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AUCD - Concurrent Sessions Group 3

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Tuesday, November 16, 2021 1:45 PM - 3:00 PM

Location: Virtual

Session Description

Concurrent sessions will take place as live presentations during specific times on Monday and Tuesday of the virtual conference. Concurrent presentations will be live and there will be an option for attendees to "chat" with the presenters during the presentation. More information about how to access the concurrent presentations on the virtual platform and "chat" with presenters will be shared with registered, virtual conference attendees


The Power of Self-Advocates using Distance Technology in LEND Programs


Stirling Peebles, VT LEND certificate, , Vermont Leadership Education in Neurodevelopmental Disabilities, LEND

More LEND/UCEDD programs are using distance technology. Self-Advocate trainees/fellows need solid support to participate virtually. This program evaluation project describes Self-Advocates? experiences using distance technology in LEND programs. We will share information on what worked well, what to change and how they felt about being a trainee in their program. Attendees will leave with ideas to improve and make their LEND/UCEDD programs more accessible for all trainees.

Reconciling the past, changing the future: Building capacity of young adults with IDD-MH, families, and researchers to partner in research


Jessica Kramer, PhD, Associate Professor, University of Florida

Panelists will describe Truth and Reconciliation forums designed to acknowledge and apologize for the historical harms and exclusion of persons with IDD/mental health needs (IDD-MH) in research. We convened forums in five states in partnership with young adults with IDD-MH and stakeholders to increase the capacity of persons with IDD-MH, families, and MH researchers to partner in research. Forum development, implementation, and outcomes will be described.

Supporting Family Caregiving and Future Planning


Katie Arnold, Doctoral Candidate, Visiting Research Assistant Professor, Institute on Disability & Human Development, UCEDD/LEND

Family members provide support to people with I/DD and may experience long-term health, social, and financial impacts. We will discuss research on the needs of family caregivers regarding future planning and a newly revised future planning curriculum. With a focus on future planning, we will share recent family support research and promising interventions and policies that can help improve the lives of people with I/DD and their families.

Harnessing the Power of Inclusive Higher Education to Improve Employment Outcomes for Students with Significant Disabilities: A Kentucky Story


Johnny Collett, M.A.Ed., Deputy Director, Interdisciplinary Human Development Institute, UCEDD/LEND

The Kentucky Supported Higher Education Partnership (KSHEP) is a network of Kentucky colleges and universities offering inclusive higher education programs, such as Comprehensive Transition and Postsecondary (CTP) programs, for students with intellectual and developmental disabilities. This session will highlight how the KSHEP is working to increase higher education options and access and improve employment outcomes for students with significant disabilities in Kentucky.

Educational advocacy for children with disabilities or complex medical needs


Caroline Turner, LMSW, Social Worker, Ascension

Within Central Texas, interdisciplinary collaboration has led to improved and expanded educational advocacy. Through a variety of pro bono services based at The University of Texas and Dell Children's Medical Center (e.g., parent training, consultation, direct legal representation), families are empowered to maximize each child's educational services within their local school districts. Representatives from social work, psychology, counseling, and law will provide an overview of services and example cases.

Optimizing Sensory-Motor Development for Children with Prenatal Opioid Exposure: A Project SCOPE Special Edition


Carol Terilli, PT, DPT, Assistant Chief of Physical Therapy, Rose F. Kennedy Center, UCEDD/LEND

Research shows that sensory and motor issues are prevalent in children with prenatal opioid and other substance exposure. Common signs and symptoms closely related to sensory and motor function include inconsolability, overstimulation, reflux, feeding difficulties, hypertonia, and torticollis. Issues that present in infancy can compound into broader deficits over the course of development. Practical real-life strategies for caregivers and providers to address these issues will be presented.

Evidence-based Developmental Monitoring and Screening: Exploring the Intersection of Best Practice and Real-World Application


Sarah Mallory, Ph.D., Assistant Professor, Center for Disabilities Studies, UCEDD/LEND

Early identification and intervention for children with and at risk for disabilities is both mandated by IDEA and linked with improved outcomes for children and their families; yet real-world barriers often impact the implementation of best practices for early screening and identification. Stakeholders from an interdisciplinary statewide team will discuss their role in addressing these barriers when developing and disseminating targeted information about evidence-based parent-led developmental monitoring and screening.

Promoting Alternatives to Guardianship for Youth with Intellectual and Developmental Disabilities


Jaimie Timmons, MSW, Senior Research Associate, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND

Guardianship can impede self-determination for youth with intellectual and developmental disabilities. This session will share results of three different research activities across two projects led by the Institute for Community Inclusion focusing on transfer-of-rights discussions in special education settings and youth leadership initiatives for supporting alternatives to guardianship. Session attendees will learn about alternatives to guardianship that promote the use of least restrictive decision-making supports for youth with IDD.

Person-Centered Practices and Culture: Storytelling from Lived Experience


Bevin Croft, Ph.D., Research Associate, Human Services Research Institute

Acknowledging and understanding a person's racial and cultural identities is essential for providing person-centered supports with cultural competence and humility. In a series of short videos, members of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS) community will share their narratives on how they think about person-centeredness in relation to their racial and cultural identities. This presentation will highlight the reflections and lessons from this project.

Disabled Representation Matters: The Experiences of Students and Early Career Researchers with Disabilities in Higher Education


Meredith Williams, MPH, , University of Wisconsin-Milwaukee

In this presentation, student leaders from the American Public Health Association Disability Section will moderate a panel discussion of disabled students and scholars. Together, we will highlight our skills and talents as researchers, share first-hand accounts of challenges we face within academia, and reimagine a future in which disabled students have full and equitable access to the same educational experiences and leadership roles in research as those without disabilities.

Voices of Families Caring for Children with Special Health Care Needs


Jenna Lequia, PhD, , Westchester Institute for Human Development, UCEDD/LEND

This collaborative project across the three New York State University Centers for Excellence in Developmental Disabilities (UCEDDs) aimed to learn about the experiences of parents and/or caregivers of Children and Youth with Special Health Care Needs (CYSHCN) navigating various service systems and accessing necessary supports and services for their child(ren) and family. This presentation highlights prevalent themes that emerged from conversations with families of CYSHCN across New York State.

Creating the Disability Rights Leaders of Tomorrow: Extending the Empowerment of People with Disabilities


John Smith, MSW, , Institute on Community Integration, UCEDD/LEND

The empowerment of people with neurodevelopmental disabilities depends on raising expectations for full inclusion in all that communities have to offer. This presentation will translate information from contemporary models of disability to encourage people in becoming effective self-advocates for what they want and need in life. It will acknowledge information from earlier models based on charity or fixing what�s broken in people as opportunities for disability advocacy.

Fostering Positive Outcomes and Pathways to Employment: Understanding and Addressing the Transition Needs for Youth with Disabilities in Foster Care


Jacy Farkas, MA, ABD, Assistant Director, Sonoran UCEDD

Youth with disabilities in foster care experience unique challenges in their transition to adulthood. This session presents two initiatives in Arizona aimed at improving outcomes for these youth. This includes a statewide needs assessment utilizing community participatory and youth-centered approaches to develop an agenda for serving youth as they age out of care to adult living, and school-based model development that prepares them for the workforce through work-based learning experiences.

Sexual Health Education in Inclusive Post-Secondary Education Programs for College Students with Intellectual/Developmental Disability


Margaret DeRamus, MS, CCC-SLP, Clinical instructor/Speech-language pathologist, Carolina Institute for Developmental Disabilities, UCEDD/LEND

This presentation relays results of a survey conducted to acquire a greater understanding of sexual health education (SHE) curricula offered to college students with intellectual/developmental disabilities attending inclusive post-secondary education (IPSE) programs in the United States.