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AUCD - Concurrent Sessions

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Tuesday, November 2, 2010 10:15 am - 11:30 am

Location: President's Quarters & Potomac Rooms


Virtual Home Visits: Delivering Early Intervention Services to Children and Families Via the Internet


Barbara Fiechtl, Program coordinator, Institute for Disability Research, Policy & Practice, UCEDD/LEND
Sue Olsen, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND
Sarah Rule, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND

Video conferencing is a common mode of communication in business and personal life. This presentation will share data from two years of using video conferencing to provide early intervention services to children and families. Challenges and solutions to this method of delivery will be shared.

LEND?s Family Growth Chart: Findings from the LEND Family Discipline Workgroup 2010 Survey


Fran Goldfarb, MA, CHES, Director, Community Education, USC, Childrens Hospital, UCEDD/LEND
Sheryl Feuer, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND
Mark, Smith, MS, Ohmaha, NE, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND

Family has been a discipline in LENDs for over 15 years. All LENDs are unique and so is the Family Discipline within each program. We will share findings from the 2010 LEND Family Discipline Survey, reflecting the range, character and diversity of the Family Discipline in LEND Programs.

Mid-Atlantic Regional Emergency Transitions Initiative (MA-RETI)-an eight-state coalition for emergency transitions planning focused on individuals with disabilities and families.


Carl Cameron, Ph.D., President and CEO Inclusion Research Institute, Inclusion Research Institute, Inclusive Preparedness Center
William G. Swenson, Ph.D., Inclusion Research Institute/Inclusive Preparedness Center, Washington, DC

The Mid-Atlantic Regional Emergency Transitions Initiative (MA-RETI) partnership, an eight-state coalition, has joined in planning efforts to develop both intra-state and interstate plans to support people with disabilities and their families, as they face emergency transitions resulting from evacuations or other effects of disasters.

The Public Health/ Policy Perspective in MCH Training: LEND/New York State Title V Collaboration through Trainee Evidence-Based Projects


Karen Edwards, MD MPH, Director of Training, Center on Disability and Development, UCEDD
Christopher Kus, MD MPH, New York State Department of Health, Albany, NY
Susan Slade, RN, MS, CHES, New York State Health Department, Albany, NY
Patricia Towle PhD, WIHD, Westchester, NY
LEND trainees and faculty from Westchester Institute for Human Development meet annually with Title V leadership and staff at New York State Department of Health (DOH) to present LEND ?Evidence-based Projects? and learn about MCH/CSHCN Programs. Resulting collaboration between teams and DOH staff strengthen the public health perspective of projects.

VA LEND: Collaborating with Rural School Divisions to Train Multidisciplinary Autism Assessment Teams


Joann Bodurtha, MD, MPH, LEND Director, Partnership for People with Disabilities, UCEDD/LEND
Donald Oswald, PhD, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND
Donna Gilles, EdD, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND
Judy Sorrell, Shenandoah Valley Regional Program, Fisherville, VA, VA - Virginia Department of Health, SDHG

Presenters will discuss collaborative efforts to develop school-based multidisciplinary autism assessment teams in rural areas. Using a strategic planning process over a 2-year period, school personnel received training and mentoring in the administration of ?gold-standard? diagnostic instruments, multi-disciplinary team functioning and family-centered practice.

Bringing Family-Centered Care Home: A seven year evaluation of pediatric residency training program Project DOCC


Jenness Roth, MEd, Family Faculty Coordinator, Center on Developmental Disabilities, UCEDD/LEND
Frederick B. Palmer, MD, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
David Kube, MD, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND
Elizabeth Bishop, MSSW, Memphis, TN, TN - Boling Center for Developmental Disabilities, UCEDD/LEND

Pediatric residents at the University of Tennessee are required to complete a one month neurodevelopmental disabilities rotation at the Boling Center UCEDD/LEND. One component of the curriculum is a parent as trainer model called Project DOCC, Delivery of Chronic Care. The impact Project DOCC had on residents' perceptions of life for a family with a child with chronic health care needs was assessed from the past seven years.

Leadership and Interdisciplinary Management of NDD-ASD


Eileen McGrath, PhD, Assistant Professor; AZLEND Training Director, University of Arizona
Sydney A. Rice, MD, MS, University of Arizona, Tucson, AZ, AZ - Institute for Human Development, UCEDD

This poster presents an introductory course in the leadership management of neurodevelopmental disabilities with a special focus on autism spectrum disorders. Topics addressed include disease progression from birth to adulthood, interdisciplinary management of care, team development, leadership roles, current Maternal Child Health Bureau legislation and programs affecting those with NDD-ASD.

UCEDD-Minority Serving Institution Partnerships in Georgia and California: A look back at the first year for two projects


Daniel Crimmins, Ph.D., Director, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Mitchell Tepper, PhD, MPH, Morehouse School of Medicine, Atlanta, GA
Yvonne Fry-Johnson, MD, MSCR, Morehouse School of Medicine, Atlanta, GA
Barbara Wheeler, PhD, Los Angeles, CA
Jennifer Johnson, EdD, Administration on Developmental Disabilities, Washington, DC
Suad Jama, MSW, Administration on Developmental Disabilities, Washington, DC

This symposium will review first year activities for the two ADD-funded partnerships between UCEDDs and MSIs ? one in Georgia and the other in California. The session will examine organizational homes and cultures, goals and objectives, and accomplishments. We will also discuss some of the obstacles encountered, lessons learned, and initial efforts at sustaining the projects.

Taking Best Practice to Scale: New Learning from a Systems Change Effort in Seven States


Michael Steinbruck, M.A., Self-Directed Supports Project Manager/Trainer, The Boggs Center on Developmental Disabilities, UCEDD/LEND
Michael Smull, The Learning community for Person Centered Practices, Annapolis, MD
Mary Lou Bourne, M.A., The Learning community for Person Centered Practices, Hollidaysburg, PA
Frank Kirkland, Asst. Director, State of NJ, Division of Developmental Disabilities, Hamilton, NJ
Lauren Panarella, Exec. Director, M.A., Arc of Somerset County, NJ, Manville, NJ

Panel discussion highlighting learning from a seven state organization and systems change effort designed to make expected practice typical. It addresses the need for systems to define what is expected and close the gap between best and typical practice. A focus will be one State?s unique collaboration between a UCEDD, a State agency and a community provider.

The USC UCEDD LEND & CHLA Pediatric Residency Program Joint Noontime Conferences: A Model for Leveraging Partnerships


Patrice Yasuda, PhD, CA-LEND Training Director, USC, Childrens Hospital, UCEDD/LEND
Sheela Rao, MD, Childrens Hospital Los Angeles, Los Angeles, CA
Joyce Jaiver , MD, Childrens Hospital Los Angeles, Los Angeles, CA
Eyal Ben-Isaac, MD, Childrens Hospital Los Angeles, Los Angeles, CA
Larry Yin, MD, Childrens Hospital Los Angeles, Los Angeles, CA, CA - USC, Childrens Hospital, UCEDD/LEND

Resulting from positive feedback from its former LEND physician trainees, the CHLA Pediatric Residency Program requested that LEND create a curriculum that incorporated information on children with special needs, service systems and advocacy into their existing training structure. Lectures have been well received and fill a void in their training.

Medical Home Competencies for LEND Trainees


Michelle Esquivel, MPH, Director, American Academy of Pediatrics
Judith Holt, PhD, URLEND, Centers for Persons with Disabilities, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND

LEND curricula and the medical home (MH) model intersect in many areas?interdisciplinary teamwork, service provision, family-centered care, cultural competency, leadership in policy/advocacy. LEND trainees use the MH model basics, though it may not be labeled "MH training". MH competencies were written to ensure trainees have an understanding/appreciation for the MH model of practice; competencies focus on parts of a MH that do not overlap with general LEND instruction.

The College of Direct Support: Going to Scale and the Importance of Partnerships


Amy Hewitt, Ph.D., Director, Institute on Community Integration, UCEDD/LEND
Derek Nord, Ph.D., Minneapolis, MN, MN - Institute on Community Integration, UCEDD/LEND
Rachel Weingarten, Madison, WI, WI - Waisman Center, UCEDD/LEND

The College of Direct Support online training curriculum began as mechanism to train and develop the direct support workforce. It currently reaches hundreds of thousands of professionals. This presentation will provide attendees with partnership, development, and research and evaluation strategies to improve the scope and reach of their own work.

Evidence to Practice. Using system performance data to strengthen developmental disabilities service delivery, improve practice and facilitate collaboration among policymakers.


Charles Moseley, Ed.D., Associate Executive Director, NASDDDS
Val Bradley, MA, Human Services Research Institute, Cambridge, MA
Sarah Taub, MA, Human Services Research Institute, Cambridge, MA
Charlie Lakin, PhD, Minneapolis, MN, MN - Institute on Community Integration, UCEDD/LEND

An overview of the National Core Indicators program with presentations and recommendations from UCED and state DD agency representatives on accessing and using NCI data to perform research and improve service quality, understanding the impact of service design on employment, community participation, satisfaction, choice and decision making among other variables.

Putting shared information resources to work: How to help the autism community, researchers, and practitioners through the IAN Project.


Paul Law, MD, MPH, Director, Interactive Autism Network, Kennedy Krieger Institute, UCEDD/LEND
Cheryl Cohen, BA, Kennedy Krieger Institute, Baltimore, MD, MD - Kennedy Krieger Institute, UCEDD/LEND

This presentation provides attendees with the practical tools needed to use and teach others about the data resources and services provided by the Interactive Autism Network (IAN), which provides data collected from 33,000 research subjects to qualified researchers, a subject recruitment matching service, real-time public policy dashboards, and public information.

Outcomes of Statewide Autism Activities Initiated by ?Act Early? Regional Summits


Jennifer Bogin, M.S.ed, BCBA, Project Manager, AUCD
David A. Rotholz, PhD, BCBA, Columbia, SC, SC - Center for Disability Resources, UCEDD
Rae M. Sonnenmeier, PhD, Lebanon, NH, NH - New Hampshire LEND Program
Richard A Kiefer-O'Donnell, PhD, Anchorage, AK, AK - Center for Human Development, UCEDD
Anthony Antosh, PhD, Providence , RI, RI - The Paul V. Sherlock Center on Disabilities, UCEDD
JoAnn Yuen, PhD, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND
Arnold Birenbaum, PhD, Bronx, NY, NY - Albert Einstein College of Medicine/CHAM, DBP
Tracy Mann, M.A., Newark, DE, DE - Center for Disabilities Studies, UCEDD

The ?Act Early? regional summit project aims to increase awareness, early diagnosis and early intervention for young children with Autism Spectrum Disorder and other Developmental Disabilities. This session will include a panel of state leaders from past ?Act Early? summits who will share ongoing state activities initiated by the summit.

Transition to the 21st Century: Two Evidence-based Interventions


Margo Vreeburg Izzo, Ph.D, Associate Director, The Nisonger Center, UCEDD/LEND
David R. Johnson, Ph.D , MN - Institute on Community Integration, UCEDD/LEND, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;

Two evidence-based programs will be described; the first program, Check and Connect: provides strategies to engage and retaining Students with Disabilities at-risk of dropping out; The second program uses an electronic mentoring to assist students learn 21st century skills as they develop a self-directed transition portfolio. Both quantitative data and student case studies will be shared.