AUCD - Concurrent Sessions Group 6
<< Back to ProgramTuesday, November 15, 2022 3:45 pm - 5:00 pm
Session Description
Concurrent sessions are 75-minute small group discussions or panel presentations.
Presenters
Square Pegs and Round Holes: Considerations for Applying a Hybrid Model in Post-Pandemic Training ProgramsPresenter(s)
Kate Thompson, MSSW, ACT LEND Administrative Program Coordinator, Texas Center for Disability Studies, UCEDD/LENDCOVID-19 has inspired many new ways to teach graduate students. This includes trainees in LEND programs. There have been challenges and benefits to online learning. This discussion will talk about how to deliver a hybrid LEND program. We will discuss research related to online learning in synchronous and asynchronous formats. We will also talk about some of what graduate students and trainees in a hybrid LEND program have experienced.
Improvement Science as a Tool for Closing Health and Education Equity Gaps for People with Disabilities: Community Scholars.
Presenter(s)
Laura Rodriguez Lopez, M.Ed., Training Director, Florida Center for Inclusive Communities, UCEDDThis presentation will help participants understand how Improvement Science (IS) can be used as a tool for accelerating improvement when addressing equity problems. Community Scholars will serve as an example. It will include interactive activities through which participants will put the core principles of IS to use. Participants will be able to take what they learn and promptly apply it to drive rapid and sustainable change in their organizations.
Advancing opportunities for employment of young adults on the autism spectrum: an interactive discussion on promising strategies and equity considerations
Presenter(s)
Paul Shattuck, PhD, Senior Fellow, MathematicaAfter leaving high school, young adults on the autism spectrum experience low participation in postsecondary education, vocational or technical education, and employment. Moving the needle on employment outcomes for this group requires more evidence on promising approaches and input from a wide range of stakeholders. This interactive discussion will explore barriers to and opportunities for improving employment and career development within this population, with a strong focus on equity considerations.
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Families' Perspectives on Social Support and Parenting Children with Disabilities
Presenter(s)
Jenna Lequia, PhD, , Westchester Institute for Human Development, UCEDD/LENDSocial support is a protective factor that promotes positive parenting and child outcomes. This session will describe parent perceptions of the utilization of, access to, and perceived benefits of social support in parenting children with disabilities. Specifically, we will highlight the crucial role of social support for parents, emphasize the various functions and sources of social support, and highlight barriers and facilitators to establishing and maintaining a social support network.
UCEDDs and Inclusive Higher Education: What's Happening & What Are the Possibilities for Collaboration?
Presenter(s)
Susanna Miller-Raines, MSW, Regional Alliance Manager, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LENDThis session will present examples of collaborations between UCEDDs and inclusive higher education programs at the national, state and university levels. The interactive discussion will engage participants to consider a variety of models of engagement, including how UCEDDs may become involved in inclusive higher education, including through state and regional alliances as well as considering program evaluation, improvement and sustainability.
Family Support Strategies: Pathways to Improve Health and Wellbeing of People with IDD and their Caregivers
Presenter(s)
Katie Arnold, M.S., Visiting Research Assistant Professor, Institute on Disability & Human Development, UCEDD/LENDThis session will discuss family support strategies for people with IDD and their caregivers related to improving health and well-being. Findings from three projects will be shared: 1) Autism in Later Life and Families: A Life Course Perspective; 2) Centering the Voices of People with IDD about Family Support; 3) Strengths-Based Needs Assessment of Caregivers of Adults with Intellectual Disabilities in India.
"Nothing About Us Without Us:" Engaging People with Fetal Alcohol Spectrum Disorders in Research and Practice to Advance Health Equity
Presenter(s)
Christie Petrenko, Ph.D., Research Associate Professor, Strong Center for Developmental Disabilities, UCEDD/LENDMembers of the AUCD SIG on Fetal Alcohol Spectrum Disorders (FASD) present on the importance of self-advocate and professional partnerships to improve health equity and quality of life for FASD. Panel presentations include: (1) an app called My Health Coach, (2) best practices for community advisory boards, and (3) an online mentorship development program. Presenters: Christie Petrenko, Elizabeth Cleveland, Amy Smith, and a group of self-advocates. Moderator: Michael Thornton.
Charting the LifeCourse: A Framework for Uniting Systems and Enhancing Equity
Presenter(s)
Michelle Reynolds, Ph.D., Senior Associate Director, University of Missouri, UCEDD/LENDThis presentation will highlight how Charting the LifeCourse " as a human-centric framework " enhances equity by helping people and families to explore, problem-solve, plan, and advocate for their health needs and opportunities for quality care. Examples of adaptations to the framework for cultural and ethnic backgrounds, specific life circumstances or transitions, and community development will be provided as strategies for enhancing equity.
Strengthening the Interpreter, Family, and Provider Relationship as a Path to Equity
Presenter(s)
Jeanette Cordova, Bilingual Program Manager, ITAC & URC, AUCDWithin the relationship of the interpreter, family, and provider, each person has a fundamental role. We will discuss the challenges and functions of each role, and provide ideas for collaboration to ensure that communication is culturally and linguistically appropriate and accurate. Creating a relationship that helps each person succeed increases effective, proactive, and beneficial participation in the family, especially for the person with a disability.
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Interprofessional Education on Cultural Considerations in Early Identification using the ECHO Model: A Multi-State Public Health Approach
Presenter(s)
Steph Weber, PsyD, Psychologist; Training Director, University of Cincinnati UCE, UCEDD/LENDThe Act Early ECHO series provided a way for families and early childhood professionals in Wyoming, Ohio, Virginia, and Massachusetts to improve early identification of developmental concerns. The series had two areas of focus: cultural considerations and resilience. Each panelist will share information about key aspects of the Act Early ECHO series: content presented, selection of application examples, the value of cross-state collaborations, and evaluation data.
Building Community Power through Partnership between Minoritized Family Leaders and a UCEDD
Presenter(s)
Lynn Hrabik, Researcher, Waisman Center, UCEDD/LENDThis session describes two UCEDD projects that elevate the voices, lived experiences, and priorities of minoritized families to build community solutions. Black and Latino family leaders wanted to help families access services and supports, raise their voices, and co-create solutions. Community and UCEDD leaders partnered to adapt the ?Community Solutions for Health Equity? and UC Davis CEDD ?Sankofa? models. Participants will learn how to incubate similar community-driven projects.
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Filling the Void: Piloting Data Collection Strategies for States to Measure LTSS Needs of Working-Age Adults with Disabilities
Presenter(s)
Christina Wu, MPH, Research and Policy Director, Long-Term Quality AllianceWhile there are substantial data on the LTSS needs of those age 65 and older, there is no existing survey measuring LTSS needs of working-age adults with disabilities. Based on learnings from state pilot projects initiated by Long-Term Quality Alliance and Brandeis University, this session will highlight innovative strategies states can employ to improve their data resources and utilize existing data sources to better support their populations with LTSS needs.
Immunization Access Challenges and Solutions: Implementing Strategies to Expand Access to Immunizations during COVID-19 and beyond
Presenter(s)
Mia Masten, Senior Director, Patient Advocacy, PfizerThis panel will explore the landscape of immunization access challenges that have been a growing concern during the COVID-19 pandemic. They will also discuss important policy developments and opportunities to help address these challenges across the lifespan, including in the disability and other underserved communities.