AUCD - Concurrent Sessions Group 2
<< Back to ProgramMonday, November 14, 2022 2:00 pm - 3:15 pm
Session Description
Concurrent sessions are 75-minute small group discussions or panel presentations.
Presenters
Promoting Early Screening, Intervention and Quality Childcare for children with Developmental Disabilities through training and technical assistance: LEND/UCEDD Programs ApproachPresenter(s)
Skylar Bellinger, PhD, Associate Professor, Schiefelbusch Institute for Life Span Studies, UCEDD/LENDThis presentation will describe Kansas LEND, Cincinnati LEND and Kennedy Krieger UCEDD's approaches to reaching early childcare and education professionals with evidence-based trainings. Through Continuing Education Webinars, virtual asynchronous, and in-person trainings, these programs have trained thousands of childcare providers in best practices to empower them to more competently and confidently screen and care for children with autism and other developmental disabilities. Various outcomes and future plans will be discussed.
The ABCs of Equity: Developing a Policy Agenda for Colorado's Children and Youth with Disabilities & Special Health Care Needs
Presenter(s)
Lisa Franklin, B.A. Ed, Master of Public Administration (MPA), Parent/Grandparent and Program Manager for P2PCO, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDColorado's population of children with disabilities experiences inequities in access to care and support that contribute to a child's health. The Colorado Health Institute, Title V program, and Parent to Parent engaged diverse stakeholders to develop a statewide policy agenda to systematically address disparities. Through discussion, participants will learn strategies to engage families to increase understanding of disparities, and how engagement with families can facilitate the development of policy solutions.
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Findings from the 2022 Kessler Foundation National Employment and Disability Survey: Supervisor Perspectives (KF-NEDS:SP)
Presenter(s)
Andrew Houtenville, Ph.D., Professor/Research Director, INACTIVE-Institute on Disability, UCEDDThe 2022 KFNEDS-SP is a national survey looking at the effectiveness of the practices that employers use to recruit, hire, train, and retain people with disabilities in their organizations, from the unique perspective of supervisors of employees with and without disabilities. Built upon the 2017 KFNEDS-SP and investigate changes in the workplace, particularly in light of the COVID-19 Pandemic, current labor shortage, and increased focus on diversity.
COVID-19 Vaccine Information and Dissemination SuperHub in the Southeast US
Presenter(s)
Caroline Gooden, PhD, KY LEND Director, Interdisciplinary Human Development Institute, UCEDD/LENDA panel of presenters representing 8 Southeastern states will discuss efforts to increase vaccination rates among persons with disabilities. Strategies learned will address health disparities and increase vaccination rates. Training included online courses, Facebook live sessions, and meetings with state and local champions. Listening sessions were conducted to hear concerns of persons with disabilities; themes were identified and shared. Accessible resources were developed and are available through the SuperHub website.
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Whole Person Health Equity in Severe Developmental Disabilities
Presenter(s)
Carmen Lopez-Arvizu, MD, Medical Director, Pediatric Mental Health Program, Kennedy Krieger Institute, UCEDD/LENDThis panel provides unique insight into growing inequities in global health care, social supports and services imperative to the acute and long-term health and well-being of individuals with severe disabilities, and offers solutions for striving towards parity.
Community partnerships with the RITA-T model to Improve Access for Toddlers at Risk for Autism from diverse sociocultural backgrounds
Presenter(s)
Roula Choueiri, MD, Neurodevelopmental Pediatrician, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LENDAccess for evaluation of Autism is challenging in Toddlers, especially those from minority groups and underserved areas. This panel presents different models in academic and community settings, developed to improve access for this group. We will demonstrate successful partnerships with diagnosticians, Early Intervention programs and Primary Care, which include the Rapid Interactive Screening Test for Autism in Toddlers (RITA-T). We will highlight cultural considerations while working with diverse families.
The Biden-Harris COVID-19 Health Equity Task Force: Leveraging final recommendations to advance health equity during ongoing pandemic and future pandemics
Presenter(s)
Andrew Imparato, J.D., Executive Director, Disability Rights California (P&A), formerly AUCDTwo members of the Biden-Harris Health Equity Task Force briefly review the Task Force's final report and discuss how it can be leveraged by conference attendees to advance health equity in multiple settings
Let's Be Clear: Making "AUCD Speak" Language Inclusive
Presenter(s)
Kim Singleton, MS, CCC-SLP, Senior Director of Assistive Tech, Institute on Disabilities, UCEDDLet's talk about changing our written and spoken communication to fit the audience. We will learn and practice techniques and tools to incorporate more accessible language in our conversations. Many people often do not understand our complicated language and jargon. We will learn practical tips to shift from the professional language of our field to more inclusive, easily digested communication about policy and practice in developmental disabilities.
Expanding Local Health Department (LHD) Capacity to Achieve Health Equity for Children and Youth with Special Health Care Needs (CYSHCN)
Presenter(s)
Angel Morales, Masters of Public Health, Project Manager, Westchester Institute for Human Development, UCEDD/LENDDuring this presentation a multidisciplinary team (including family specialists, Local Health Department (LHD) coordinators, project managers and principal investigators) from the three New York State (NYS) Regional Support Centers (RSCs) will describe our process of providing technical assistance to LHDs. RSCs engaged families to assess gaps in services and supports and used this data to inform technical assistance to assist LHD CYSHCN programs expand their capacity.
AIR-P Presents: Ethics in Genetics and Autism Research
Presenter(s)
Julian Martinez, MD, PhD, , AIR-P/UCLAThis session will bring together autistic and non-autistic experts in genetics, autism research, and research ethics for an interactive conversation about current concerns and considerations in genetics and genomics, particularly in the context of autism research, neurodiversity, and disability. The session is organized by Autism Intervention Research Network on Physical Health (AIR-P), a neurodiversity-oriented, stakeholder-driven multidisciplinary research network that seeking health promotion and well-being among autistic individuals and their families.
Equity Access: Influencing the Knowledge, Skills, and Attitudes of Future Nurses and Other Healthcare Providers
Presenter(s)
Dori Ortman, Family Faculty, LEND Center of Pittsburgh, LENDAs individuals with disabilities navigate a complex healthcare environment, nurses are often the guide. Nurses care for patients with disabilities, few nursing programs provide coursework on their multifaceted needs. This session presents a collaboration between the University of Pittsburgh and Duquesne University to provide nursing students with an authentic learning experience, with self-advocates playing an active role in shaping the care future nurses and other healthcare providers will provide.
Supporting the Well-Being of Children with Intellectual and Developmental Disabilities During the COVID-19 Pandemic
Presenter(s)
MAUREEN VAN STONE, JD, MS , Director , Kennedy Krieger InstituteParent and guardians of children with intellectual and developmental disabilities (IDD) were reluctant to return to in-person school. Our study examined the positivity rate of COVID-19 school transmission among staff and children with IDD. Data from weekly asymptomatic salvia-based COVID-19 testing in schools, focus group discussions, fuzzy cognitive mapping findings, and the results of a teacher survey and parent survey will be shared. This is an interdisciplinary session.
Collaboration from an Indigenous Perspective... Partnership with Sovereign Nations and Tribal Members with Disabilities, South Dakota and Arizona UCEDD Models
Presenter(s)
Jim Warne, MS, Community Engagement Director, Center for Disabilities, UCEDD/LENDOur session will discuss UCEDD organizational development efforts for ?Indian Country?. Tribal Members have the highest rate of disability in the country and continue to be unserved and underserved populations. This is a gap in services for our indigenous people with significant need. South Dakota UCEDD created the Oy?te Circle and Arizona UCEDD has a new Sonoran Native Center based on collaboration and partnership.
How Three Midwest UCEDDs Support Self-Advocate Leadership in Community-Based Transition Partnership Projects
Presenter(s)
Lynn Hrabik, MPH, RDN, Researcher, Waisman Center, UCEDD/LENDTransitions can present unique challenges for youth with IDD in part due to fragmented systems that are difficult to navigate. Three Midwestern states are partnering on this session to share how self-advocate leadership is centered within community-based transition partnership projects. Self-advocates and UCEDD staff will present about their projects' highlights and challenges, share ideas about meaningful self-advocate leadership and seek recommendations for further growth from peer UCEDD projects.
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