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AUCD - Posters: Systems-level Implementation, Demonstration, and Evaluation

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Monday, December 7, 2020 12:00 PM - 4:45 PM

Location: Virtual


Studying Health, Participation, and Self-Determination in People with Down Syndrome: A Novel Approach from an IDDRC and UCEDD Partnership


Evan Dean, PhD, Associate Director, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

This presentation will describe a novel approach to studying the health, community participation, and self-determination of people with Down Syndrome. The project was conducted through a partnership between the University of Kansas IDDRC and UCEDD. We will report on lessons learned in health research using data from electronic health records and also preliminary evidence of relationships between health, community participation, and self-determination of people with Down Syndrome.

Access to Inclusion: Developing Professional Standards for Community Settings


Amanda Faler, M.Ed, , University of Cincinnati UCE, UCEDD/LEND

Public venues are required to meet accessibility standards under the ADA, but families and individuals with disabilities still do not have access to many community settings. Our objective is to develop systematic and comprehensive professional standards for community agencies to follow regarding their accessibility to and inclusion of the developmental disabilities community.

Kennedy Krieger Curriculum: A Multi-Level Curriculum on Neurodevelopmental and Behavioral Disorders of Childhood for Medical and Allied Health Professionals


Mary Leppert, MB BCH, Associate Professor of Pediatrics, Kennedy Krieger Institute, UCEDD/LEND

This presentation will describe the development, implementation and evaluation of an innovative, faculty led interdisciplinary educational initiative. The curriculum is designed to be comprehensive, evidence based and appropriate for learners of all disciplines and educational levels who are interested in, or charged with, the care of children with disabilities. The curriculum's efficacy in its use for trainees and practicing primary care providers and participants' satisfaction' will be described

Factors that impact the tenure of Direct Support Professionals in New York State


Hirah Mir, Ph.D., Research Scientist, NYS Office for People With Developmental Disabilities

In 2018, the turnover rate for Direct Support Professionals in NYS was 35%. NYS OPWDD conducted a study using National Core Indicators Staff Stability data to identify factors that influence tenure of DSPs. The study provides empirical evidence that wages, benefits, and efforts to professionalize the DSP workforce influence retention. Results can be used by agencies to develop system-wide efforts to support DSPs and to evaluate recruitment and retention efforts.

Development of a Zika Resource Guide for Children in the Pacific Basin: Leveraging Systems of Care through LEND Training


Alexis Deavenport-Saman, DrPH, MPH, Assistant Professor of Clinical Pediatrics, USC, Childrens Hospital, UCEDD/LEND

Congenital Zika virus (ZIKV)-exposed children and children with other neurodevelopmental disabilities (NRD) need care for their physical, behavioral, developmental, emotional, and mental health needs to achieve optimal life course trajectories. In the Pacific Basin, there is a lack of comprehensive information on the systems of care that health care professionals can leverage to address the long-term impact of chronic health conditions such as ZIKV. Resource guides were created.

Strengthening the NYS Early Childhood System to Ensure Coordination of Services and Equitable Access for all Children 0-5


Kristin Weller, MS, LMHC, , NYS Council on Children and Families

The NYS Council on Children and Families will showcase two federal grants dedicated to strengthening early care and education systems and ensure coordination of services, elevate parent voice and provide equitable access for all children. The poster presentation is an opportunity to share systems-building work with other states and their local cross-system partners to demonstrate the possibility of creating far reaching systems change in the early childhood arena.

Leveling the Playing Field for Children and Families Impacted by Opioid Use Remove Barriers to Specialty Knowledge-Project SCOPE


Canyon Hardesty, MS, Director, Community Education and Training, Wyoming Institute for Disabilities, UCEDD

al and poor report a disproportionately high number of babies born with neonatal abstinence syndrome (NAS). These communities experience also experience significant shortages of professionals with the knowledge and skills to respond to this crisis. We will discuss the outcomes of the first year of Project SCOPE, a three-year National Training Initiative designed to rapidly increase the capacity of interdisciplinary early care environments.