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AUCD - Concurrent Sessions Group 5

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Tuesday, November 15, 2022 2:00 pm - 3:15 pm

Session Description

Concurrent sessions are 75-minute small group discussions or panel presentations.


Policy Initiatives to Increase Competitive Integrated Employment at the National, State and Local Level


Richard Davis, Master of Social Work (MSW), Senior Policy Advisor, US Dept. of Labor, Office of Disability Employment Policy (ODEP)

The U.S. Dept. of Labor, Office of Disability Employment Policy (ODEP) presently has an Alliance with AUCD, and has developed several resources and initiatives to support state government agencies, providers, and self-advocates to effectively increase Competitive Integrated Employment (CIE). This presentation will give an overview of ODEP's current initiatives, the "National Plan to Increase CIE," and how you can get involved with Employment First efforts in your state.

Improving health equity through statewide systems change in employment and higher education


Johnny Collett, MAEd, Deputy Director, Interdisciplinary Human Development Institute, UCEDD/LEND

This presentation will describe key pieces of legislation from the 2022 Regular Session of the Kentucky General Assembly (KYGA) focused on expanding higher education options and improving employment outcomes for Kentuckians with disabilities. We believe such legislation will help promote health equity in the Commonwealth. Participants will also learn principles used in approaching, engaging, and communicating with KYGA members to help ensure effective sharing of information related to these measures.

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"Learn the Signs. Act Early:" Program Updates, Family Engagement, and Health Equity


Toni Whitaker, MD, , TN - University of TN Health Science Center LEND

Ambassadors from Minnesota, Ohio, and Tennessee will discuss the four components of early identification of young children with developmental delays/disabilities in the context of the updates to the "Learn the Signs. Act Early." Milestones. Presenters will discuss the process for updating the milestones as well as strategies to reach underserved families and communities through state COVID-19 grants. Attendees will also learn strategies for promoting family-engaged developmental monitoring and screening.

Equity in Primary Care: A Patient Centered Medical Home and the Training of Family Medicine Residents


Deborah Spitalnik, PhD, Professor of Pediatrics and Family Medicine and Community Health, The Boggs Center on Developmental Disabilities, UCEDD/LEND

A Patient Centered Medical Home in an inclusive setting, a collaboration of The Boggs Center on Developmental Disabilities and RWJMS Department of Family Medicine and Community Health, provides primary care to adults with IDD and longitudinal training to family medicine residents. With results from a qualitative study this session will demonstrate the importance of care coordination in enhancing access and education. Dialogue on physician training encouraged

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Transition Needs for individuals with IDD and co-occurring Mental Health Conditions: Results of stakeholder survey and action plan outline


Christine Mirzaian, MD, MPH, Director, Clinical and Community Services, USC, Childrens Hospital, UCEDD/LEND

Individuals with intellectual and developmental disabilities and co-occurring mental health conditions are particularly vulnerable during the transition to adulthood, due to multiple challenges in transition from pediatric to adult healthcare, mental health care, and in community integration. We will present results from mixed-methods stakeholder survey and present an action plan based on findings to inform practical solutions to better support this process.

Equitably Serving the Whole Person through Life Transitions While Listening to the Family Voice


Stephanie Coleman, BBA, Family Faculty Mentor, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Through multiple panels/panelists, explore transitions from 1) birth to school-age, 2) primary to high school and 3) high school into adulthood. We share what we've learned and what we wish we had known about transitions from a myriad of viewpoints. Families/Professionals will gain knowledge that can't be found in books or videos, but from families with lived experience working to support the whole person in their lives.

Maintaining Community Integration While Managing COVID-19 Transmission and Mortality: A Review of Data, Policy and Self-Advocate Perspectives


Theodore Kastner, MD, MS, President, Rose F. Kennedy Center, UCEDD/LEND

The panel will present data on COVID-19 transmission and mortality rates for individuals with intellectual and developmental disabilities (I/DD), review state and national policy responses, and offer perspectives of people with I/DD with an emphasis on shaping a balanced response to the need for community integration and the management of endemic COVID.

National Initiative to Address COVID-19 Health Disparities Among Populations at High-Risk and Underserved: Efforts Across Two UCEDDs


Rachel Byers, Master of Public Health, Project Coordinator III, Institute for Disability Research, Policy & Practice, UCEDD/LEND

Individuals with disabilities are more likely to experience health and mental health concerns and less likely to receive the care they need, challenges exacerbated by the COVID-19 pandemic. Representatives from two UCEDDs will detail how they are addressing these health disparities by 1) building multidisciplinary teams; 2) collecting and using data to improve programs; and 3) establishing infrastructure for continued health equity efforts beyond current COVID-19 relief funding.

Equity in Postsecondary Education for Students with Disabilities


Ronda Jenson, , Institute for Human Development, UCEDD

This session includes presentations describing transition to STEM postsecondary education for underrepresented groups including students with disabilities, inclusive postsecondary education for students with intellectual disabilities, and undergraduate STEM education for neurodiverse students. A cross-cutting theme is a focus on the whole student. A moderator will lead a discussion about how postsecondary education supports the whole student and includes disability within their commitment to diversity, equity, and inclusion.

U.S. Migration Policy as Public Health Policy and the Experiences of Disabled Migrants and Migrants in the Direct Care Workforce


K. Eva Weiss, PhD, Director of Research and Evaluation, Institute on Disabilities, UCEDD

Emerging leaders share actionable information about the enduring ableism of U.S. migration and health care policies. The presentation demonstrates (1) the impact U.S. migration policies have had on migrant and public health, (2) the factors producing contemporary health inequity among disabled migrants and potential solutions, and (3) migration's role in the direct care workforce. Attendees will learn how they can make a difference in the lives of disabled migrants.

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Evaluating efforts to improve early identification of developmental delays and disabilities: Act Early Response to COVID-19 Project Grantees


Charlotte Marshall, MPH, Evaluation Project Manager

This panel will bring together Act Early Response to COVID-19 project grantees and AUCD evaluation team members. Panelists will showcase diverse evaluation activities to demonstrate their work improving early identification of developmental delays and disabilities among young children and supporting resiliency among communities disproportionately affected by COVID-19. Attendees will learn about applying process and outcome evaluation to a national project and how to conduct supplementary evaluation across states and territories.

Engaging Transition-Age Youth/Adults with IDD and Other Stakeholders: Identifying Health Outcomes, Creating Research Teams, and Building Equitable Partnerships


Beth Malow, MD, MS, Professor of Neurology and Pediatrics, Vanderbilt University, UCEDD/LEND

This session presents strategies used to engage transition-age youth and adults with intellectual and developmental disabilities (IDD) and other stakeholders including caregivers, clinicians, and payers in equitable research and practice partnerships. Our three presentations will focus on: (1) Identifying Health Outcomes, (2) Creating Research Teams, and (3) Addressing Challenges of Transition to Adulthood.

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Development and Implementation of a Comprehensive COVID Vaccine Clinic for Individuals with Neurodevelopmental Disabilities and their Families


Van Ma, MD, Developmental-behavioral pediatrics fellow, UC Davis at the MIND Institute, UCEDD/LEND

The UC Davis MIND Institute Clinic and UCEDD developed a dedicated COVID Vaccine Clinic to provide a safe and personalized vaccination process for individuals with neurodevelopmental disabilities and their families. This session will describe the vaccination process including the pre-appointment interview, day of appointment processes, and clinic environment adaptations. This initiative so far has been successful in vaccinating 99% of individuals scheduled. A dissemination toolkit will be shared.