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AUCD - Concurrent Sessions Group 1

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Monday, November 15, 2021 1:45 PM - 3:00 PM

Location: Virtual

Session Description

Concurrent sessions will take place as live presentations during specific times on Monday and Tuesday of the virtual conference. Concurrent presentations will be live and there will be an option for attendees to "chat" with the presenters during the presentation. More information about how to access the concurrent presentations on the virtual platform and "chat" with presenters will be shared with registered, virtual conference attendees


Self-Determination in Inclusive, Secondary Classrooms: How Can We Support All Students in Becoming Self-Determined?


Sheida Raley, Ph.D., Assistant professor, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

The Self-Determined Learning Model of Instruction (SDLMI) has been identified as an evidence-based practice for enhancing student self-determination (decision making, goal setting, problem solving, self-advocating) in educational contexts. The value of the SDLMI in academic content areas has been explored and this presentation will share findings from the third and final year of a large-scale, longitudinal study examining the impact of the SDLMI when implemented in inclusive, secondary classrooms.

Prepared4ALL: Increasing Disability Inclusion in Local Emergency Planning


Lex Owen, PhD, MSW, Practice Fellow, Nevada Center for Excellence in Disabilities, UCEDD/LEND

This session will describe three elements of Prepared4ALL, a program developed to help disability organizations increase their knowledge about local emergency planning and partnership-building with local emergency planners. Our online training, virtual affiliate community, and internship program work together to help get disability organizations a seat at their local planning table.

Mental health risk in individuals with developmental disabilities: Improving mental health literacy trainings for caregivers


Ty Aller, Ph.D., Research Assistant Professor, Institute for Disability Research, Policy & Practice, UCEDD/LEND

Individuals with intellectual and developmental disabilities (I/DD) experience mental health issues at a higher rate than the general population. It is important for paraprofessionals, support staff and family caregivers to have mental health literacy (MHL) training so that they can help prevent mental health issues from occurring or worsening in individuals with I/DD. This presentation will provide an overview of a MHL training adapted for caregivers of individuals with I/DD.

Elevating the Voice of All Partners in Community Based Participatory Research and Design Thinking for Social and Systemic Change


Michelle Reynolds, MSW, Research Associate , University of Missouri- Kansas City, Institute for Human Development

Using the approach of Community Based Participatory Research, the LifeCourse Nexus at the UMKC Institute for Human Development is engaged in design thinking, testing, and scaling of promising practices for supporting people with IDD and their families. This session will provide a brief overview of two concepts levels of impact and system touchpoints- and how they support the development and implementation of policies and practices across the country.

Ensuring Access to COVID-19 Information: Findings from the Accessible Materials and Culturally Relevant Messages for Individuals with Disabilities Project


Sarah Anderson, MPH, Health Communications Specialist, CDC Foundation

The Accessible Materials and Culturally Relevant Messages for Individuals with Disabilities Project delivered COVID-19 information in accessible formats, including braille, American Sign Language, and simplified text, to people with disabilities, their families, and caregivers. Additional deliverables included a webinar series and training public health professionals on accessible communication. Lessons learned from this initiative can help ensure that health communications are accessible and culturally relevant to people with disabilities.

Navigating difficult discussions: Exploring the lived experiences of autistic adults and their family members regarding transition, criminal justice, and sexuality


Anne Roux, MA, MPH, Research Scientist, A.J. Drexel Autism Institute

This panel presentation will discuss findings of our recent investigations of the lived experiences of autistic adults and their family members. We will also discuss the nuances of data collection on potentially sensitive topics including transition, interactions with the criminal justice system, and sexuality, and the implications of this emergent work for future investigation and for informing service delivery and policy reform.

Specialty Diagnostic Resource Center: Accessing Fetal Alcohol Spectrum Disorders Diagnostics and Intervention During COVID-19


Elizabeth Cleveland, PhD, Director of Training, Partners for Inclusive Communities, UCEDD/LEND

This panel will consist of experts in fetal alcohol spectrum disorders (FASD) from a variety of universities in Arkansas, including a mother of a child with FASD. We will discuss the creation and founding of a center for diagnosis and intervention that has allowed an increase in identification of children with FASD in Arkansas and how the access to care shifted to allow telehealth services during COVID-19.

Multi-State Trainee Learning Experience: PacWest Trainee Virtual Conference


Debra Vigil, Ph.D., Associate Professor, Nevada Center for Excellence in Disabilities, UCEDD/LEND

The PacWest Consortium held a trainee led virtual conference to enhance the learning experience for trainees from different programs and disciplines. Topics focused on practices during COVID-19 with assessment and clinical practices, ways families were supported and served, and creative approaches to community building. The conference was 2-hours long with approximately 95 participants that had different levels of participation including, presenter, moderator, or participant. Evaluation indicated a clear positive outcome.

Disability Disclosure as a Precursor to Improving the Quality of Healthcare for People with Disabilities


Ashley Falcon, PhD, MPH, , Mailman Center for Child Development, UCEDD/LEND

As part of a larger effort to improve the quality of healthcare delivered to people with disabilities (PWD), a qualitative interview study was conducted to assess the health care experiences and disability disclosure preferences of PWD. Study findings and next steps will be discussed in this interactive presentation. Session participants will reflect on how disability disclosure can be used to meet healthcare needs. This session is recommended for health-related disciplines.

The Act Early Response to COVID-19 Project: AUCD Network Contributions


Danielle Webber, Senior Program Manager, AUCD

The Act Early Response to COVID-19 Project is a national initiative supporting 43 state/territory teams around the early identification of young children with developmental delays and disabilities. The presentation will showcase support for early childhood state systems through the Act Early Network to promote early identification and foster family and child resiliency. Team leads and Act Early Ambassadors will share collaborations with AUCD Network Centers to achieve common goals.

Using the OASIS parent training model to support children with autism: development, evaluation, implementation, and dissemination


Alice Zhang, PH.D., Assistant Professor , Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

The Online and Applied System for Intervention Skills (OASIS) is a manualized parent training program based on the principles of applied behavior analysis. OASIS entails online instructional tutorials and in-person or telehealth-delivered live coaching. This session will describe the development, evaluation, implementation, and dissemination of the OASIS, and highlight how the OASIS parent training and coach training have supported families of children with autism during the COVID-19 pandemic.