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AUCD - Concurrent Sessions Group 2

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Monday, December 7, 2020 3:30 PM - 4:45 PM

Location: Virtual

Session Description

Concurrent sessions will take place as pre-recorded presentations during specific times on Monday and Tuesday of the virtual conference. Concurrent presentations will be a pre-recorded, captioned video but will have an option for attendees to "chat" with the presenters during the presentation. More information about how to access the concurrent presentations on the virtual platform and "chat" with presenters will be shared with registered, virtual conference attendees.



Implementing Equitable Access to ABA Telehealth Treatment in Emergencies and Beyond: Pandemic Preparedness to Virtual Development


Susannah Poe, Ed.D., Psychologist, BCBA-D, LEND Mentor, Center for Excellence in Disabilities, UCEDD/LEND

We will present a state-wide action plan based on a survey of clinicians and parents of clients that outlines preparedness efforts helpful in providing remote applied behavior analytic services to clients in reaction emergencies (e.g., the COVID-19 pandemic). We will discuss how COVID-19 served as a catalyst for changes in telehealth that we hope will extend to clients with limited access to services due to differing life circumstances.

Rapid deployment of neurodevelopmental evaluation telehealth services in response to COVID-19: Lessons learned and implications for future clinical innovation


Rebecca McNally Keehn, PhD, Assistant Professor of Pediatrics, Riley Child Development Center - Indiana University, LEND

COVID-19 rapidly transformed service delivery for individuals with neurodevelopmental disabilities. In response, the Riley Child Development Center LEND launched a telehealth program aimed at minimizing disruption in access to family-centered neurodevelopmental evaluation services. In this presentation we will report on 1) barriers to uptake of telehealth services, 2) utility of the telehealth modality for neurodevelopmental evaluation, and 3) clinician and caregiver satisfaction. Lessons learned and future directions will be discussed.

Life after LEND for Self-Advocates: The Road to Self-Determination


Debra Vigil, Ph.D., Associate Professor, Nevada Center for Excellence in Disabilities, UCEDD/LEND

Self-advocate LEND trainees who completed their programs are now employed. The Pacific West LEND Leadership Consortium will have a panel of former LEND trainees to share their experiences in regards to self-determination related to employment and life satisfaction. Topics of interest include accommodations, autonomy, inclusion, and recommendations to LEND programs for future LEND trainees. LEND programs will complete a survey on how they prepared self-advocate trainees for self-determination.

Equity Action Lab as a Strategy for Dismantling Inequity: How a Parent Leader and UCEDD Mobilized a Rural Wisconsin Community


Lynn Hrabik, MPH, , Waisman Center, UCEDD/LEND

In this session, a parent leader and UCEDD staff describe implementation a community-based initiative to address disparities in developmental and autism screening in rural Wisconsin. The UCEDD supported a parent leader to host community stakeholders in an "Equity Action Lab" to create, test, and adapt local solutions for increasing screening. Presenters will share project outcomes, and tips and tools for implementing this model to advance disability-related equity initiatives.

The CT UCEDD, Act Early, and Child Welfare: A Collaborative Effort to Improve Child Outcomes


Bethanne Vergean, CDC Act Early Ambassador for CT, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND

This presentation describes a unique partnership in CT among the CT UCEDD, CT Act Early Ambassador, and the state Department of Children and Families (DCF) to develop a training for child welfare professionals to recognize and document developmental milestones or �red flags� using the Learn the Signs. Act Early. materials and resources. Trainings began in summer 2019 and have been incorporated into DCF�s Workforce Training Academy starting in spring 2020.

Breaking Down Health Care Barriers and Infusing IDD into Medical School Education


Joanne Siegel, MSW, Co-Director RFK UCEDD, Rose F. Kennedy Center, UCEDD/LEND

Rose F Kennedy UCEDD at Albert Einstein College of Medicine piloted didactic, interactive and experiential clinical skills training for medical students with a focus on treating adults with IDD. This effort is part of the American Academy of Developmental Medicine and Dentistry's (AADMD) five year National Curriculum Initiative in Developmental Medicine (NCIDM) and seeks to address gaps in medical school education in order to reduce health disparities for this population.

Not Your Standard Patient: A multi-format curriculum to teach medical students disability etiquette


Courtney Lanham, MSW, Training Specialist, Center for Excellence in Disabilities, UCEDD/LEND

This session will highlight the Not Your Standard Patient simulation experience created by the WVU Center for Excellence in Disabilities (CED) and the WVU School of Medicine. The creation, structure, and implementation of the simulation experience will be presented; as well as how it was adapted into a long distance learning format during COVID-19. We will present the structure of the adapted version and results.

Improving access to Healthcare, Dentistry, and Community Resources; Tools from the Behavioral Sciences


Nicole Turygin, Ph.D., Psychologist, Westchester Institute for Human Development, UCEDD/LEND

Individuals with intellectual and developmental disabilities face a number of barriers when accessing public services and healthcare. Avoidance can stem from fear, anxiety, previous negative experiences, and sensory concerns, among others. In this interactive presentation, you will learn to use tools informed by behavioral science to decrease barriers to acting community resources, including medical and dental care. Tools for self-advocates, service providers, and families will be provided.

Parent Training and Education for Diverse and Underserved Families


Sandy Magana, PhD, MSW, Professor, Texas Center for Disability Studies, UCEDD/LEND

In this panel we will present three different training and/or education programs for parents of children with autism spectrum disorder with a focus on underserved communities. We will describe programs that serve children from 18 months to age 22 from low-resource, racial/ethnic or rural families. We will elucidate different delivery formats including parent led, telehealth and student coaching delivery methods. We will explain curriculums, intervention protocols and evaluation results.

Empowering Illinois-based Refugees/Asylees with Disabilities in Their Educational, Service, and Employment Pursuits


Rooshey Hasnain, Ed.D., Clinical Assistant Professor and PI, Institute on Disability & Human Development, UCEDD/LEND

Our panel will introduce our three-year NIDILRR-funded research initiative, Partners of Refugees in Illinois Disability Employment (PRIDE), established in 2016 to serve greater Chicago and surrounding areas. PRIDE's purpose, using culturally and linguistically appropriate approaches, is to build disability awareness in refugee-serving community-based agencies, while helping 50 job-seeking refugees/asylees with disabilities as they navigate resources and services in pursuit of their desired educational and employment goals.

Strategies for Families of Children and Youth with Special Health Care Needs In and Out of a Pandemic


Sabrina Smith, MPA, Project Manager, Strong Center for Developmental Disabilities, UCEDD/LEND
Sharon Milberger, ScD, Director, Developmental Disabilities Institute, UCEDD/LEND
Six initiatives will be presented around improving supports and services for families of children with special health care needs in and out of a pandemic. We will share prominent themes from conversations with families around navigating service systems, impact of special health care needs on the family unit, disruptions due to COVID- 19, and data-driven strategies and tools to continue clinical supports and services during public health emergencies.

Health and Well-being: Healthy Relationships, Improving Sexual Health Literacy and Advocacy Skills, and ABC's of Self Care


Faith Kelly, BA, Training Coordinator, Center for Human Development, UCEDD/LEND
Lydia Hamilton, MPH, Research Associate, Indiana Institute on Disability and Community, UCEDD
Naomi Rombaoa Tanaka, PhD, Assistant Specialist Faculty, Hawaii Center on Disability Studies UCEDD Program
Learn tips and strategies to support personal and interpersonal health and well-being. This session will include outcomes from a virtual pilot of the Friendships & Dating Program, and tips for facilitating healthy relationships/sexuality sessions online, findings of three focus groups to better understand the sexual health needs of women with IDD in Indiana, and the ABC�s of Self Care compiled and utilized by the Hawaii Positive Engagement Project.

Investing in Equity: Actionable strategies for advancing inclusion and intersectionality through workplace culture, projects, and partnership


K. Eva Weiss, MA, Institute on Disabilities, UCEDD
Sally Gould-Taylor, PhD, Executive Director/Associate Research Professor, Institute on Disabilities, UCEDD
Derrick Willis, MPA, Director, Iowa UCEDD, Center for Disabilities and Development, UCEDD/LEND
The Pennsylvania and Iowa UCEDDs will share replicable approaches to strategic planning, collaboration and project design to achieve systems change and social justice. This presentation will highlight culturally responsive organizational leadership strategies and intersectional approaches to dismantling the school-to-prison pipeline and enhancing Census participation. Addressing complex social problems and achieving equity requires coordinated, multi-sector and multi-scalar efforts to bridge silos and inspire a shared vision.