AUCD - Leading Change Session
<< Back to ProgramEnsuring Access to High-Quality Healthcare
Tuesday, November 15, 2022 8:30 am - 10:00 am
Location: M2: Salon 5
Session Description
Many people don’t get access to the health services they need. In this interactive session, a panel of leaders will take a deeper dive into the social determinant of health, “health care access and quality," and what it means to have true, quality care. Led by Ilka Riddle, Director of the University of Cincinnati UCEDD, panelists will share tips, research, and experiences in getting timely, high-quality care for all people with disabilities and their families who want and need to live healthy and dignified lives in their communities.
Moderator
Ilka Riddle, PhD is an Associate Professor in the University of Cincinnati (UC) Department of Pediatrics/Cincinnati Children’s Hospital Medical Center (CCHMC) and the Director of the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) in the Division of Developmental and Behavioral Pediatrics at CCHMC. She received her PhD in Human Development and Family Studies at the University of Delaware, with a focus on disability and illness and its impact on families. Throughout the last twenty years, she has addressed issues such as system improvements for children and youth with developmental disabilities and special health care needs; health disparities, health promotion and disease prevention for individuals with disabilities; healthcare transition, and inclusion of individuals with disabilities across the lifespan in health care settings. She has a particular interest in system change activities to reduce/eliminate healthcare inequities experienced by people with disabilities.
Panelists
Julia Bascom serves as Executive Director at the Autistic Self Advocacy Network. In this role, Julia has worked to build the political power of the self-advocacy movement, deepen ASAN’s connections to other movements for social justice, and lead advocacy efforts to expand home and community-based services, access to health care, and self-determination for people with developmental disabilities. Previously, she did state-level work in her home state of New Hampshire, where she served on the DD council and co-led an inter-agency team to revitalize self-advocacy within the state. Julia edited Loud Hands: Autistic People, Speaking, an anthology of writings by autistic people. She has served on the boards of numerous disability rights organizations over the years, and currently sits on the boards of the Institute for Exceptional Care and Allies For Independence.
Alice Kuo, MD, PhD is the Principal Investigator of the AIR-P and at UCLA. Her research interests include access to and delivery of developmental services, cognitive and language development in young minority children, and services for children and adults with autism and other neurodevelopmental disabilities. In addition to her research, she has been involved in educational programs at several levels, from undergraduate students to post-graduate fellows. From 2014 to 2018, Dr. Kuo was the Director of the Maternal and Child Health Bureau (MCHB)-funded Health Care Transitions Research Network (HCT-RN) for Autism. In 2016, she became the Director of the University of California Leadership Education in Neurodevelopmental Disabilities (UC-LEND) program, and in 2020, she became the Director of the Autism Intervention Research Network on Physical Health (AIR-P). Her clinical practice consists of primary care for patients of all ages with neurodevelopmental conditions. Dr. Kuo received a BA in Biology from Harvard University, her MD from UCLA, her PhD in Educational Psychology with a focus on Early Childhood and Special Education from the Graduate School of Education and Information Studies at UCLA, and her MBA in Healthcare Administration from the University of Massachusetts Isenberg School of Management.
Marc J. Tassé, PhD is a Professor in the Department of Psychology and Department of Psychiatry and Behavioral Health at The Ohio State University. He is also the Director of the Ohio State Nisonger Center, a University Center for Excellence in Developmental Disabilities. Marc has more than 30 years of experience in conducting research and providing clinical services in the field of intellectual disability (ID), autism spectrum disorder (ASD), and related neurodevelopmental disorders (ND). He has significant clinical and research experience working with people with ID/ASD/ND, including people with co-occurring mental/behavioral health concerns. Tassé has been involved in the development of several standardized tests including Diagnostic Adaptive Behavior Scale, Supports Intensity Scale for Children, Supports Intensity Scale for Adults, Nisonger Child Behavior Rating Form, and Quebec Adaptive Behavior Scale. His publications include more than 170 articles in peer-reviewed journals, book chapters, and books. He has given 300+ scientific and professional presentations and invited addresses. Tassé is a Fellow of the American Association on Intellectual and Developmental Disabilities, American Psychological Association, and International Association for the Scientific Study of Intellectual and Developmental Disabilities.
Jim Warne, MS is an Educator-Advocate-Filmmaker and a member of the Oglala Lakota (Sioux) Nation. His mom, Beverly, grew up on Pine Ridge Reservation and is an administrator for South Dakota State University College of Nursing, his dad, Jim Sr., worked in international business finance where the family lived in Thailand and Mexico. His brother, Don is Associate Dean, INMED University of North Dakota. Jim’s wife, Jill, is from the Hoopa Tribe and Ryan is Jim’s son. Jim earned a BS from Arizona State University and a MS from San Diego State University (SDSU). He created and administered continuing Education programs at SDSU Interwork Institute from 1993-2015. He has written over 50 million in grants/contracts for various Universities and Tribal Nations. Currently, Jim is the Community Engagement & Diversity Director at University of South Dakota (USD) Center for Disabilities, Oyate` Circle, Sanford School of Medicine and an Instructor for USD Pediatrics. Jim wrote several grants for University of South Dakota to establish the Oyate` Circle that include partnerships with various state/federal agencies, universities and organizations.
Wesley Witherspoon serves as a representative with self-advocates and their networks and the programs and activities of the USC UCEDDD. He represents the USC UCEDD at local meetings as requested by the Director. He currently serves on the State Council of Developmental Disabilities. With the State Council, Wesley is the chair of the Employment First Committee. He also involved with other committees. In addition, he is the representative for the USC UCEDD for the Self-Advocacy Statewide Network. He also serves on the Community Voter Outreach Committee for the Los Angeles County Registrar-Recorder/County Clerk for voting. He also serves on the Voter Accessibility Advisory Committee for the voting in Los Angeles County. Wesley is committed for the full inclusion of people with intellectual/developmental disabilities. Wesley volunteers with the City of Culver City in August, Special Olympics Summer Games in June, and with the Festival of Books at USC in April.