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AUCD - Concurrent Sessions Group 3

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Monday, November 14, 2022 3:45 pm - 5:00 pm

Session Description

Concurrent sessions are 75-minute small group discussions or panel presentations.



Presenters

Addressing the Needs of a Vulnerable Population: a Medical, Legal, and Mental Health Interdisciplinary Model.

Presenter(s)

Mallory Legg, JD, Director, Project HEAL, Kennedy Krieger Institute, UCEDD/LEND

Equity, diversity, and inclusion discussions at Kennedy Krieger Institute brought to focus one clinic that addresses developmental and behavioral disorders in children from low-income urban settings. Discussions concluded that integrating legal consultation and mental health counseling services could better meet the needs of this clinic's patients and families. This novel multidisciplinary team of medical, legal, and behavioral health personnel is a model of comprehensive care for similar clinical settings.

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Promoting Health Equity with Familiar Messengers: COVID-19 Vaccine Confidence and Local Outreach with Developmental Disability Stakeholders.

Presenter(s)

Holly Hohmeister, MS, , AUCD

This session will describe AUCD's Local Vaccine Outreach with the Disability Community Initiative, which partnered with Developmental Disability organizations, UCEDD and LEND network leaders, regional collaboratives, and AUCD Trainees. This innovative opportunity supported the development and dissemination of COVID-19 vaccine confidence messages and outreach activities for targeted developmental disability stakeholders. Strategies used to develop messages, barriers identified and addressed, and outreach activities and outcomes from partners will be highlighted.

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Supporting Equitable Access to Education for Children and Adolescents with Sickle Cell Disease Through Interdisciplinary Health Care

Presenter(s)

Lisa Carey, Ed.D., Assistant Director, CILSE , Kennedy Krieger Institute, UCEDD/LEND

This panel presentation addresses the ways in which interdisciplinary healthcare supports children and adolescents with sickle cell disease in achieving more equitable academic outcomes. Presentations will describe the neurodevelopmental impact of sickle cell disease and the benefits of included an education specialist within an interdisciplinary healthcare approach. Barriers to implementation of this type of programing and potential policy and practice solutions will also be discussed.


Equity in Access to Long-term Supports and Services

Presenter(s)

Sheryl Larson, Ph.D., Research Manager 3, Institute on Community Integration, UCEDD/LEND

Access to services is an important part of health equity. This panel examines state variations in waiting lists and number of people getting LTSS through state IDD agencies. We will also examine CMS policies and strategies to enhance access, and state strategies to address waiting lists and to serve all people with IDD who need and qualify for services.


Effective Outreach to Ensure Equity for Intersectional Communities with Disabilities-Lessons from the Ground

Presenter(s)

Vanessa Ochoa, Strategic Partnership & Community Engagement Advis, UC Davis at the MIND Institute, UCEDD/LEND

In this Session, we will explore and provide on-the-ground examples of effective outreach strategies that take into consideration, the intersectional identities of individuals with Intellectual and Developmental Disabilities including race, language, faith, immigration status, to ensure the same access to information and services.


Promoting Cultural Humility and Collaboration Across the Pacific to Foster Equity and Best Practices for Children with Disabilities

Presenter(s)

May Okihiro, MD, Associate Professor/Director, Hawaii MCH LEND Prog, Hawaii Center on Disability Studies UCEDD/JABSOM LEND Program

We will describe the historical and current health, educational and economic disparities among Native Hawaiian and other Pacific Islander (NHPI) children, especially those with ASD and other developmental disabilities, how the Hawaii MCH LEND program is promoting cultural and linguistic humility and responsiveness to improve access to quality care for NHPI children, and an innovative learning academy partnering institutions across the Pacific to promote cross-cultural collaborations.

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Increasing equity in the diagnostic process of Autism Spectrum Disorder

Presenter(s)

Allison P. Fisher, Master of Arts , Graduate Student, University of Cincinnati UCE, UCEDD/LEND

A panel of presenters will review three studies that focus on caregivers' experiences with the diagnostic process of Autism. Studies amplify the voice of caregivers and highlight the impact of institutionalized and personally mediated racism on the path to diagnosis. Policy and practical implications that are needed to bring about equity in the diagnostic process will be reviewed.

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Independent Living Philosophy and Providing Rural Disability Services during the COVID-19 Pandemic

Presenter(s)

Rayna Sage, PhD, Principal Investigator, University of Montana Rural Institute, UCEDD

Researchers at the Rural Institute for Inclusive Communities will discuss findings from transcripts of eight nationwide centers for independent living (CIL) staff peer support Zoom meetings facilitated between March 2020 and May 2021 as CIL staff adjusted to the continuous changes brought about by the pandemic. CIL staff grappled with the challenges of remaining true to the Independent Living Philosophy while also distributing resources created by the CARES Act funding.


Reimagining Workforce Systems for Youth and Young Adults with Disabilities through Trauma-Informed Care and Cultural Responsiveness

Presenter(s)

Adene Karhan, LCSW, Extension Associate, Cornell University

COVID-19 has had a ripple effect across the globe, impacting youth mental and physical health in the present day as well as contributing to cumulative trauma which can put youth at risk for long-term mental and physical health conditions, unemployment, and a variety of other challenges. Considerations will be provided for trauma-informed policies and practices systems can engage in to promote psychological safety with youth.

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The Autistic Faculty: Creating a Model To Infuse & Elevate Lived Experience Year-Round

Presenter(s)

Paige Bussanich, MS, Program Manager, The Association of Maternal and Child Health Programs (AMCHP)

The State Public Health Autism Resource Center wanted to infuse the lived experience of autistic people in their work year-round, not just during Autism Acceptance Month. This led to the idea of the Autistic Faculty: co-designing programs/activities with autistic people leading the conversation. This session is for attendees who want to infuse lived experience in their work and will share reflections & strategies from creating the Autistic Faculty model.

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Cultural Reflections in Allyship: Affirming Practices to Enhance Leadership

Presenter(s)

Elizabeth Cleveland, PhD, Director of Training, Partners for Inclusive Communities, UCEDD/LEND

This session will be facilitated by a diverse group of advocates with unique lived experiences. It will focus on strengthening the affirming and inclusive practices in disability leaders through three major discussion topics: 1) taking ownership of allyship through recognizing and accepting our identities and biases, 2) learning when to be an active listener and when to be a proactive agitator in conversations, and 3) developing our own leadership toolboxes.


Effects of Postsecondary Education on Employment Outcomes of Youth with Specific Learning Disabilities: A Propensity Score Matching Approach

Presenter(s)

David George Strauser, MS, , University of Illinois at Urbana-Champaign

This presentation reports on data collected from the RSA-911 database. Data analyzed focused on whether receiving vocational rehabilitation (VR) services of four-year college or university training would lead to improved employment outcomes for young adults with SLD. Presenters will discuss findings from this study and discuss potential implications for VR counselors that can be inferred from this research.


Fostering Inclusive Apprenticeships to Drive Employment, Health Equity, and Community Living: Career Paths for People with Developmental Disabilities

Presenter(s)

Scott Robertson, PhD, Senior Policy Advisor, U.S. Department of Labor (ODEP)

This presentation will discuss how inclusive apprenticeships can help drive career paths for diverse job seekers with developmental disabilities. It spotlights the work of the Partnership on Inclusive Apprenticeship (PIA). PIA is a project run by the Office of Disability Employment Policy (ODEP) in the U.S. Department of Labor. It advances policies and practices to improve access to apprenticeships and career pathways and provides technical assistance for employers and intermediaries.


The Gap Between Healthcare and Wellness Fosters Disability Inequities: Let's Do Something About It

Presenter(s)

James Rimmer, PhD, Director, NCHPAD, University of Alabama at Birmingham

The National Center on Health, Physical Activity and Disability (NCHPAD) is working towards reducing health and wellness disparities in people with disabilities. In this presentation you will learn about how your organization can become involved in NCHPAD's three overlapping initiatives: 1) Expanding capacity for health screening of people with disabilities; 2) Referring patients/clients to online health promotion/wellness programs; and 3) Training healthcare and community-based providers in health promotion/wellness.