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AUCD - Concurrent Sessions Group 1

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Monday, December 7, 2020 1:45 PM - 3:00 PM

Location: Virtual

Session Description

Concurrent sessions will take place as pre-recorded presentations during specific times on Monday and Tuesday of the virtual conference. Concurrent presentations will be a pre-recorded, captioned video but will have an option for attendees to "chat" with the presenters during the presentation. More information about how to access the concurrent presentations on the virtual platform and "chat" with presenters will be shared with registered, virtual conference attendees.



Transition to Equity: LEND Leading the Way Through Self-Advocacy to Change People and The World.


Kelly Von Lehmden, B.A., Interdisciplinary training Coordinator, Center for Disabilities and Development, UCEDD/LEND

Iowa's LEND (ILEND) Program introduced self-advocacy trainees into our cohort three years ago. In this presentation, you will walk the path blazed by these self-advocates. We'll show you how all trainees were impacted on a personal level, how ILEND has grown through their full participation, and how Iowa's UCEDD was influenced to achieve greater equity for people with significant disabilities by more fully integrating them into leadership roles.

Project ECHO at Kennedy Krieger Institute:A Tele-education Program Supporting Health Care Providers in Rural Underserved Communities


Joyce Harrison, MD, Program Director, KKI_NECT, Kennedy Krieger Institute, UCEDD/LEND

There is a critical shortage of subspecialists to treat children with developmental and mental health conditions in the U.S. This presentation describes a program which expands the workforce by tele-mentoring and training for primary care clinicians caring for children with disabilities. Implementation of the ECHO model, the complexity of cases primary care clinicians are managing in their communities, and the impact of the program will be discussed..

"Sharing our Journey": A video module series aimed at reducing service disparities through positive engagement of Black and Hispanic communities.


Elizabeth Morgan, Ed.M., Ph.D. Candidate , Program Coordinator , UC Davis at the MIND Institute, UCEDD/LEND

In efforts to increase awareness and access to early intervention for children with disabilities in underserved communities the UCDavis CEDD has formulated a series of video modules using input from community stakeholders. The series provides culturally relevant and culturally sensitive information to engage African American and Hispanic families around disability. In this interactive session, participants across disciplines will engage with the modules to produce action plans to empower underrepresented communities.

Living Well Wisconsin: Creating Equity to Prevent Abuse and Neglect through Self-Advocacy and Peer Leadership


Shannon Webb, Consultant, inControl Wisconsin, Inc.

Wisconsin is developing a network of peer leaders to teach people with disabilities about their rights and how to protect themselves from abuse. Three Living Well team members, two of whom are self-advocates, will explain how to meaningfully engage self-advocates and create partnerships between peer leaders, the DD Council, UCEDD, and Protection and Advocacy agency to address inequities for people with disabilities.

From Covid-19 to Co-Video Sessions: OT, PT, ST Leading the Way to Equitable Telehealth: Pandemic Lessons


Daniella Soba, MS, OT, OTR, Rose F. Kennedy Center, UCEDD/LEND

During the Covid-19 crisis, therapeutic services abruptly transitioned to Telehealth. In our study, we examined the experiences of caregivers of children and adults with developmental disabilities who used Telehealth-based occupational, physical, or speech and language therapies during the Stay-At-Home period. Findings will inform decisions concerning continued use of Telehealth therapies as an option once in-person services resume, and ways to make Telehealth equitable, feasible, and successful.

Highlighting the Lived Experience and Professional Perspective of Mental Health & Disability Through Storytelling


Danielle Augustin, MS, Health Coach & Project Coordinator, Interdisciplinary Human Development Institute, UCEDD

Mental health conditions are prevalent within the disability population, but knowledge and understanding surrounding this intersection is still limited. Through our podcast and digital storytelling efforts, the Mental Health and Developmental Disabilities National Training Center aims to raise awareness about co-occurring mental health conditions and disabilities, educate professionals in the field about this intersectionality, and provide people with disabilities a safe space to learn from peers with lived experience.

New Guideposts on the Roadmap for Health Equity Data for Persons with Intellectual and Developmental Disabilities 2020-2030


Jennifer Johnson, EdD, Deputy Commissioner, Administer on Disabilities, Administer for Community Living

The U.S. sorely lacks a health surveillance system that routinely reports on health status, needs, and disparities. This panel will present on federal cross-agency collaboration to develop a Roadmap for Health Equity Data for Persons with IDD 2020-2030. It identifies methods for routinely reporting on health of persons with IDD through national surveillance and state administrative data. Discussion will address needs for future data analytics capacity in the network.

Person Centered Equity: How to Create a Seamless Transition from School to Adult Providers


Stacey Herman, Masters, Director, Post-Secondary Services, Kennedy Krieger Institute, UCEDD/LEND

This presentation brings together colleagues from the Kennedy Krieger Institute who have designed an interdisciplinary approach to increase employment outcomes for individuals with disabilities transition from school to work. This panel will include a discussion on how best practices can be used by various stakeholders, support systems, and service providers to set priorities, focus efforts, foster genuine collaboration, ensure mutual accountability, and capture data through a cloud-based data collection system

Pandemic Lessons Learned: Virtual Clinic Training from the PacWest


Amy Costanza Smith, PhD, CCC-SLP, LEND Director, Oregon Institute on Development & Disability, UCEDD/LEND

Five LEND programs from the PacWest Consortium will discuss how they adapted clinical training to virtual formats due to restrictions of in-person care during the Coronavirus pandemic. These adaptations were made quickly to continue LEND training and provide much needed services to children and families.

Zoo Access for All: Making the Cincinnati Zoo More Accessible and Inclusive for Individuals with Developmental Disabilities and Their Families


Jen Smith, PsyD, LEND Director, University of Cincinnati UCE, UCEDD/LEND

Using the Cincinnati Zoo & Botanical Garden's (CZBG) Zoo Access for All program as a model, this panel will explore how disability experts and individuals with disabilities and their families can create sea change in community organizations through successful partnerships. Panelists will include disability expert from the Cincinnati LEND Program; Family Advisory Council (FAC) member; CZBG's internal project leads; and evaluator from COSI's Center for Research and Evaluation (CRE).

Workplace Accommodations and Universal Design for Young Adult Central Nervous System Cancer Survivors


Kathy Sheppard-Jones, Ph.D., Executive Director, Interdisciplinary Human Development Institute, UCEDD

This presentation reports case study findings from four young adult central nervous system cancer survivors who completed an ecological assessment of their workplace accommodation needs. These individuals were highly motivated to continue working, but they reported significant barriers to job retention. Presenters will discuss accommodation and universal design strategies to facilitate positive career outcomes.

Living Well during COVID-19: How 8 States Ensure Safety, Support Equity and Maintain Quality for Individuals with Disabilities


Lynn Hrabik, MPH, , Waisman Center, UCEDD/LEND

The pandemic stressed our resources, and spotlighted limitations in existing services/supports for individuals with disabilities. Yet, it also gave us opportunities to think differently about what is possible, especially for our most vulnerable. In this session, representatives from the Model Approaches to Living Well projects will share their innovations and lessons learned in ensuring safety, supporting equity and maintaining quality in light of the pandemic and into the future.

Advocating for Inclusion and Awareness of Disability Content in Health-Related Undergraduate and Graduate School Curricula and Professional Training


Jamie Ray-Leonetti, JD, Associate Director of Policy, Institute on Disabilities, UCEDD
Holly LaBrecque, MPH, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
Winston Kennedy, Doctor of Physical Therapy , Eunice Kennedy Shriver Center, UCEDD/LEND
This presentation examines data on attitudes and awareness on disability among undergraduate and graduate school students and health professionals. It also looks at the level of disability content incorporated into health related undergraduate and graduate school curricula and professional training. Possible solutions to increase inclusion and awareness of disability among these curriculums and trainings are examined.

Needs of People with Disabilities During a Pandemic


Lisa McNiven, MPA , Disability Consultant , NM Governor's Commission on Disability
Adriane Griffen, Senior Director of Public Health and Leadership
Kathryn Burke, PhD, Assistant Research Professor, Institute on Disabilities, UCEDD
The likelihood of a person with a disability to be part of a disaster has increased due to severe weather and other disasters. Emergency preparedness efforts often don't include the 1 in 4 Americans who have a disability. We will share state-level perspectives on the experiences of people with a range of disabilities during COVID-19, and how to increase the capacity of organizations and agencies that serve the disability community.

Parent and Family Navigator Models: Covid-19 and Beyond


Allison Kumnick, B.A., Medical Student, LEND Trainee, Mailman Center for Child Development, UCEDD/LEND
Christine Mirzaian, MD, MPH, Director, Clinical and Community Services, USC, Childrens Hospital, UCEDD/LEND
Parent and Family Navigation programs help families of individuals with disabilities access the service system. These programs address barriers including, culture, language, and knowledge. The two presenting programs in this session will share their unique navigation models, as well as data from before and during the COVID-19 pandemic. The session will focus on adaptations of these programs to serve families, specifically those of economically and socially disadvantaged backgrounds.