used to facilitate progress monitoring for individuals and to compare outcomes across disability categories and residential versus commuter students.

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Intentional Leadership: Incorporating Leadership Training in MCH Training Programs


Meaghan McHugh, MPH, Program Manager
Lewis Margolis, MD, MPH, Chapel Hill, NC, United States, NC - Carolina Institute for Developmental Disabilities, UCEDD/LEND;
Elizabeth Humphreys, PhD, Durham, NH, United States, NH - New Hampshire LEND Program;
Deborah Pearson, PhD, Houston, TX, TX - LoneStar, LEND;

The MCHB/AUCD Interprofessional Leadership Learning Collaborative (ILLC) supported 6 teams of 14 training programs to incorporate and evaluate intentional leadership training in their program. During this session, faculty from 4 participating ILLC programs will present their approaches. Participants will then have significant time in small groups to share their own challenges and strategies to incorporate intentional leadership concepts and skills into their training programs.

DSM-5: Continuing the Conversation


Tory Christensen, MSW, BCBA, Sr Project Specialist, Virginia Department of Health, SDHG
Shannon Haworth, MA, RichmondVirginia Commonwealth University, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
Pauline Filipek, MD, Houston, TX, United States, TX - LoneStar, LEND;
Laura Carpenter, Phd, BCBA, Charleston, SC, United States, SC - Medical University of South Carolina, DBP;
Brian Reichow, PhD, BCBA-D, University of Connecticut, Storrs, CT, United States, CA - California Department of Health Services, SDHG;

The Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was released in May 2013, bringing with it several changes for Autism Spectrum Disorders (ASD) classifications. Panelists will discuss these changes as well as clinical implications, misconceptions and arising problems. A discussion session will follow the presentations, moderated by Brian Reichow, PhD, BCBA-D. This session is sponsored by the Autism SIG.

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Expanding Inclusion in Research


Kate Caldwell, Postdoctoral Research Fellow, Institute on Disability & Human Development, UCEDD/LEND
Bryce Fifield, Ph.D., Director, Center for Persons with Disabilities, Institute for Disability Research, Policy & Practice, UCEDD/LEND
Carol Gill, Ph.D., Assoc. Prof, Institute on Disability & Human Development, UCEDD/LEND
Brent Askvig[1],PhD[2],Minot[4],ND[5],ND - North Dakota Center for Persons with Disabilities, UCEDD[7]
This presentation seeks to interrogate the notion of inclusion in disability research by expanding upon 1) the language of advocacy; 2) ideas of voice and inclusion using augmentative and alternative communication (AAC); and 3) Dyadic Interviewing as an emerging interdependent approach to research participation.

Putting Parents in the Driver's Seat: Enhancing outcomes for young children with disabilities


Caroline Coffield, PhD, Instructor of Pediatrics, The Boggs Center on Developmental Disabilities, UCEDD/LEND
Mark Innocenti, PhD, Research & Evaluation Director, Institute for Disability Research, Policy & Practice, UCEDD/LEND
Ann Mastergeorge, Ph.D., Associate Professor, University of Arizona
This panel will include discussions on (1) evidence-based parented-mediated approaches to early intervention for young children diagnosed with or at risk for ASD, (2) a reliable, valid and easy-to-use assessment tool of parent-child interaction, and (3) making screening and referral services more accessible to families of all cultures through the provision parent-led training sessions for Federally Qualified Health Centers.

Statewide systems of support for people with autism and other developmental disabilities: Examples from school based and adult services


David Rotholz, Ph.D., BCBA-D, Executive Director, Center for Disability Resources, UCEDD/LEND
Peter Doehring, Ph.D., Director, ASD Roadmap
Julie Fodor, PhD, Director, Center on Disabilities and Human Development, UCEDD
Presentations will (1) examine results of the first national assessment of state policies/practices regarding the definition/delivery of behavior support services to people with ID/DD receiving publicly financed supports in the US, (2) describe a continuum of behavioral support spanning health and education, and integrating training, research, and policy, and (3) describe a coaching and training process for rural schools serving student with autism, including the coaching process, online training approaches, data collection forms and procedures, and outcomes.

Diverse Communities and Cultures: Providing Care


Amy Hewitt, PhD, Director, Institute on Community Integration, UCEDD/LEND
Maria Avila, PhD(c), Program Co-Director, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND
Matthew Bogenschutz, PhD, Assistant Professor, Partnership for People with Disabilities, UCEDD/LEND
Presentations will (1) examine how Hmong, Latino, and Somali immigrants and refugees with disabilities access and utilize health services, (2) share the process and findings of a study funded by the CDC, NIH and Autism Speaks that engaged the Somali community in investigating the prevalence of autism in 7-9 year olds using school and clinic records, and (3) discuss an embedded mixed methods research paper consists of measuring providers cultural and linguistic competency knowledge and skills in assessing and screening young children from multi-cultural backgrounds for developmental concerns.