AUCD - Concurrent Sessions Group 1
<< Back to ProgramMonday, November 14, 2022 10:15 am - 11:30 am
Session Description
Concurrent sessions are 75-minute small group discussions or panel presentations.
Presenters
LEND Trainee Mentoring: Just Enough . . . Not Too MuchPresenter(s)
Mark Fisher, PhD, RN, CNE, , Center for Learning and Leadership, UCEDD/LENDLearners and students across the nation with lived experiences and from a variety of disciplines participate in LEND programs. Driven by internal passion or specific interest to learn, these learners pursue leadership growth and development guided by mentors linked through similar roles or disciplines. Yet little is known about LEND mentor-mentee processes nationally. This interactive session will foster dialogue about LEND mentor-mentee relationships highlighting one LEND program's mentoring pilot-program
Community Landscape Analysis for Employment and other Outcomes: An ACL Community Collaboration for Employment Program Panel
Presenter(s)
Seb Prohn, PhD, Assistant Director, Partnership for People with Disabilities, UCEDD/LENDACL's Community Collaborations for Employment Program oversees several projects that are developing and implementing community-driven plans to improve employment outcomes for youth with intellectual and developmental disabilities. This panel will share various approaches for conducting transition-focused community landscape analyses that summarize community resources, strengths, needs and opportunities. Attendees will leave with strategies for leveraging local strengths and addressing local challenges through collaborative community landscape analyses.
Supporting the Whole Person in the Context of their Family: The Role of UCEDDs in the Supporting Families Movement
Presenter(s)
Michelle Reynolds, MSW, Research Associate , University of Missouri- Kansas City, Institute for Human DevelopmentEnsuring equity and supporting the well-being of individuals with disabilities requires honoring the complexities of each family unit as they define themselves. Respect for the intersectional identities of all family members is critical to best support the whole person. This session will provide a "state of the states" on supporting families. The role of UCEDDS in grassroots movements, best practices, state and federal policy, and research will be discussed.
Hidden in Plain Sight: Collaboration and Innovation to Improve Access to Care During COVID-19
Presenter(s)
Bryan Russell, Emergency Management Coordinator, Florida Center for Inclusive Communities, UCEDDThis presentation will highlight the successes from Florida's COVID response and the collaborative effort between state agencies and disability organizations to improve the whole health of persons with disabilities. These collaborative efforts utilized a health equity lens to improve access to care, food, transportation and COVID testing and vaccines for persons with disabilities and their families.
Interdisciplinary Model for COVID-19 Vaccination Clinic for Individuals with Disabilities
Presenter(s)
Suzanne Rybczynski, MD, MSHCM, Associate Chief Medical Officer, Kennedy Krieger Institute, UCEDD/LENDThis panel presentation describes an interdisciplinary approach for COVID-19 vaccination clinics for individuals with disabilities. Members of our interdisciplinary team will describe our safe, comfortable, and person focused model. Our approach will be detailed by members of our clinical team along with our proven strategies for environmental and accessibility controls. We will also discuss the use of pre-appointment plans and tools that enhance the individual visit.
The Keys to Self Determination: Supporting Students with Disabilities in their Transition to Postsecondary Education and Meaningful Employment
Presenter(s)
Eric Folk, , Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramSelf Determination has been a stated focus in the education and support professions for decades. This presentation is designed to increase knowledge and awareness of the components and skills of self determination to prepare students for success in academics, employment and independent living. This presentation will offer participants the opportunity to develop a self determination lens that will inform their personal outlooks and support provision activities.
Supporting Families through a Comprehensive Interdisciplinary Developmental Clinic in Northern Arizona
Presenter(s)
Sara Clancey, PhD., MOTR/L, Director of Community Services, Institute for Human Development, UCEDDJoin us for a panel description about the Institute for Human Developments Interdisciplinary Developmental Evaluation Clinic. The panelists will share an overview of this unique clinic. This will include the comprehensive approach it follows, how it strives to serve families who do not have access to developmental evaluations, and why it has been an important resource in Northern Arizona for over 30 years.
The Sustainability of Self-Directed Supports Across the Lifespan
Presenter(s)
Libby Hallas, MS, Project Coordinator, Institute on Community Integration, UCEDD/LENDSelf-directed supports is a program in which people with disabilities, their families, and their allies directly manage their supports. People participating in New York State's self-direction plan were surveyed about their plans for sustaining self-direction across the lifespan. In this session, the panel will share background information about self-direction, themes from the findings of the survey, and practical implications for supporting the sustainability of self-directed supports across the lifespan.
Read and download presentation materials >
Disability Bioethics: Making the Case Against Health Disparities by Centering Disability Experiences
Presenter(s)
Joseph Stramondo, PhD, Associate Professor, San Diego State UniversityIn this panel, three professional bioethicists that have disabilities, one of whom is also the parent of adult children with IDD, will explore how the methodology of disability bioethics can contribute to discussions of health disparities. Namely, we will highlight how ethical questions around health equity can be reframed by centering the lived experiences of disability as a crucial source of knowledge that should guide health policy and practice.
Calling children to the table: Using an EDI framework to assess early childhood AT interventions and holistic outcomes
Presenter(s)
Michelle Schladant, Ph.D., , Mailman Center for Child Development, UCEDD/LENDThis presentation provides the child outcomes from Step Up AT, an assistive technology (AT) program designed to support the learning and other developmental outcomes of preschool children with disabilities. We used an EDI framework to assess these outcomes to examine how our findings spoke to these goals and highlighted ways to improve from design to delivery. Findings underscore rethinking AT to promote children's holistic goals, including self-empowerment, identity, and belonging.
Read and download presentation materials >
AIR-P Presents: Neurodiversity, Sexual and Gender Diversity, and Health
Presenter(s)
Maria Massolo, PhD, , UCLA Autism Intervention Research Network on Physical Health (AIR-P)The Autism Intervention Research Network on Physical Health (AIR-P) presents a discussion focused panel on sexual and gender diversity, health, and autism through the lens of an interdisciplinary panel with voices from self-advocacy, medicine, research, and psychology.
A Model for Partnering with People with Intellectual and Developmental Disabilities to Develop and Conduct IDD Outcomes Research
Presenter(s)
Sarah Lineberry, MSW, , Partnership for People with Disabilities, UCEDD/LENDThe right of people with disabilities to be full participants in their communities includes the informed choice to be involved in research. We are working to ensure that our research centers the needs of people with IDD and their families and produces accessible, useful findings. In this interactive session, people with IDD and researchers will share their experiences about how to make research partnerships authentic and mutually beneficial.
A Pathway to Health Equity through Employment
Presenter(s)
Cindy Thomas, MS, Director, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LENDAccess to good jobs with fair pay is essential for health equity. It is estimated that 40,000+ people with disabilities are legally paid less than minimum wage. In this session representatives from three states will share the work that is underway to eliminate reliance on 14c, support provider transformation, build employment capacity in their states and engage people who receive supports and their families in this movement.
Dialogue across the AUCD network to advance meaningful collaborations - examples from UCEDDs, LENDs and IDDRCs
Presenter(s)
Rodney Samaco, PhD, Co-Director, BCM IDDRC , Assistant Professor of Molecular and Human GeneticsWhile collaborations exist at UCEDDs, LENDS and IDDRCs, are we maximizing our collective resources to benefit the IDD/DD communities? If so, how? If not, how do we make this happen, and ensure equity and inclusivity? In this interactive session, panelists from AUCD affiliates 'housed' within the same institution will share 'exemplars.' Attendees will participate in a fishbowl exercise and find ways to create meaningful cross-network collaborations while overcoming challenges.