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AUCD - Poster Symposium 3B - Systems-level Implementation, Demonstration and Evaluation and Surveillance and Epidemiological Efforts

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Monday, November 14, 2022 3:45 pm - 5:00 pm

Location: M2: Salon 3

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of poster symposia that run at the same time as concurrent sessions. During these 75-minute poster symposia, 10-14 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator followed by brief introductions by presenters. Attendees will then be free to move around the room and connect with individual presenters for the remainder of the session. Attendees are welcome to move between symposia rooms and view posters on other topics. Conference posters will be available to view on the website and in the mobile app.




Presenters

Autism Spectrum Disorder Prevalence in Minnesota

Presenter(s)

Libby Hallas, Project Coordinator, Institute on Community Integration, UCEDD/LEND

Presents results from the CDC-funded Minnesota-Autism and Developmental Disabilities Monitoring Network project, which monitors the prevalence of autism spectrum disorder (ASD) in children within portions of three counties in Minnesota. Early identification can improve outcomes for children with ASD, so understanding pathways to identification, as well as the broad picture of ASD, are important in informing public health policy in the hopes of better serving children.

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Impact of ACEs on Children with Special Health Care Needs: analysis from the 2019-2020 National Survey of Children's Health

Presenter(s)

Anthony Cahill, Ph.D., Sr. Scientist, Center for Development & Disability, UCEDD/LEND

This poster analyzes the impact of ACEs on Children with Special Health Care Needs (CSHCNs); identifies sociodemographic characteristics associated with ACEs; and compares sociodemographic characteristics and Adverse Childhood Events between CYSCHNs and non-CYSCHNs.

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Assistive technology to inhibit social isolation in elders and persons with disabilities

Presenter(s)

Anita Swanson, PhD, , Texas Center for Disability Studies, UCEDD/LEND

Social isolation and loneliness have serious detrimental effects. A project to combat social isolation in persons with disabilities, elders, and their caregivers started with a local ADRC and continued with another ADRC. The means to reduce isolation was assistive technology. Smart connectivity kits were developed to be loaned for technology trials. Hands-on demonstrations of the equipment were also available. Session participants will discover assistive technology to reduce social isolation.

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Increasing Capacity to Assess, Select, and Implement Assistive Technology

Presenter(s)

Kaitlin O'Neill, Interdisciplinary Human Development Institute, UCEDD/LEND

Service Providers need accessible training and tools to support their capacity to assess, select, and implement assistive technology (AT). The Making Assistive Technology Choices to Help Individuals Accomplish Tasks (MATCH AT) tool provides a module and a toolkit to guide professionals through a step-by-step process for selecting and implementing AT.

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OSEP Model Demonstration Project - Developing Identification, Screening, Referral and Tracking Systems for Infants and Toddlers

Presenter(s)

Bethanne Vergean, Learn the Signs Act Early Ambassador for CT, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND

This session will provide participants a summary of the approach to the OSEP Model Demonstration Projects to Develop Identification, Screening, Referral, and Tracking Systems for Infants and Toddlers by SRI International, University of Connecticut and WestED.


Inclusion of Individuals with Disabilities in Disabilities Research, Evaluation and Surveillance Teams

Presenter(s)

Vanessa Hiratsuka, , Center for Human Development, UCEDD/LEND

This poster provides a summary of the scholarly literature on inclusion of individuals with intellectual and developmental disabilities as team members in research, evaluation and surveillance projects. The poster lists lessons learned from a UCEDD team in Alaska working to incorporate inclusive practices in research and evaluation. It also provides a list of applied research resources and suggestions on inclusive practices.


Health Status and Healthcare Trends among Adults with Intellectual and Developmental Disabilities: Findings from the National Health Interview Survey 1999-2018

Presenter(s)

Kiley McLean, MSW, MSEd, Doctoral Student, Waisman Center, UCEDD/LEND

This presentation details findings from an investigation of the 1999-2018 NHIS to determine if health and healthcare status of adults with I/DD has changed. This session, we will: (1) present 20-year trends in health status, and healthcare access, affordability, and utilization by I/DD status; (2) highlight patterns of health disparities among adults with I/DD; and (3) discuss if policy changes have addressed care and improved well-being of individuals with I/DD.

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Public Health Surveillance for Early identification of Children with Hearing Loss and Evaluation

Presenter(s)

Maria Sanchez, MS, Health Scientist , CDC

State-based Early Hearing Detection and Intervention Information Systems (EHDI-IS) are tools used to collect data on infants' hearing screening and follow-up status. These systems serve as tools that assist EHDI programs in their efforts to help ensure all children who are deaf/hard of hearing (DHH) are identified early and receive intervention services. The quality and timeliness of the data collected with these systems are crucial to meeting these goals effectively

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CDC's "Learn the Signs. Act Early." Revising Resources for Improved Family Engagement and Identification of Potential Developmental Delay

Presenter(s)

Toni Whitaker, MD, , TN - University of TN Health Science Center LEND

A systematic effort to update Centers for Disease Control and Prevention's "Learn the Signs. Act Early." program materials, including developmental milestones, was taken to support equitable access to culturally relevant and easy to use developmental monitoring milestones and tools that support early identification, developmental promotion, and early relational health. Attendees will learn about new program features, recommendations for use, and tips for engaging families in developmental monitoring and promotion.

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Accessing Disability Information and Resources: Findings from the Tennessee Disability Services Study

Presenter(s)

Emily Lanchak, M.Ed., Educational Consultant, Vanderbilt University, UCEDD/LEND

The Tennessee Disability Services Study surveyed more than 3,000 individuals with disabilities, family members, and professionals in Tennessee. This evaluation project was designed to provide a data-driven way of examining what matters most to disability communities across the state, to determine how they and professionals currently access information and resources, and to solicit their recommendations for making this process easier. Practical recommendations for addressing statewide information dissemination will be shared.

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Vermont Families' Experiences and Perceptions of Early Intervention Services Delivered Through Children's Integrated Services (CIS)

Presenter(s)

Morgan Crossman, Ph.D., M.A., , Center on Disability & Community Inclusion, UCEDD

Children's Integrated Services (CIS) is the statewide health promotion, prevention, and Early Intervention system of services that Vermont uses to improve child health and development. CIS integrates service provision and braids funding for four key programs to create seamless service navigation for families: Early Intervention, home visiting, early childhood and family mental health, and specialized child care. Families' experiences with CIS were captured and analyzed to support continuous quality improvement.

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Friendships and Physical Activity: Perspectives of Autistic Youth

Presenter(s)

Shannon Zimmerman, M.Ed, , Center for Excellence in Disabilities, UCEDD/LEND

Physical activity is an important context in which youth experience wellbeing. Autistic youth who are physically active are more likely to report positive social relationships with peers. In this study, we asked autistic youth about making and keeping friends during exercise, sport and physical activity. We will share what we have learned and offer ideas for supporting friendships in these settings.

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Increasing the quality of data collection in the UCEDD Network to measure equity

Presenter(s)

Andrew Roach, MPH, DEI Research Associate, Center for Leadership in Disability at Georgia State University, UCEDD/LEND

The Center for Leadership in Disability has partnered with AUCD to help update the current UCEDD Resource Center (URC) Evaluation Design, in consultation with other key members from the UCEDD network, to reflect the new Administration for Community Living (ACL) requirements.


Show me the disability data: An ongoing conversation about the questions we ask.

Presenter(s)

Adrienne Miao, PhD, , Center on Disability & Community Inclusion, UCEDD

This poster shares efforts underway at the Center on Disability and Community Inclusion at the University of Vermont to rethink how they collect and use disability data and proposes new tools to consider.

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Descriptive and functional characteristics of children with ASD in Texas: Data to equitably guide service needs in Texas.

Presenter(s)

Nina Zuna, Ph.D., Associate Director, Texas Center for Disability Studies, UCEDD/LEND

This paper utilized four years of data from a statewide ABA/transition parent training program in Texas to examine demographics of parents (e.g., income, race) and their children with ASD (e.g., gender, race, disability), including children's level of functioning (e.g., language ability, executive functioning). Understanding the demographic and functional capabilities of children with ASD is critical to providing tailored and equitable services. Implications for other states are discussed.

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Factors Influencing the Implementation of a National Training Initiative: Project SCOPE and the Use of the ECHO Model

Presenter(s)

Canyon Hardesty, , Wyoming Institute for Disabilities, UCEDD

This poster will highlight the factors influencing implementation of a National Training Initiative - Project SCOPE: Supporting Children of the OPioid Epidemic. We present results of a mixed-method evaluation of fourteen UCEDD and LEND programs implementing ECHO between 2019 - 2022. The Consolidated Framework for Implementation Research was used to understand influences on program implementation. Recommendations for successful implementation of other national and local training initiatives will be discussed.